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What's your C-peptide value?

cz_dave

cz_dave

Well-Known Member
Messages
450
Type of diabetes
Type 1
Treatment type
Insulin
I got retested for C-peptide and I am at 0.25 nmol/l, down from 0.35 a year ago. (The norm being 0.35 to 1.15)

How about everyone else?
 
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Ok. So, I suppose that as long as I have some recordable c-peptide, I can keep the "LADA" profile tag on this forum? :)
 
What good does it do you to know what your C-peptide is? Never had one done.
 
TheBigNewt said:
What good does it do you to know what your C-peptide is? Never had one done.
Click to expand...

It hasn't really done me any good.

However, the reasons my medical team have ordered the cpeptide test have been:
  1. Frequent nocturnal hypos including occasions of severe hypoglycaemia and hypoglycaemic hemiplegia, so they wanted to know I was making any insulin and were checking the type 1 diagnosis, along with a gad test
  2. I'm currently being assessed for islet cell/ pancreas transplant. They want to know you're not making any insulin before you get on the list.
 
catapillar said:
It hasn't really done me any good.

However, the reasons my medical team have ordered the cpeptide test have been:
  1. Frequent nocturnal hypos including occasions of severe hypoglycaemia and hypoglycaemic hemiplegia, so they wanted to know I was making any insulin and were checking the type 1 diagnosis, along with a gad test
  2. I'm currently being assessed for islet cell/ pancreas transplant. They want to know you're not making any insulin before you get on the list.
Click to expand...
Wow, so in the UK they will get you a pancreas/islet cell transplant without a kidney transplant and you don't have to pay? That's very cool IMO. I don't think they do that in the US, at least not very often.
 
TheBigNewt said:
Wow, so in the UK they will get you a pancreas/islet cell transplant without a kidney transplant and you don't have to pay? That's very cool IMO. I don't think they do that in the US, at least not very often.
Click to expand...

No, of course you don't have to pay. In fact, I'm pretty sure cadaver transplants aren't carried out in the private sector in the UK, although there may be some private clinics doing living donor kidney transplants. I would imagine a private sector transplant from a cadaver is probably illegal - it's probably regulated to take place under the donor service in the NHS.

All healthcare provided by the NHS is free at the point of use. What healthcare you get access to as a patient is determined by clinical need and that may well be assessed on an economic standpoint to what equates to rationing. You can't just walk in and demand (hmm transplant is a bad example, because anyone anywhere is still going to require a matched dead person for a transplant so that makes them inherently pretty well rationed) I dunno, herceptin because you've heard it's an excellent breast cancer drug if your breast cancer doesn't have HER2 receptors so there's patently no clinical need for herceptin.

Assessment is taking place under nephrology, but it wouldn't include a kidney transplant, it's just because the nephrology team have the most expereince because of the number of kidney + pancreas transplants and well it seems a pancreas transplant works better if it comes with a kidney. They are pretty keen to get me on the list. Personally, I would struggle to classify being considered as clinically requiring transplant as being "very cool".
 
I didn't mean it's cool you need one, but I don't think in this country you can even get one without needing a kidney too. I have one physician acquaintance who's a long time T1 and he needed a kidney and got the islet cell too and went off insulin last I heard.
 
There are many examples of serum markers in other inflammatory / autoimmune diseases being affected by lifestyle choices, but many diabetics still believe that C-peptide levels are determined purely by genetics or luck, not diet or other factors.
There is no evidence to support this belief.
 
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