Why are my GP uncommen? I've done a couple of test, but as you probably know there aren't any futureproof tests for diagnosing hypoglycemia. As my understand were my reactiv hypoglycemia were not caused by overproduction of insulin (or high C-peptid levels). Also I don't think a glucose tolerance test would have been any use on me because my hypos usually kick in after 1 hour if I take something very high glycemic, and by the 2 hours mark be stabilized again because of glucagon (as I still has beta cells).
My diagnosis were based on my medical story, bg readings (under 3.9), C-peptid, and my insulin respons to glucose. My C-peptid were on the lower end of normal, so my GP meant my hypos were not caused by insulin resistense, or overproduction of insulin creating cells. However bloodwork showed that my beta cells responded to glucose by over compensating and started to work overtime. My GP meant it was abnormal, but likely a concequence and effect after a heavy prednisolone cure I had taken a year prior, as my low- and high- symptoms had started some months after I've had started on the prednisolone (I were on prednisolone for 9 months, not good). So my GP thought all these test compared to my symptoms and medical story were enough to prove reactive hypoglycemia. The problem however are my high readings right after eating, which my GP finds quiet unusal for hypoglycemic people. Therefore he told me to keep tracking my blood glucose, and make a new appointment if my hypos got severe, or if my blood glucose suddenly stopped to drop.
So well, I really trust my GP, and he really seem to understand my symptoms. I haven't even heard about reactive hypoglycemia before my GP brought it up, but he told me he had had a few patients in his past with this diagnosis, so it seems like my GP knows what's he doing. My questions are more of how common high reading are for reactiv hypoglycemic people, but I guess you kind of answered that question for me, so thanks
Also I don't know if my readings are caused by some severe but temporary side effects after prednisolone use, or if it is chronic condition that I have to live with. And last, since I don't have overproduction of insulin, only overacting insulin, my that be a result of my body struggling too keep bg at a normal range. Anyway thanks for taking your time for answering me
It's just so confusing and overwhelming when you don't completely understand your condition and what to expect in the future.
Sorry for my misinterpretation of your circumstances.
I've been where you are now, and it's not nice!
The thing about diagnosis is what I've gleaned from my endocrinologist, because tests performed in hospital only the way to confirm diagnosis.
Your doctor is uncommon because most would not recognise the huge amount of symptoms and then test for Hypoglycaemia.
All RH ers have a form of what is known as 'dumping syndrome' where the glucose derived from food is quickly used, probably within the first half hour and because of that our blood glucose levels rocket quickly, the initial insulin response will take out the glucose, then the glucagon, glycogen response takes over.
That first trigger is the initial phase of digestion.
When you have RH, the initial response is high, the hypo is certain unless you offset it by eating within a few hours depending on how quick your second insulin response is.
This my endocrinologist calls an overshoot, this insulin response is because of the imbalance in our bodies hormones, obviously depending on which one is out of whack!
In both cases the insulin can be quite low in intensity or high in my case!
We are all different and we learn by discussing and discovering how differently weird we RH ers are!
What you may not know, is how we all can live better lives.
And it is a dramatic change in lifestyle, it's about what triggers the high blood glucose levels (hypers) and how to treat a hypo without having the bouncing ball yo yo effect on your bloods.
So if me and you have the same condition, I'm taking as what you say, though I have every confidence that you do.
You need to understand how to treat this condition.
I will take you through the basics, even though we have a thread sticky in our forum.
My trigger is food!
I cannot tolerate grains, rice, dairy, potatoes, starchy vegetables, pasta. You may be different. I can tolerate some fruit but only small pieces through the day. Any type of sugar!
What I eat is plenty of is protein, mainly meat, cooked natural meat, not manufactured.
I eat a lot of salad vegetables, along with eggs and a range of foods that are very low carb. I make homemade stews, soups, curry.
I try to cook from fresh.
I drink plenty of black tea and water, no alcohol! No fizzy drinks except one can of diet coke a day!
Why do I put myself through its self imposed torture, no chips, no bread etc?
Why, because, since being on a diet that has very few carbs, I'm really really well, I have no issues of health except my weirdness when I eat carbs. For me carbs are poison and make me ill. Carbs are carbs no matter the label!
They make me ill and will put me back into my hypo hell!
I was dying and my endocrinologist saved my life.
Your question about the meds you were on, I would be guessing, but it seems likely that has caused your problems.
This is not a chronic condition, it can and I have control of it as long as I stay away from what triggers the hyper! Carbs!
Whatever you have and I repeat, I think you do have RH, there is no cure.
I do take a 100mg of sitagliptin, that does take the spike away from the sudden rise after eating and makes my hypo come further than normal, it is a back up, an insurance that I don't eat or drink a trigger, I have done once or twice, it may not work for you but it does for me.
My endocrinologist is in contact with the pharmaceutical company and they are starting tests in the States, if they can find enough RH ers! He has done many tests on me and one other similar RH er in his clientele.
Keep asking, we may not have the answers but we are good listeners and hopefully we can get your concerns sorted.
All the best.
Nosher.
Are you in the UK?
