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Why So Few?

SueJB said:
@Scott-C I just think it'd be good and reassuring for newish T1s like me to hear a bigger voice from those who have done the biz for far longer. I'm not saying that friendly advice isn't given, it's just seems like we're hiding.
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I don't think we're hiding. It's more that we've got day jobs and just pitch in every now and then we're free at weekends.

I've done the biz for a long time, 3 decades. I've managed it ok without going to extremes. I can see a place for keto, lchf, for T2s and sometimes T1s.

But they can easily become extreme, and drive newly dx'd into eating disorders.

There's been some sickening posts from T2s earnestly advising some newly dx'd T1 that they should never ever have some fish and chips, and the same posters are posting elsewhere that they'll have a cheeky wee fish and chips every now and then.

T1 and T2 are different conditions. I accept that moderating carb intake is a good thing for T1s, but input from T2s will take you in to a very limited diet, needlessly so.

But what do I know? I've been T1 for 30 yrs. A lot of the T2 Bernstein enthusiasts on here have been T2 for, hmm, a year or two.
 
I’m here a fair bit because I’m self employed and things are depressingly quiet for me just now. If I’m typing I’m not eating . Being an all or nothing kind of chick, for whom moderation is a skill I just don’t have, keto works a dream for me - I’m a real binger. So at least if I binge on cheese, I may end up with an ar5e the size of Belgium, but my sugars will stay relatively steady. But it’s not like it’s going to put T1s into remission, is it?

I nicked a chip yesterday. Tasted like sugar and I had to spit it out. Am I cured?
 
Scott-C said:
I'm sometimes tempted to napalm T2s who ask why was their bg 5.5 and then it was 5.7.
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Maybe as T2s we're more prone to OCD?? Personally I'd be frantically asking if my meter needed replacing instead of rejoicing that my levels were hopefully being nice and stable for a change....

But my biggest puzzle is why do they make scales that only show one weight - I've always weighed the same for the last four years - perhaps they need replacing too?


@Mel dCP - Bouncy Bouncy!
But I can't make the curly brackets big enough for a proper cyber hug...

{ }
​
Robbity
(who's relieved she can still actually make fun of her T2 self)​
 
Couldn't agree more, guys. T1 and T2 are totally different disorders with very different needs. Some forget that or just never understand it. And then there are the many minority groups like T3, LADA, MODY, 1.5, RH, T2s on insulin, unknown type, and other groups... IMHO there needs to be a bit less evangelical zeal from some quarters and a lot less judgment of others. But who am I kidding, it's the internet, lol.
 
To be honest I have given up on the idea of cure reversal or even some sort of permanent remission for me they are an illusion and unattainable the past two years of austerity and striving for lower and lower BG thinking I had gained control now to find that simply altering my dosage of prednisolone has thrown all that out the window. I have decided to be a bit less obsessed with carbs and BG and be a little more relaxed about it and have a bit of fun for a change.
 
Type 1 diabetics are fewer and advice on this forum are honest experience as I assume.

You don't advice on what you don't know the management unless you are a healthcare professional involved in care of T1D.

Sent from my STH100-2 using Diabetes Forum mobile app
 
I'm one of the even fewer - Type 3c - so I know what you mean about there being less of us!
 
 
Perhaps more T1s would join in if there was a fasting BG thread for T1's (with a title specifying T1)? It might help newbie T1s?
 
It’s cheaper if you don’t test too often and, as my hba1c has been in the 30s for the last 4 years, I feel that I am well controlled so don’t necessarily need to. I even had a slice of Tiger Bread the other day and didn’t test afterwards so may have to repeat the experiment to see what effect it did have on my BS! However I think that it is useful for new Diabetics to learn that good BS control can be achieved through diet (not ness very low carb) and meds for T2s and, apologies if I’m off piste here, meds and carb counting for T1s. I am not sure about any other types so will not comment!!
 
As a type 2 on insulin with a few other disorders that cause my blood sugars to be a trifle erratic I would love you guys to post your fasting readings on the relevant sites, I am positive it will introduce a necessary dose of realism to some of the regular posters that could be obcessed with low card and low blood sugars.

I have also restarted the " what are you doing now and humourus banter " thread in the general chatter section as I felt the site need something of that nature.

Alf now orf for a morening koffy.
 
@SueJB , here's a quote from an endo which, I feel, puts things into perspective:

https://diatribe.org/issues/58/quotable-quotes

"In all the work with diabetes technology I’ve done, I’ve worn CGM for long periods of time. I don’t have diabetes, but I’ll eat a dessert and go up to 200 mg/dl. I’ll also drop down to 50 or 60 mg/dl. People with diabetes are comparing themselves to a false standard. The pancreas, for all of the advantages it has, still allows big excursions. It’s crazy to think it’s ideal.”

-Dr. Steven Russell (Massachusetts General Hospital, Boston, MA) urging people with diabetes not to be too hard on themselves.

Athough the novelty of cgm lets me play around with insulin and see more of what's happening, I managed ok for 28 years without it. Sometimes I actually get fed up with the information overload and wonder whether I'm paying too much attention to it.

Although it's nice to get a few 100% in range days, I've become much more relaxed about it going up to 9 or 10 for a few hours, because, as the doc quoted above says, that happens in non-T1s too. And why wouldn't it? That's what the bloodstream is there for, to distribute glucose around the body, so after a meal, one would expect it to be higher.

I'm ok with short periods of 9s and 10s every now and then. The thing to watch out for is regular extended 10s to 15s. That's dangerous ground.
 
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