- Messages
- 21
- Type of diabetes
- Other
- Treatment type
- Diet only
I am posting here and will put all the information I have, please forgive me for a first long-wall-of-text, it will be formatted nicely ...
In 2015 April, I was put on antibiotics course to eradicate some kind of bacteria. I had side effects and one of them was sweet taste in my mouth. I made a mistake of "Googling" and found diabetes. Went to my GP, who did the tests, where my HBA1c was 4.4, fasting was 4.7 but due to fears of it, I restricted carbs and had 3-4+ ketones in my urine. I was told it is not diabetes, to finish the course, that it is side effects and to eat the carbs. I did this and seem to have gradually gotten better with disappearing taste and good feeling after eating.
In 2017, November I was at my job, and my wisdom teeth started to bother me. I felt unwell and had not much appetite which resulted in me not eating much, apart from some nuts for 2-3 days. I was understandably undernourished. On Saturday, I felt hunger again and went on to consume really sweet cake, which launched my symptoms from 2015 again: sweet taste in my mouth, unwell, stomach pain and nausea. I went to the hospital this time, told them to measure my BG which was 6.7 and told them about my situation in 2015. The staff sent me to my GP, who have done the following tests:
* HBA1c: 4.7
* Fasting: 3.9
However, I have "failed" his GTT, since after two hours my BG went to 10.2. This concerned him, and I was sent to endocrinologist. That guy was quite thorough: he told me it is good I am on low-carb diet until we find out what it is. Did the tests such as c-peptide, antibodies for type 1 diabetes (GAD, IA-2, ICA, ZnT8) and tests like fructosamine. He also tested me on the spot for some kind of "gas" in my blood, probably fearing of ketoacidosis because of 3-4+ ketones in urine. My c-peptide was slightly below normal range, with all antibodies negative, i.e. they did not even detect them. HBA1c and fructosamine was "normal". He said it is unlikely to be type 1 diabetes and that I could have failed glucose tolerance test because of low-carb diet, calling it "glucose sparing" state. When questioned about low c-peptide, he said since you are on low-carb diet and with normal fasting glucose, low c-peptide does not tell anything.
I have read about physiological insulin resistance but let me update on my situation. I do not think that this state can explain what is happening for me anymore. In December, I was eating healthy low-carb meals such as meats and vegetables, fats such as nuts, oils, coconuts and avocadoes. I enjoy this type of eating, it is filling and satisfying. I also monitored my BG and have never seen it go above 6.0 with such menu. However, now it is different. Example meals such as chicken with sauerkraut, leafy veggies and smoked pork lard, would send me above 6.0. I would stay there longer as well. I can also tell without blood glucose meter when I am at certain level now. When I am below 5.5, all is good. When I am above it, I get a slight headache. When I am above 6.0, I get pressure in my eyes and some dizziness. Also, I became very carb intolerant. Having eaten some yoghurt, sent me to 7.6. Banana has shown 8.0. Small piece of bread above 7. I already wrote to my endo who is on holiday about this situation, since he told me to see what happens if I add carbs. It seemed like he has never seen a case like me, who is carb intolerant with no autoimmunity markers and simply seem to not produce enough insulin (why else would I not digest a banana without spiking so much ...)
I have browsed some of the archives on this forum and googled some reddit posts on keto adaptation, but I have never seen people spiking to above 6 even with almost zero carb meals such as bacon and eggs. My family doctor told me that some people have strong pancreas, others can tolerate less carbs because their pancreas is just "weaker" so they have to adjust their diet accordingly. To me, it still sounds like diabetes.
Can someone enlighten me on the steps to take? I am inclined to visit some other endocrinologist but not sure if I could find one better qualified than the first: he is PhD in nutrition and fasting and type 1 diabetes specialist...
In 2015 April, I was put on antibiotics course to eradicate some kind of bacteria. I had side effects and one of them was sweet taste in my mouth. I made a mistake of "Googling" and found diabetes. Went to my GP, who did the tests, where my HBA1c was 4.4, fasting was 4.7 but due to fears of it, I restricted carbs and had 3-4+ ketones in my urine. I was told it is not diabetes, to finish the course, that it is side effects and to eat the carbs. I did this and seem to have gradually gotten better with disappearing taste and good feeling after eating.
In 2017, November I was at my job, and my wisdom teeth started to bother me. I felt unwell and had not much appetite which resulted in me not eating much, apart from some nuts for 2-3 days. I was understandably undernourished. On Saturday, I felt hunger again and went on to consume really sweet cake, which launched my symptoms from 2015 again: sweet taste in my mouth, unwell, stomach pain and nausea. I went to the hospital this time, told them to measure my BG which was 6.7 and told them about my situation in 2015. The staff sent me to my GP, who have done the following tests:
* HBA1c: 4.7
* Fasting: 3.9
However, I have "failed" his GTT, since after two hours my BG went to 10.2. This concerned him, and I was sent to endocrinologist. That guy was quite thorough: he told me it is good I am on low-carb diet until we find out what it is. Did the tests such as c-peptide, antibodies for type 1 diabetes (GAD, IA-2, ICA, ZnT8) and tests like fructosamine. He also tested me on the spot for some kind of "gas" in my blood, probably fearing of ketoacidosis because of 3-4+ ketones in urine. My c-peptide was slightly below normal range, with all antibodies negative, i.e. they did not even detect them. HBA1c and fructosamine was "normal". He said it is unlikely to be type 1 diabetes and that I could have failed glucose tolerance test because of low-carb diet, calling it "glucose sparing" state. When questioned about low c-peptide, he said since you are on low-carb diet and with normal fasting glucose, low c-peptide does not tell anything.
I have read about physiological insulin resistance but let me update on my situation. I do not think that this state can explain what is happening for me anymore. In December, I was eating healthy low-carb meals such as meats and vegetables, fats such as nuts, oils, coconuts and avocadoes. I enjoy this type of eating, it is filling and satisfying. I also monitored my BG and have never seen it go above 6.0 with such menu. However, now it is different. Example meals such as chicken with sauerkraut, leafy veggies and smoked pork lard, would send me above 6.0. I would stay there longer as well. I can also tell without blood glucose meter when I am at certain level now. When I am below 5.5, all is good. When I am above it, I get a slight headache. When I am above 6.0, I get pressure in my eyes and some dizziness. Also, I became very carb intolerant. Having eaten some yoghurt, sent me to 7.6. Banana has shown 8.0. Small piece of bread above 7. I already wrote to my endo who is on holiday about this situation, since he told me to see what happens if I add carbs. It seemed like he has never seen a case like me, who is carb intolerant with no autoimmunity markers and simply seem to not produce enough insulin (why else would I not digest a banana without spiking so much ...)
I have browsed some of the archives on this forum and googled some reddit posts on keto adaptation, but I have never seen people spiking to above 6 even with almost zero carb meals such as bacon and eggs. My family doctor told me that some people have strong pancreas, others can tolerate less carbs because their pancreas is just "weaker" so they have to adjust their diet accordingly. To me, it still sounds like diabetes.
Can someone enlighten me on the steps to take? I am inclined to visit some other endocrinologist but not sure if I could find one better qualified than the first: he is PhD in nutrition and fasting and type 1 diabetes specialist...