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Wondering how many have undiagnosed RH?

Discussion in 'Reactive Hypoglycemia' started by Kaz261, Feb 23, 2016.

  1. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    I dont have Big hypos. They Want to redo MRI and a bunch of ôter tests. They Want to make sure i dont have p cancer. They are Saying the symptoms dont match my results. I know there are good, Im just scared
     
    • Hug Hug x 1
  2. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Really scared. Tests in 9 days, how do i get by Day after Day?
     
  3. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Im in very good care
     
  4. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    I havé to see endocrinologist, gastrologist and pancréas specialist. At least the y are doing everything they need to. But scared.....!
     
  5. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Ok, the only way to make sure of diagnosis is to eliminate all the other possibilities.
    So you have to do the tests.
    It won't matter which one it is, there is always something to make your life better than its been for a while now. Knowing is good, ignorance is not bliss.
    It's always better to know that not.
    As you say you are in good hands and no matter what, we will try and help you.
     
  6. Brunneria

    Brunneria Other · Guru
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    I agree with @nosher8355

    Knowledge is power. And for me, there is nothing worse than not knowing.

    Really hope you get some answers and they enable you to get a handle on this!
     
    • Agree Agree x 2
  7. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Thanks a million. Your support means a lot to me
     
  8. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    How do. You two deal with upcoming tests!?
     
  9. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    They should be able to tell me quite a bit and the y are not leaving any stones unturned. At least i dont feel like Im running after doctors, the y are coordinating my care.
     
  10. Brunneria

    Brunneria Other · Guru
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    Well, way back when I had an MRI I wasn't worried. It was about 20 odd years ago, for something else (Prolactinoma) and it had taken them 18 months to go through several other 'elimination tests' to reach that point. Of course, I had spent about 2 hrs on Google (the afternoon of my first appt, lol) and I had already worked out that yes, I had all the symptoms of Prolactinoma. That I had had these symptoms 20+ years. And yes, I was still alive. So it wasn't terminal!

    For me, the final test/diagnosis meant nothing more than an irritating 160 mile round trip, a day off work, and FINALLY getting treatment.

    No one has ever run any tests for me for RH, because no doc ever believed the symptoms were real, so I learned (taught myself) to control it by food. :)
     
  11. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    I had a long battle with getting my diagnosis.
    I just knew that there was something weird going on and my GPs couldn't explain it and only after having a hypo in the doctors office, I got an appointment with my endocrinologist.
    Once I started doing the tests, which I was quite comfortable with because at last someone was looking at what my body was doing.
    The knowledge that I gained from those tests and how I felt after was well worth it.

    The biggest and really eye opening experience for me was how I felt during and after my prolonged fasting test. That was because at last after so many years, I now felt normal! Having no carbs for days cleared my system of insulin and normalised my bloods, also the extra surge of energy I had been given because I wasn't relying on food for my energy. I had gone into ketosis.

    Tests are a means of sifting through the evidence, to ascertain diagnosis.
    Knowing is far better than not. In my experience, knowing how to control this condition personally because most of the medical community wouldn't and couldn't have the knowledge or know how in how to deal with it.
    If you asked any endocrinologist, you would probably get the you must have carbs because of the brains needs, there is enough in vegetables, to do this, you don't need the carbs that spike and create insulin.
    It's logical!

    Don't worry too much about the tests, they will help you.
     
  12. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    That s fantastic advice which i Will keep in mind. Low carbs stops the nausea, that i know. I have started taking anti candidosa (?), prolactic stuff and I feel better but it's. Good to get things sorted and to have the ugly and bad checked out.
     
  13. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Incredible that no one ever ran tests for brun. I was so fed up of half answers that I asked the center qui coordinate all care and get to the bottom which they have accepted to do so
     
  14. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Help me solve a mystery, what happens to people who have hypos when they eat high carbs? Thx
     
  15. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Ah- they make insulin spike?
     
  16. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    They are now screening me for insolinomas due too high insulin levels
     
  17. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Even if I only have mild hypos (3.7)
     
  18. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    I would have hypos naturally if I have anything above a certain low amount of any carbs! I spike very quickly and eventually hypo. I produce too much insulin for the amount of glucose in my blood. I then keep producing insulin until I introduce more carbs which turn into more glucose, and the process repeats itself.
    Having too much insulin in your blood turns into visceral fat. Which causes high hba1c levels as the bodies insulin resistance grows.
    The answer is simple, don't eat the stuff that creates the excess insulin.
    Carbs!
     
  19. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    Why did they do the 72h fast on you? To exclude insulinomas?
     
  20. Alicki

    Alicki Reactive hypoglycemia · Well-Known Member

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    That makes sense. I need to monitor this better
     
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