Who takes the most insulin

zip929

Member
Messages
8
5 ft 9inches and 102 kg
50 units Lantus
3 * 30 units NovoRapid

From diagnosis 2 months ago, now have BS down to 7 - 11 most days.
Originally BS was 25 +. Ketones as well, which have now well gone.

:D
 

ruthie35

Member
Messages
5
Hi

I take a split dose of Levemir: 30 at night & 27 in morning
Novorapid when I eat, the amount depending on what carbs I eat. Also different ratio's for mealtimes which can change through the weeks. I completed the DAFNE course in June 07, my HBA1C was 12.9%, it is now 6.4%, it changed my life for the better and lets me control my diabetes, not the diabetes controlling me.
 

Fugs

Well-Known Member
Messages
72
Hi, I think I can beat most of you.
I take 100 units of Actrapid three times a day and 100 units of Glargine at night.
I'm so insulin resistant that the only time I've managed to get my bm below 35 in 16 months was after I'd been attached to a sliding scale for 19 days.
My Hba1c is currently over 14 and my hospital have nearly run out of ideas as to how they can reduce my sugars.

>^..^<
 

Pattidevans

Well-Known Member
Messages
128
Frankly I am gobsmacked at these posts. First of all, it isn't a competition about who takes most insulin.

Secondly, although someone thought to say that a relationship between weight and insulin should be considered. Aparently no one at all thought about posting whether they were T1 with no insulin production or T2 with insulin resistance. You simply can't compare the two.

It strikes me also, that some of you have no idea which you are, no idea what you or anyone else's regime is. How on earth can you compare a T1 on 2 mixed insulin injections a day with a T1 on 5 injections a day, not to mention a T2 with insulin resistance on either 2 or 5 injections a day. For heaven's sake, you are simply confusing each other unless you clarify things far more than this thread does.

Patti
On Levemir/Novorapid. Last hba1c 5.3
 

zip929

Member
Messages
8
Hi Patti.:)

I do not know whether I am Type1 or Type2 yet. It is too early to positively say which type I am. They (the clinic) are very suspicious that I am Type1.
I went to the clinic yesterday and I requested that I be given a chance to come off the insulin.

I have now been put on Pioglitazone 15mg 1 a day and Gliclazide 2 x 80 mg tablets twice a day. This is also combined with 2 x 500mg Metformin twice a day.

The consultant said that it will be apparent quite quickly if I need to go back on insulin (my BS will rise quite quickly if I am not producing Insulin). My BS have been very good the last few weeks since the use of insulin. I was only diagnosd early November so this is very early days for me. A big learning curve and a change of lifestyle.[:0]

I will give an update here in a few days with details of my progress be it good or bad.

Dave
:)
 

martinbuchan

Well-Known Member
Messages
354
Patti- lighten up a wee bit. It was good to see the range of doses people have to use. I have had to double my dosing recently due to my foot infection (osteomyelitis). I have been givin general advice about dosing and how to increase/decrease appropriately. There are no prizes for having to use a lot of insulin.


Marty B
 

zip929

Member
Messages
8
<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote"><i>Originally posted by SarahQ</i>

<hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

A couple of simple blood tests would soon tell you if you are type 1 or 2. What is your consultant playing at?
[/quote]

Originally i was diagnosed as Type2 by my doctor after having the usual blood tests at the hospital.
then I went to see another consultant in london because of high Ketones and BS and he said that I was likely to be Type1.
He put me on insulin.
The consultant yesterday (where i live, not in London) said that he would like another blood test inb a couple of months to further the diagnosis.

:)
 

Claire

Well-Known Member
Messages
110
I agree it was just really interesting to see what kind of doses other people are on - certainly I didn't see this as a "serious" thread.

I love reading this forum, but I have to say I'm finding it a bit "*****y" at the moment...there seems to be a bit of bad feeling on some of the threads. It didn't used to be like that - just people genuinely trying to help each other.

Anyone else feel like this?

Claire
 

zip929

Member
Messages
8
<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote"><i>Originally posted by Claire</i>
<br />I agree it was just really interesting to see what kind of doses other people are on - certainly I didn't see this as a "serious" thread.

I love reading this forum, but I have to say I'm finding it a bit "*****y" at the moment...there seems to be a bit of bad feeling on some of the threads. It didn't used to be like that - just people genuinely trying to help each other.

Anyone else feel like this?

Claire
<hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

I have only recently joined and it feels like there are a lot of very angry individuals here.[:0]

We are all in the same boat as they say so I am not sure why there is so much animosity towards each other.
We are all entitled to our opinion, even if it differs from the opinion of someone else.

Let's live and let live.:D
 

Dennis

Well-Known Member
Messages
2,506
Type of diabetes
Treatment type
Non-insulin injectable medication (incretin mimetics)
Dislikes
People who join web forums to be agressive and cause trouble
Claire,

I couldn't agree more. When I posted a simple request that maybe more of us should consider Diabetes UK membership to support their efforts in the research field (even if many of us don't agree with some of what they say), some of the responses were bordering on hostile. At least they certainly made me feel uncomfortable.

Yes, we are all entitled to our own opinion, and when any of us answers a question raised by a new member, our opinion is all we can express as very few of us have any medical qualification in the field of endocrinology. But I will certainly think twice in future about answering someone's plea when all you get is hostility.
 

Claire

Well-Known Member
Messages
110
So it's not just me then...

Dennis, I felt for you when I read the responses to your thread - you were just genuinely trying to direct people to a source of help and advice and yes, some responses were extremely aggressive.

As I said previously, this forum never used to be hostile. I hope that people don't get put off asking for help or posting topics which could help others. That would be a shame :D
 

Fugs

Well-Known Member
Messages
72
I've just been told today over the phone to increase my insulin by 200 units a day so that I take 150 units of actrapid 3 times a day and 150 of lantus at night.
Is it normal to be told to change insulin amounts on the phone?

>^..^<
 

DiaBen_ic

Newbie
Messages
4
Type of diabetes
Type 1
Im new to this basal/Bolus treatment, i was diagnosed type 1 at 11 years old and put on mixtard 30, in which i had a fixed regime of two doses a day. I am now 24 and around 4 months ago i to felt terrible on a day to day basis, i wasn't doing bm i was trying to guess it (bad idea) Ive changed my insulin to Lantus (glargine) which I'm injecting 18u and novorapid injecting around 26u a day my height5.7 and weight 12 stone. And since my sugars have been up and down but i feel so much better, like today for example i went out for the afternoon did my doses as you do and i thought id do a blood test, would you believe it my bs read 1.5 huh but i was fully capable of moving and i wasn't shaky, so i had a bottle of Coca Cola and a packet of crisps, my bs was 7.8 10 minutes later. I get moody too when my blood sugars are on the high side but as (they) say "you are what you eat". I can see that a lot of people on this forum have a lot to learn, Ive learned a lot about my diabetes in the last 4 months. My Blood sugars are still up and down but my health is much better, heres a tip, find a good diabetic clinic and seek help i did
 

Pattidevans

Well-Known Member
Messages
128
<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote"><i>Originally posted by martinbuchan</i>
<br />Patti- lighten up a wee bit. It was good to see the range of doses people have to use. I have had to double my dosing recently due to my foot infection (osteomyelitis). I have been givin general advice about dosing and how to increase/decrease appropriately. There are no prizes for having to use a lot of insulin.


Marty B

<hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">
ok pAX I was irritated last night for a number of reasons.
and I am sorry... but perhaps I am better advising elsewhere. I'm horrified at the lack of education in the Uk regarding diabetes and I would have thought that you, Martin, would have been in the forefront of advocating some better education in the light of your profession

I try to keep up with any new papers on the condition, any new studies etc it really isn't hard if you have access to the net to work out what is good and what isn't. I'm used to sharing this stuff with like minded people (and the reverse - they point me at stuff).

So, as I said, this is probably the wrong environment for me and I do hope you all will thrive and enjoy life I really really do.

I wish you all well and excellent control!

Patti
On Levemir/Novorapid. Last hba1c 5.3
 

Pattidevans

Well-Known Member
Messages
128
<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote">I can see that a lot of people on this forum have a lot to learn, Ive learned a lot about my diabetes in the last 4 months. My Blood sugars are still up and down but my health is much better, heres a tip, find a good diabetic clinic and seek help i did


<hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

Well, for what it's worth and I do hope it helps some people in this forum go and do the carb counting online course at http://www.bdec-e-learning.com/

But goodbye because it seems my type of advice isn't welcome





Patti
On Levemir/Novorapid. Last hba1c 5.3
 

DiaBen_ic

Newbie
Messages
4
Type of diabetes
Type 1
i think this forum should lighten up if you are having trouble monitoring your health go to your local hospital and ask them for advice !! if you have type 1 stick to basal and bolus ;)
 

martinbuchan

Well-Known Member
Messages
354
Patti- I am a simple orthopaedic surgeon so I knew naf all about the real day to day management of diabetes. If I had a patient in DKA or severe hypo- then I would have sorted it out properly.

At the moment I have an osteomyelitic bone infection in my foot- I have to push the system to get what I need (about to start hyperbaric oxygen therapy at my local NHS supported decompression diving chamber). Luckily I can give myself my own intravenous antibiotics at home.

It is well accepted that patients only recall about one third of a consultation. The new members here have a hell of a job getting to grips with it. I am not a good example as it is a lot easier for me to absorb all the new skills. I can't carb count as my glucose profile has not been static since diagosis one year ago. I usually dose adjust appropriately- mind you I have had mild hypos over the last three evenings. My last HBA1C was 6.5% (I don't know what this weeks one was yet). You have a fab HBA1C- you sound like my paediatrician neighbour who ranges 4.9%-5.6%. You have a lot to teach insulin users.

We all have differnet profiles. I have to keep my HBA1C low as I have neuropathy. I also need to closely monitor my post prandial BG which is a different ball game in type 2 compared to type 1. In type 2, the liver produces 3 times more glucose (gluconeogenesis) than normal subjects. It is not just an insulin resistance/underproduction issue. I use my basal/bolus regime in a differnt way to my type 1 neighbour although we both use a n a loque insulins.

Most diabetics are type 2 and most of them are not young. I suppose this forum will be biased towards type 2 users. Also, most type 2s are not unwell at diagnosis or in childhood. So a lot of new forum users will be diagnosed by GPs and treated in surgeries rather than in hospital specialised clinics.

This is the new labour NHS ethos. Patients defining their treatment and care. Scary as we already advise doctors not to treat themselves. How the hell are normal punters supposed to do it without a medical degree and years of experience of medicine behind them?


I hope you continue to contribute as you have a lot of experience and success. Your advice will not be relevent to everybody but that is just fine.


Marty B
 

Pattidevans

Well-Known Member
Messages
128
<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote"><i>Originally posted by martinbuchan</i>
<br />Patti- I am a simple orthopaedic surgeon so I knew naf all about the real day to day management of diabetes. If I had a patient in DKA or severe hypo- then I would have sorted it out properly.

At the moment I have an osteomyelitic bone infection in my foot- I have to push the system to get what I need (about to start hyperbaric oxygen therapy at my local NHS supported decompression diving chamber). Luckily I can give myself my own intravenous antibiotics at home. <hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

I am sorry to hear about your foot, it must be both extremely painful and very frightening too. I do hope the new therapy does the trick. Naturally you will need more insulin, since your body is under stress and producing cortisol which will push your BGs way up!

<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote">It is well accepted that patients only recall about one third of a consultation. The new members here have a hell of a job getting to grips with it. I am not a good example as it is a lot easier for me to absorb all the new skills. I can't carb count as my glucose profile has not been static since diagosis one year ago. I usually dose adjust appropriately- mind you I have had mild hypos over the last three evenings. My last HBA1C was 6.5% (I don't know what this weeks one was yet). You have a fab HBA1C- you sound like my paediatrician neighbour who ranges 4.9%-5.6%. You have a lot to teach insulin users. <hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

Not only do they have difficulties getting to grips with it, a lot of people rely on the medical profession to educate them how to manage it, and frankly from my own experience (and that of several diabetics I know in the real world, who just ignore their condition and rely on "the pills") I would say that is highly unlikely to happen. Since we need to be <b>at least</b> 60% of our own healthcare team I think people must be made to realise that if the NHS isn't going to educate them, they need to educate themselves.

<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote">We all have differnet profiles. I have to keep my HBA1C low as I have neuropathy. I also need to closely monitor my post prandial BG which is a different ball game in type 2 compared to type 1. In type 2, the liver produces 3 times more glucose (gluconeogenesis) than normal subjects. It is not just an insulin resistance/underproduction issue. I use my basal/bolus regime in a differnt way to my type 1 neighbour although we both use a n a loque insulins.<hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

Martin we <b>all</b> need to keep our Hba1c low in order to survive with as few complications as possible. I do know the differences in the types and how each is a different ball game. I must be the saddest person, since I spend ages reading NICE guidelines and getting into professional sites to read the latest papers I can find on anything to do with diabetes...but there you go, it is at least a fascinating hobby if nothing else!


<blockquote id="quote"><font size="1" face="Verdana, Arial, Helvetica" id="quote">quote:<hr height="1" noshade id="quote">Most diabetics are type 2 and most of them are not young. I suppose this forum will be biased towards type 2 users. Also, most type 2s are not unwell at diagnosis or in childhood. So a lot of new forum users will be diagnosed by GPs and treated in surgeries rather than in hospital specialised clinics. <hr height="1" noshade id="quote"></font id="quote"></blockquote id="quote">

For what it's worth, I am 61. I was diagnosed diabetic at age 57. My BG was 35 (in other words off the normal meter scale). I had rapidly lost weight and looked like something from another planet. I was immediately labelled T2 and put on Gliclazide and subsequently Metformin, which didn't do anything to lower my levels. I felt so ill I begged to be put on insulin a month later. I was put on Novomix 30 (dreadful stuff) and told to eat lots of starchy carbs by the dietitian I saw. The metformin and gliclazide were dropped. I had an Hba1c of 7.8 and a ticking off from the practice nurse who is the ONLY medical professional I have ever seen regarding diabetes. She was convinced I was stuffing sweets, whereas I was following the dietitians advice to the letter.

After a particularly nasty hypo in a department store where the assistants sneered at me and sniggered about "the drunk"... I decided that I needed an education and where better to get one than somewhere I'd been at home in since the very early 90s - in other words the internet. I found a newsgroup with a bunch of deadly serious folks (deadly serious about control that is) no huggy stuff and no feeling sorry for themselves. I learnt tons very quickly.

I kicked up a fuss until I got put on Lantus and Novo (subsequently changed to Levemir). I went my own dietary way... next Hba1c was 5.4 - once again I got ticked off by the nurse. She's given up now I think.

However, I am still labelled T2 because of my age when diagnosed and only minor ketones (but hey, LADA don't produce ketones to start with) I have asked for and been refused tests. I doubt I am T2, I am probably LADA and so yes, I've been through the honeymoon period where I never knew how much insulin I was producing and every day was a different juggling act, I still managed Hba1cs under 5.7. It all seems to have settled over the last 2 years and I have consistently been on the same dose of basal insulin (more or less, up a unit when sick, down a couple of units when it's hot). The bolus I adjust according to what I eat and the time of day.... I'm not on the sort of doses T2s typically use... go figure...

I was denied a DAFNE course "because you are T2". "Oh really, who says I am?" The very practice nurse I was talking to, at least she had the grace to blush and say "well maybe T1.5" I have never seen a diabetic Specialist and never will "because I am labelled T2" and only once seen a proper DSN (when I changed to MDI) and then only for 15 minutes. I will never be able to get a pump, or any education that I don't get for myself.

Cynical... you bet! But, I have never let diabetes get me down. It doesn't stop me doing anything. I will do all I can to help those who want to help themselves, and have even campaigned very hard (including a petition to No.10) to try to ensure that T2s not on insulin don't get denied test strips. On the same subject the BMJ printed my letter.... in response to that idiot who conducted a completely flawed "study" and concluded that allowing T2s to SMBG did not improve their Hba1cs. OF COURSE it didn't, they weren't educated in what to do with the results of the testing, and they were encouraged to "maintain the same regime".... yes????? Oh how very odd that their Hba1c's didn't improve.



Patti
On Levemir/Novorapid. Last hba1c 5.3
 

DiaBen_ic

Newbie
Messages
4
Type of diabetes
Type 1
i am gob smacked at some of these Blood sugar readings, i didnt realize that they can go so high !! My bs have read mad levels too once 28 (thats high for me!) and the other day they were 1.4