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Worried about my diabetes

Flossie75_

Flossie75_

Member
Messages
11
Location
Aylesbury
Type of diabetes
Treatment type
Tablets (oral)
I've been type 2 diagnosed for 3 yrs now, 3 months ago I was taken off of metformin as it didn't agree with me, I was then put on sitagliptin and also atorvastatin, I had to stop taking the sitagliptin as it was causing painful blisters on my face, neck, chest and shoulders. It's been 2 weeks since not taking any meds, my Dr is checking with consultants at the hospital what meds to put me on as I had a fasting HBA1C test 2 days after stopping sitagliptin and it jumped from 55 (previous non fasting test) to 93. I have been self testing before each meal that are ranging from 11.2mmol/L lowest to 28.3mmol/L highest, should I be worried?
 
Hi

You certainly need to get your bloods under control. What was the problem with Metformin?
 
Flossie75_ said:
I've been type 2 diagnosed for 3 yrs now, 3 months ago I was taken off of metformin as it didn't agree with me, I was then put on sitagliptin and also atorvastatin, I had to stop taking the sitagliptin as it was causing painful blisters on my face, neck, chest and shoulders. It's been 2 weeks since not taking any meds, my Dr is checking with consultants at the hospital what meds to put me on as I had a fasting HBA1C test 2 days after stopping sitagliptin and it jumped from 55 (previous non fasting test) to 93. I have been self testing before each meal that are ranging from 11.2mmol/L lowest to 28.3mmol/L highest, should I be worried?
Click to expand...

Firstly, i am confused, your status declares you as LADA, but your post says T2D, I am going to assume LADA in my response since this is possibly more harmful.

So it looks to me like you are not on any diabetic medication at the moment. The statin does not count except that it may be raising your bgl slightly in the absence of glucose lowering meds.

While this lack of meds is something you need to discuss with your doctor as a matter of some importance, there is something you can do immediately to try to reduce those bgl levels. Yes they are high, and you do not want to stay there for any length of time. But they are similar to where I was this time last year.

I am T2D, so the following worked for me, but may not work for LADA. Look at the Low Carb diet thread. Reducing carbs has an immediate and direct effect on blood glucose, so reducing carb intake today may help. I now use LC diet to control my own levels, but (a) I am on bgl lowering meds, and (b0 my body is still producing insulin, But really you do need to see doctor very soon, since if you are LADA you may not be producing enough insulin of your own.

I would suggest looking up the symptoms of DKA since this is a dangerous condition that can be caused by high bgl levels.
 
Osidge said:
Hi

You certainly need to get your bloods under control. What was the problem with Metformin?
Click to expand...
I was permanently on the toilet with diarrhea, my Dr is thinking that I might be between type 1 and type 2 that's why she is consulting with hospital, hopefully they will decide what to do and let me know monday

Sent from my SM-T230 using Diabetes.co.uk Forum mobile app
 
Flossie75_ said:
I was permanently on the toilet with diarrhea, my Dr is thinking that I might be between type 1 and type 2 that's why she is consulting with hospital, hopefully they will decide what to do and let me know monday

Sent from my SM-T230 using Diabetes.co.uk Forum mobile app
Click to expand...

On what basis are they querying LADA? Is it simply the high blood sugars? Have you had a cpeptide &/or GAD test? Have you had a lot of untried for weight loss along with your high blood sugar?

Hope you get some solid support from the doctors on Monday.
 
Your Doctor might want to consider the SR version of Metformin. Many who cannot tolerate the ordinary formulation are able to take the sustained release version.

I do hope that your Doctor gets your treatment regime established soon. A referral to a consultant diebetologist/endocrinologist might make sense.

Regards

Doug
 
catapillar said:
On what basis are they querying LADA? Is it simply the high blood sugars? Have you had a cpeptide &/or GAD test? Have you had a lot of untried for weight loss along with your high blood sugar?

Hope you get some solid support from the doctors on Monday.
Click to expand...
Yes my Dr is thinking I'm lada now just wants confirmation from hospital first, I have lost weight since last year but not a huge amount but at lease it is a loss not a gain, but after being put on the sitagliptin back in March when my HBA1C was 55, I was told to stop taking it 2 days before my fasting blood test to check everything was ok it had jumped to 93 but Dr thinks there wouldn't have been such a high jump in 2 days unless the sitagliptin wasn't working in the first place, this was all decided late Friday 27th May and I was going on holiday 4 am the next day for a week so I just kept testing before meals while I was away. Came back 4th June and saw my Dr on 8th where I found out my lipids were really high so drs at the hospital were concerned so i explained that originally i thought it was the atorvastatin that i was having an ilergic reaction to so it was changed to simvastatin but i was still having an ilergic reaction so i stopped taking that, but while i was on holiday i started taking the simvastatin again but it was giving me horendous cramps in both legs so stopped taking it again, I have now been put back on atorvastatin but got to wait till Monday when my Dr said she would ring me to let me know what the next course of action is. I feel fine in myself but my mum is stressing me out and scaring me that if my blood sugars go to 29+ then I could end up in a coma or worse and I know stress doesn't help with readings

Sent from my SM-T230 using Diabetes.co.uk Forum mobile app
 
Osidge said:
Your Doctor might want to consider the SR version of Metformin. Many who cannot tolerate the ordinary formulation are able to take the sustained release version.

I do hope that your Doctor gets your treatment regime established soon. A referral to a consultant diebetologist/endocrinologist might make sense.

Regards

Doug
Click to expand...
I was on the Sr metformin but still couldn't tolerate it

Sent from my SM-T230 using Diabetes.co.uk Forum mobile app
 
It sounds like the oral meds aren't working for you - I don't have any experience of the oral meds so I can't provide any real guesses as to why.

One reason oral meds might not do much to control your blood sugar is if you have been misdiagnosed as type 2 when you are type 1/1.5. Usually, a big clue that you might have been diagnosed type 2 is that you have dramatic weight loss, without any effort along with blood sugars that can't be controlled with oral meds and diet. Is that something you have experienced? What is your BMI?

Have your doctors done a GAD test or cpeptide test? A GAD test tells you if you have the antibodies associated with type 1. A cpeptide test tells you if you are makin any of your own insulin.

Do you have a means of testing for ketones at the moment?
 
catapillar said:
It sounds like the oral meds aren't working for you - I don't have any experience of the oral meds so I can't provide any real guesses as to why.

One reason oral meds might not do much to control your blood sugar is if you have been misdiagnosed as type 2 when you are type 1/1.5. Usually, a big clue that you might have been diagnosed type 2 is that you have dramatic weight loss, without any effort along with blood sugars that can't be controlled with oral meds and diet. Is that something you have experienced? What is your BMI?

Have your doctors done a GAD test or cpeptide test? A GAD test tells you if you have the antibodies associated with type 1. A cpeptide test tells you if you are makin any of your own insulin.

Do you have a means of testing for ketones at the moment?
Click to expand...
My Dr is thinking I'm possibly 1.5 but I haven't had any tests as yet they might decide to do them after my Dr rings me monday, I test my bloods before each meal at the moment which range from lowest 11.2 and highest 28.3

Sent from my SM-T230 using Diabetes.co.uk Forum mobile app
 
catapillar said:
It sounds like the oral meds aren't working for you - I don't have any experience of the oral meds so I can't provide any real guesses as to why.

One reason oral meds might not do much to control your blood sugar is if you have been misdiagnosed as type 2 when you are type 1/1.5. Usually, a big clue that you might have been diagnosed type 2 is that you have dramatic weight loss, without any effort along with blood sugars that can't be controlled with oral meds and diet. Is that something you have experienced? What is your BMI?

Have your doctors done a GAD test or cpeptide test? A GAD test tells you if you have the antibodies associated with type 1. A cpeptide test tells you if you are makin any of your own insulin.

Do you have a means of testing for ketones at the moment?
Click to expand...

I haven't any huge weight loss just a little, but my HBA1C has continued to rise each time it is done when I was first diagnosed it was 51

Sent from my SM-T230 using Diabetes.co.uk Forum mobile app
 
Well try to drink plenty of water, avoid carbs and test for ketones if you have any ketone test strips. Try to stay in close touch with your doctor so they can advise you on how to get a handle on your blood sugar going forward.
 
Hi. As others have said at this time the low-carb diet will be essential and worth continuing after any diagnosis. Can you give us some idea of your typical meal plans? Shame the Met SR didn't work but some people can't tolerate either type. A Sitagliptin reaction is also unusual but can happen.
 
Daibell said:
Hi. As others have said at this time the low-carb diet will be essential and worth continuing after any diagnosis. Can you give us some idea of your typical meal plans? Shame the Met SR didn't work but some people can't tolerate either type. A Sitagliptin reaction is also unusual but can happen.
Click to expand...
My mum was the same with the metformin SR but when she was hospitalised for something unrelated to her diabetes she was put on insulin which she is managing much better with. The Dr decided the sitagliptin couldn't have been working at all as well as covering me with painful blisters all along my jaw line, neck, shoulders and chest, which have now gone thank god. I eat alot of salad but do have some carbs, but what doesn't make sense it that I when I have eaten the same carbs on different days I get different readings, as in I have deliberately eaten the same things all day on both days but one I have lower readings and the other day high readings, so it makes it difficult to know what to eat

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