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When will I be invited?

JAY1JAY1

Well-Known Member
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623
Location
Birmingham
Type of diabetes
Treatment type
Tablets (oral)
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Diabetes
so far my doctor and practice nurse have been of little help . Can anyone give me some idea when I will be invited to take part in a awareness course or meet an healthcare team ?? I'm new to type2 and haven't got a clue as to what I should be asking for or who I should be seeing??? My thanks Jayjay
 
Welcome. The docs and nurses wont give you that much support, they will be there for you for meds and the hba1c tests but by my own experience it is largely left up to yourself to get the right information and look after yourself, no one else can do it better than you, your in the right place for 'the knowledge' this is where it's all happening as well as the great support, dig in, the type 2 crew will give you some sound advice.
 
Welcome to the forums .. You have found the best place for advice and support here. I am tagging @daisy1 who will be along with your welcome pack that will have lots of information that you should find very helpful
 
Welcome JJ.
The NHS has been useless for me regarding diabetes.
I doubt you'll be getting any invites anywhere.
You might get told Weetabix is the best breakfast .... it's one of the worst and you might get a picture of a plate with some food on it titled the eat well plate.
[negative remark removed]
But .... you found this place.
I doubt it will be long before you realise finding this place is one of the best things to have happened to you of late.
 
Last edited by a moderator:
@JAY1JAY1

Hello Jayjay and welcome to the forum :)

Here is the information we give to new members and I hope you will find it useful. Ask all the questions you like and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 140,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi and welcome. There is a "charter of rights" which I don't think is included as such (forgive me if I'm wrong) in @daisy1's excellent guidelines above, but here it's worth checking out.The term "your healthcare team" may be a bit optimistic in these cash-strapped times.


  • THE CARE YOU SHOULD RECEIVE

    • There is a minimum (my italics) level of healthcare that every person with diabetes deserves and should expect. Here are the 15 essential checks and services you should receive. If you aren’t getting all the care you need, take this checklist to your diabetes healthcare team and discuss it with them.

    1 Get your blood glucose levels measured at least once a year. An HbA1c blood test will measure your overall blood glucose control and help you and your diabetes healthcare team set your own target.

    2 Have your blood pressure measured and recorded at least once a year, and set a personal target that is right for you.

    3 Have your blood fats (such as cholesterol) measured every year. Like blood glucose levels and blood pressure, you should have your own target that is realistic and achievable.

    4 Have your eyes screened for signs of retinopathy every year. A special digital camerais used to take a photograph of your retina (at the back of your eye) and a specialist will look for any changes. This free test is part of the annual diabetic screening service and is different to the checks carried out by an optician. If you notice any changes between appointments it is important to contact your optometrist or GP.

    5 Have your feet checked. The skin, circulation and nerve supply of your feet should be examined annually. You should be told if you have any risk of foot problems, how serious they are and if you will be referred to a specialist podiatrist or specialist foot clinic.

    6 Have your kidney function monitored annually. You should have two tests for your kidneys: urine test for protein (a sign of possible kidney problems) and a blood test to measure kidney function.

    7 Have your weight checked and your waist measured to see if you need to lose weight.

    8 Get support if you are a smoker including advice and support on how to quit. Having diabetes already puts people at increased risk of heart disease and stroke, and smoking further increases this risk.

    9 Receive care planning to meet your individual needs. You live with diabetes every day so you should have a say in every aspect of your care. Your yearly care plan should be agreed as a result of a discussion between you and your diabetes healthcare team, where you talk about your individual needs and set targets.

    10 Attend an education course to help you understand and manage your diabetes. You should be offered and have the opportunity to attend courses in your local area.

    11 Receive care from a specialist paediatric team if you are a child or young person.

    12 Receive high quality care if admitted to hospital. If you have to stay in hospital, you should still continue to receive high-quality diabetes care from specialist diabetes healthcare professionals, regardless of whether you have been admitted due to your diabetes or not.

    13 Get information and specialist care if you are planning to have a baby as your diabetes control has to be a lot tighter and monitored very closely. You should expect care and support from specialist healthcare professionals at every stage from preconception to post-natal care.

    14 See specialist diabetes healthcare professionals to help you manage your diabetes. Diabetes affects different parts of the body and you should have the opportunity to see specialist professionals such as an ophthalmologist, podiatrist or dietitian.

    15 Get emotional and psychological support. Being diagnosed with diabetes and living with a long term condition can be difficult. You should be able to talk about your issues and concerns with specialist healthcare professionals.



Edited to add source.
http://www.diabetes.org.uk/Guide-to-diabetes/Monitoring/15-healthcare-essentials/
 
Welcome :) I've been T2 for 3 1/2 years and have never been invited to an awareness program at all. I have learnt all I need to control my blood sugar from this forum.

Just ask lots of questions here and we will do our best to answer them.
 
Hi @JAY1JAY1 welcome :)

Most T2's experience on here of NHS guidance is poor because of the flawed NICE guidelines to eat carbs.

Have a read of the items in my sig below and ask any questions.
 
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