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What do you least like about diabetes?

Discussion in 'Type 1 Diabetes' started by Jelaca, Oct 26, 2012.

  1. finntasticemma

    finntasticemma · Member

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    I hate everything about being diabetic, but it is so much better then being dead from it! Happy thoughts! It is a manageable condition it's just getting your head around it.......
     
  2. Carroll Trevor

    Carroll Trevor · Member

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    Hi everyone else, I am a T1 having had it quite simply and easily for 62 years now, I have to use Bovine insulin as Human insulin and I do not get on at all well, I have 2 long-acting Isophane doses morning and evening and 4 short term before I eat doses of neutral insulin, is all fine, but in the last 18 months, as in 14.07.11 I was diagnosed as having Coeliac disease. Oh boy did that mess up my routines and rhythms!! I felt like hell on earth, bs were either 2.3 or 29.5 with very little inbetween and so I had to make a choice.
    I have taken the decision this past week to use a small amount of Carbs each day just to give me some normality again as the gf food is grotesquely high in sugar, fat and salt to make it edible, I put on weight and now hate the way I look.
    The amazing thing is that the minute I ate a small amount of carbohydrate, normal bread, a small unsweetened biscuit my bs's came back to normal as if I had pushed a switch. Astounding and life now feels good again.
    So the reasons I have for least liking diabetes is the tendency for it to develop into other autoimmune diseases out of nowhere.
     
  3. donnellysdogs

    donnellysdogs Type 1 · Master

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    I agree with length of time diagnosed possibly affecting judgement of what we dislike about D.

    I remember my dad 25+ years ago when I was dxd telling me there would be a cure, and in those days he would cut out every article he coukd find in newspapers to tell me of the improvements being made...

    I dint see much of it.... There is no cure... I still get hypos.. I still inject.. I still have to reapply for my licence every 3 years ... And this last aspect is so much mire stricter...... I still finger test.. Although my blood test machine my dad first bought for me was over £100
    and fitted in a shoe box...

    I mainly wish that somebody somewhere could help the children to cope because it was **** tough for me and I was early 20's!!!

    I just mainly wish though that I could meet a fellow diabetic on a pump and cgm who is a consultant who as well as sitting in an office all day also did 6-8 hours physical work each day and learn from somebody in HCP environment who has real life experience of working physically, driving at least 4 trips each day, and also living.... Someone that truly understands like fellow members on this forum the ups and downs of life and coping...
     
  4. donnellysdogs

    donnellysdogs Type 1 · Master

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    Ditto Carroll Trevor.. Just experiencing same myself with slightly different as yet waiting diagnosis of blocked bowels... And consultants referring to problems being linked to diabetes...

    If we get D why do we have to get additional probs.... Isnt D enough ??
     
  5. diabetes51

    diabetes51 · Active Member

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    Sorry I can feel a rant coming on here!!

    I have integrated diabetes into my life for 53 years and the only thing I really hate about it, is it gives other people the right to interfere in my life. This wasn't too bad until the last few years with the governments highly praised 9 tests for all diabetics which are supposed to prevent complications and make us all live longer. Makes me wonder how I survived so long without some GP or DSN squinting at a computer screen and telling me - dear dear your HBA1c is 0.2 too high - you need to lose some weight etc.

    I just wish they would stop treating me like a criminal if a test isn't exactly where it should be - I am sure for many years of my life my BS was well over the limits they now set. Urine testing and keeping it at a certain shade of green did not give stability, but I have survived 53 years. I will be interested to see in 50 years time if these wonder tests have kept more people alive and free of complications! I believe having a positive approach and not allowing my diabetes to prevent me from being spontaneous, training as a swimmer when that was frowned upon - (exercise was deemed bad for diabetics 50 years ago you know), going abroad (I was told not to do that as there was more ozone in the air which would destabalise me) , dancing the night away etc etc is what has kept me going. I refused to be crippled by my diabetes, it would live with me and what I wanted to do not the other way around.

    Doctors on the whole hate chronic conditions, especially when they cannot control and/or cure them. So they are now in this position where they have 9 tests which they can use to pretend they had some power over the condition and if they are abnormal blame the patient of course. I recently told my GP I was not given diabetes as a punishment for a crime, you are not my probation officer and I am the person in charge. Until he decides I am at least an equal partner, then no more tests. You see I am not allowed access to the results as I was when I had a specialist, no printed sheet for me any more, no care plans, just criticism.

    End of rant, sorry but my GP drives me a bit crazy sometimes :crazy: .
     
  6. nat.roberts

    nat.roberts · Member

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    I hate everything bout diabetes, iv had it for forteen years and cant stand having it. Sometime i feel like its ruling my life.


    Sent from my GT-I9000 using DCUK Forum mobile app
     
  7. Superchip

    Superchip · Well-Known Member

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    **** good rant diabetes51 !

    Could not have put it better myself. A whole box of nails hit squarely on their heads.

    Totally agree with everything you have said !

    It's a bit old but -Q. how do you tell the difference between god and a gp ?

    A. god knows he is not a gp.

    You will live much longer with your attitude ...

    Keep taking your own advice !

    Roy
     
  8. alisoningold

    alisoningold Type 1 · Active Member

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    Necrobiosis Lipoidica!
     
  9. Thundercat

    Thundercat Type 1 · Well-Known Member

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    One very annoying aspect is how doctors etc pin every health prpblem to diabetes. With small things its bad enough but can be serious. I had an undiagnosed duonenal ulcer for 2 years. In and out of hospital, violently sick,in almost constant pain. Every doctor saw my bs which was elevated from ulcer and vomiting as the cause not the outcome. The rows with one doctor were severe and traumatic. Nothing I said would convimce them that I wasn"t neglecting my diabetes. I was worn out from worry and frustration trying to regulate bs with no medical help. Nightmare. Luckily for me I moved to a different place and so had to switch hospitals and for the first time in what would have then been 18 years had a medical team who listened tp patients instead of presumimg we are all inept. Sadly, family issues meant I moved back again to original area a few years back and am once again talking to original rocks (sorry, I mean doctors!)

    Sent from the Diabetes Forum App
     
  10. allybellx

    allybellx Type 1 · Newbie

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    alisoningold I have that too!! I'm new to this forum and I've just came on to talk to other people and get advice about things, any advice on how to work this would be great !


    Sent from the Diabetes Forum App
     
  11. Chaz1311

    Chaz1311 · Newbie

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    A very inspirational rant :)

    I'm one of the lucky ones with a GP practice nurse who's a t1 diabetic! If it wasn't for her, the GP would've put me on simvastatin because my cholesterol was 5 (a few days after a heavy night out too). I'm a healthy 24 year old with no other issues - it's medicine gone mad! So the worst thing about diabetes: the interference and judgemental attitudes (the latter refers to dieticians mostly).


    Sent from the Diabetes Forum App
     
  12. lins100

    lins100 · Member

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    I agree with the post writer. I have had Type 1 diabetes since I was 9. Was not in my family and a another child the same age as me who lived nearby was also diagnosed with type 1. If that's not an environmetal factor I don't know what is. Is it coincidence? Highly unlikely.

    Well I've had diabetes for 26 years now and have changed various insulins not for the tight control but more as they were more modern than the rest and could prevent hypos not that I had many until ithe last few years and after attending a dafne course strangely enough.

    Everyday I find I am struggling with the control of my blood sugar. Now matter how good I can aim to be it doesn't always work out owing to the various aspects of life. If I get stressed at work my blood sugar rises. Perhaps I may be more physical than other days or didn't eat as much as I'd thought as I might have guessed wrong so get a low blood reading. Alas then I end up with a rebound high. Its very tough trying to aim for the control medical books suggest we should aim for. My Hba1c is 7.5 and I am told this is good yet I have mild retinopathy which I've been told can come with having diabetes for years no matter how controlled you are which makes me feel so dissilusioned about best of times. .
    No matter how hard I struggle to get tight control it seems impossible to get the tight control that likely deserves to remain free of complications.
     
  13. lins100

    lins100 · Member

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    If the nhs don't mind paying for the treatment I will need for my eyes in the future then hey ho. I just can't understand why there is no government funding towards a cure for diabetes when its one of the most costly things for the nhs in the uk.
     
  14. Samantha98

    Samantha98 · Member

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  15. gemma486

    gemma486 · Active Member

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    What do I least like about diabetes all of it but its here to stay plus I have learnt from it and helped others

    But what really does my head in is non diabetics they think they can have a say in every thing you or drink. Some one offers a box of chocolates round "oh you can't have one of them" sod that give me one one won't kill me a whole box might but I ain't that stupid and I am still alive

    My doctors nurse and dietician telling me I need a routine ok with 3 kids husband university ( with placements) traveling what's a routine never had one still alive

    People comparing me to other diabetics who have had complications ( amputee) I have my legs and my life is totally different to theirs

    This is what I hate about diabetes


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  16. diabolic sister

    diabolic sister LADA · Well-Known Member

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    I hate waking up and remembering I am diabetic.
    Diabetic51 it's encouraging to know that you intend to live to be 103 :)

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