update

[ally1]

Gosh Ally. That was a stroke of luck that's showing you benefits now.

Yes for once something went my way lol

 

[ally1]

Have been to see the physio. I was given a walking stick. She is unable to help but wants to see me again on 16th October to see if the walking stick is helping. She is going to refer me to a community physio, personally I can,t see that helping. She also said that seeing a specialist physio who deals with neuropathy with pain. Only thing is, the nearest one to me is at Chelmsford hospital which means 2 trains then having to get to the hospital. But before that, I will have to get funding.
Was also told to gp about pain killers for the neuropathy pain. Then if gp does give me some, then will have to go through how they will interact with my bipolar meds

 

[DCUKMod]

Have been to see the physio. I was given a walking stick. She is unable to help but wants to see me again on 16th October to see if the walking stick is helping. She is going to refer me to a community physio, personally I can,t see that helping. She also said that seeing a specialist physio who deals with neuropathy with pain. Only thing is, the nearest one to me is at Chelmsford hospital which means 2 trains then having to get to the hospital. But before that, I will have to get funding.
Was also told to gp about pain killers for the neuropathy pain. Then if gp does give me some, then will have to go through how they will interact with my bipolar meds

Gee whiz, Ally, it seems that for every step forward you make there's a barrier in front of you before you can consider making another step in the right direction.

I do hope that at least the stick will give you a t least a bit more confidence.

 

[ally1]

Gee whiz, Ally, it seems that for every step forward you make there's a barrier in front of you before you can consider making another step in the right direction.

I do hope that at least the stick will give you a t least a bit more confidence.

I just hope the stick does help me.
I see my gp on 6th October about painkillers for the nerve pain. He wasn,t keen to prescribe them before but I feel I now need something occasionally. Because of the other meds I am on, ie the bipolar meds, apparently they can react with the correct nerve pain painkillers so they will need tweaking. Can only happen to me. Good job I am relatively stable with my bipolar.

 

[ickihun]

Have been to see the physio. I was given a walking stick. She is unable to help but wants to see me again on 16th October to see if the walking stick is helping. She is going to refer me to a community physio, personally I can,t see that helping. She also said that seeing a specialist physio who deals with neuropathy with pain. Only thing is, the nearest one to me is at Chelmsford hospital which means 2 trains then having to get to the hospital. But before that, I will have to get funding.
Was also told to gp about pain killers for the neuropathy pain. Then if gp does give me some, then will have to go through how they will interact with my bipolar meds

My gp said if I need meds they stop it progressing. Not sure what he will suggest next week.

 

[ickihun]

I just hope the stick does help me.
I see my gp on 6th October about painkillers for the nerve pain. He wasn,t keen to prescribe them before but I feel I now need something occasionally. Because of the other meds I am on, ie the bipolar meds, apparently they can react with the correct nerve pain painkillers so they will need tweaking. Can only happen to me. Good job I am relatively stable with my bipolar.

I'm sure they will tweak to help. It is very upsetting when multipal health problem need supporting equally. It's a matter of getting it right, for you. Sometimes long winded but definitely worth it.
I often wonder how my gp keeps up when even I'm struggling and I only have us 4 at home to cover healthily. They have thousands, sometimes.

 

[ally1]

I'm sure they will tweak to help. It is very upsetting when multipal health problem need supporting equally. It's a matter of getting it right, for you. Sometimes long winded but definitely worth it.
I often wonder how my gp keeps up when even I'm struggling and I only have us 4 at home to cover healthily. They have thousands, sometimes.

To be honest, I feeling very defeated and want to give up

 

[ally1]

Type2 now for 3 years and thought I have been managing well. Levels are ok except the first morning one.
It's this bloody neuropathy, I do realise that I must have been diabetic for years before being diagnosed. Well that's what the podiatrist said with the severe neuropathy in my feet, now going up my left leg.
Then having bipolar. It's now just too much for me.
With the diabetes, I never had the usual symptons except being very over weight. Even my gp never tested me for diabetes because I hadn,t had any problems.
It was only because my psych had requested having a test. Thank god he did ask.
I have now got it into my head that my feet will be amputated, though have no cuts etc on my feet.
Also thinking of having strokes, heart attacks, kidney problems.

 

[ickihun]

I know it's easy to think the worst but no diabetic has every complication possible with this disease. Of course I'm not nieve to say 'we will never suffer any'.
Just like managing your bipolar and it's meds. Diabetes and it's meds and now neuropathy and it's med. You will rock this ailment just as good as you have your others.
For sure.
Luckily your good control will put you in good stead.
You can do this Ally1.

 

[ally1]

I know it's easy to think the worst but no diabetic has every complication possible with this disease. Of course I'm not nieve to say 'we will never suffer any'.
Just like managing your bipolar and it's meds. Diabetes and it's meds and now neuropathy and it's med. You will rock this ailment just as good as you have your others.
For sure.
Luckily your good control will put you in good stead.
You can do this Ally1.

Thank you for caring.
I know I can come here and say how I feel without being judged.
It's the rapid onset of the neuropathy going up my leg that has really got to me, to the point that I am very scared

 

[ickihun]

Thank you for caring.
I know I can come here and say how I feel without being judged.
It's the rapid onset of the neuropathy going up my leg that has really got to me, to the point that I am very scared

I understand.
Last year I had a heart scare. I thought I was experiencing heart attacks and heart failure. Luckily I was wrong. I was having panic attacks because of the scare. I couldnt sleep with heavy palpatations and chest pains. I was already on betablockers but had a racing fast heart beat. Since more meds and not so low carb I got alot less stressed and palpatations are only once a month or so.
I was cr@pping myself. It improved greatly.

 

[ickihun]

Things will improve now the nhs is fully aware.

 

[DCUKMod]

@ally - When do you seen your psychiatrist next, because he sounds like you biggest NHS advocate at the moment. He seems to be a real keeper.

It sounds to me like you're in a bit of a vicious circle of being understandably concerned about these unwanted developments, then reaching out to find you seem to be facing dead ends yet again.

If you are not due to see your psychiatrist soon (like the next, maybe 2 weeks or so) , then in your shoes I might be inclined to contact your psychiatrist's secretary and tell her that you're struggling with things and these developments are significantly impacting your mood, and therefor your attitude and ability to manage your T2, which could have a knock-on effect to the control of your neuropathy complications.

Sometimes we just have to reach out everywhere, in an attempt to find someone who will listen.

Stick with it Ally. You deserve better than your current deal, for sure.

I hope you realise there are lots of people rooting for you here.

 

[ickihun]

@ally - When do you seen your psychiatrist next, because he sounds like you biggest NHS advocate at the moment. He seems to be a real keeper.

It sounds to me like you're in a bit of a vicious circle of being understandably concerned about these unwanted developments, then reaching out to find you seem to be facing dead ends yet again.

If you are not due to see your psychiatrist soon (like the next, maybe 2 weeks or so) , then in your shoes I might be inclined to contact your psychiatrist's secretary and tell her that you're struggling with things and these developments are significantly impacting your mood, and therefor your attitude and ability to manage your T2, which could have a knock-on effect to the control of your neuropathy complications.

Sometimes we just have to reach out everywhere, in an attempt to find someone who will listen.

Stick with it Ally. You deserve better than your current deal, for sure.

I hope you realise there are lots of people rooting for you here.

I second that @ally1 . A very very good idea. Once one professional is listening then others should follow suit.
Please consider changing gp practice if they still arent listening hun. Not all gps are the same.

 

[PenfoldAPD]

Don’t give up @ally1 - I know you have many health concerns but I’ve always admired your determination on reducing your FBG over the short time I’ve been on this forum.

Just keep going, and know you have the support of us all when you need to scream, shout or moan. Thinking of you

 

[ally1]

@ally - When do you seen your psychiatrist next, because he sounds like you biggest NHS advocate at the moment. He seems to be a real keeper.

It sounds to me like you're in a bit of a vicious circle of being understandably concerned about these unwanted developments, then reaching out to find you seem to be facing dead ends yet again.

If you are not due to see your psychiatrist soon (like the next, maybe 2 weeks or so) , then in your shoes I might be inclined to contact your psychiatrist's secretary and tell her that you're struggling with things and these developments are significantly impacting your mood, and therefor your attitude and ability to manage your T2, which could have a knock-on effect to the control of your neuropathy complications.

Sometimes we just have to reach out everywhere, in an attempt to find someone who will listen.

Stick with it Ally. You deserve better than your current deal, for sure.

I hope you realise there are lots of people rooting for you here.

Thank you.
I am due to see my psych again in about 2 months. I will ring his secretary this morning. He is my lifeline.
He has now written 3 letters requesting 3 different things to be done but my gp has not followed up on any of them. It's my gp that is not following up on anything.
This forum is a lifeline for me. I can post here about anything and always get lots of advice

 

[ally1]

I second that @ally1 . A very very good idea. Once one professional is listening then others should follow suit.
Please consider changing gp practice if they still arent listening hun. Not all gps are the same.

Thank you.
I have already looked at changing gp practice. The next two surgeries, I have rung them and both say I am out if their catchment areas so I am stuck where I am

 

[ally1]

Don’t give up @ally1 - I know you have many health concerns but I’ve always admired your determination on reducing your FBG over the short time I’ve been on this forum.

Just keep going, and know you have the support of us all when you need to scream, shout or moan. Thinking of you

Thank you
I love this forum because I can post without being judged. I can rely on all my friends here to help me

 

[ally1]

Sorry me again
Another bit of update
I had a call from the psychs office. My psych has spoken to the multi task group, which involves psychs and cpn,s. Well Apperently the team spoke about if they can help in anyway and my psych and team feel I need a little bit of support from a cpn. The cpn will visit me at home on the 9th October in the afternoon.
My psych has explained about my bipolar and being type2. Also saying about my gp not being helpful and gp not responding to treatment that my psych has asked him to do. By seeing the cpn, she can act as go between.
Also psych is in talks with the other psychs because of my poor memory. It was said about going to the memory clinic, but before that is done, or if it will be done, the team of psychs will look at my mental illness/type2, to see if one or the other or if it's something to do with the mixture of meds that I am taking.
Normally people here have to go into the office to see the cpn but it was explained that I have trouble with falling when walking because of the neuropathy

 

[Bluetit1802]

That all sounds very positive. Hopefully things will start to move forward for you.

Is there only one GP in your surgery, or several? Would it be possible just to see one of the others? At my surgery we can see whichever GP we choose, even though they are not our named GP.