According to my consultant 2016

[Lamont D]

Update,
So, now that I've took on board what my endocrinologist said at my last appointment and the need to lose the kilo I had unknowingly put on, I decided drastic action needed to be taken and try and get myself losing weight again, the only thing is, I'm not going to weigh myself until, I see him next, I'm not going to be weighing myself because if I m losing weight again, I might just hold back on my plan of action.
I know it doesn't make much sense but that's me!
I believe constant weighing, can have an adverse effect to what you are trying to achieve! And obsessing about another thing in my busy life, can't be relied upon!
So, what I've been doing is intermittent fasting on days at work as well as days off.
By this, I don't eat until twelve midday every other day.
Also eating less, and when I do, it's a snack rather than a meal, even smaller than I was before. And modifying my full fat as well.
I'm not having any adverse reactions to not eating.
And I do feel a bit better and I think I have lost a little weight.
My energy levels are still very good, and I'm obviously stuck being in ketosis.
Which is fine!
Just trying to get on with my really busy life!

 

[KevinPotts]

Update,
So, now that I've took on board what my endocrinologist said at my last appointment and the need to lose the kilo I had unknowingly put on, I decided drastic action needed to be taken and try and get myself losing weight again, the only thing is, I'm not going to weigh myself until, I see him next, I'm not going to be weighing myself because if I m losing weight again, I might just hold back on my plan of action.
I know it doesn't make much sense but that's me!
I believe constant weighing, can have an adverse effect to what you are trying to achieve! And obsessing about another thing in my busy life, can't be relied upon!
So, what I've been doing is intermittent fasting on days at work as well as days off.
By this, I don't eat until twelve midday every other day.
Also eating less, and when I do, it's a snack rather than a meal, even smaller than I was before. And modifying my full fat as well.
I'm not having any adverse reactions to not eating.
And I do feel a bit better and I think I have lost a little weight.
My energy levels are still very good, and I'm obviously stuck being in ketosis.
Which is fine!
Just trying to get on with my really busy life!

I agree on the weighing obsession. I do a weigh-in normally once a week, but during this 7 day fast, I've been weighing every day and it feels almost painful!


Sent from my iPad using DCUK Forum

 

[ktg]

Hi @nosher8355 Would you mind sharing the details of your consultant with me? Sorry if you've mentioned elsewhere but this is my first time on the forum.

I was diagnosed with RH 18 months ago after a year of 'panic attacks' that when therapy didn't work and I finally resorted to anti depressants, which after just one tablet my body went into some sort of crisis. Several trips to A&E and an endocrinology referral via a gastro referral I was eventually diagnosed through a prolonged GTT (5.2 at 2.5hrs to 2.1 at 3 hours, so 'unequivocal' according to my Endo). I've followed a low carb diet since, although have become more relaxed and introduced more complex carbs as time has gone on. I still have bad days when even though my blood sugars are normal I feel rubbish and I don't understand why. Despite my length of time with the condition and my reasonable management it still causes me a lot of stress and anxiety and I have good and bad days. I no longer have such regular night time hypos, so things have improved, but I have plateaued and feel like I've never really had answers as to the root cause, or if I will ever live a normal life without fear of hypos (it doesn't help that I witnessed my first hypoglycemic fit recently when a diabetic collapsed in front of me. I had my glucose testing kit on me so his friends asked me to test him and he was 2.5 - higher than I know mine has dropped to in the past. It was really scary). I'm a naturally anxious person so it doesn't help. I have a scientific background (and very nearly did medicine had I not had health issues as a teen), so I have a dangerously small amount of knowledge, an overactive imagination, and a need to understand how things/my body works. I read incessantly about the condition when I was first diagnosed but became frustrated by all the conflicting and dubious information on the net with very little actual medical research to be found. Plus I found it all rather depressing. 18 months on I feel really fed up that it's still a major part of my life and i would love some answers. I've been lucky to have a good endo who knew what it was almost immediately, but feel I still need to understand more. I am recently married and I'm scared to go on honeymoon in the far east in case I am ill, I struggle being on my own for more than a few hours, and I want to start a family but am scared about what the changes to my body during pregnancy will do to my RH. I'm 32 and have always been slim but I also have hypothyroidism (diagnosed at 17), low Vit D, pernicious anemia, and low iron. My endo thinks the root of all my problems is chronic fatigue, but that is his specialism and tests showed I had the epstein barr virus years ago. I feel that's a bit of a cop out.

Sorry for the essay! Not sure why I've written all that. I think just nice to be telling someone who knows how I feel! I know I should feel lucky that I don't have diabetes, but I guess it's relative.

 

[Brunneria]

Hi and welcome @ktg

Well done for getting that elusive diagnosis! Many of us RHers battle for years to get one, so congratulations!

(I would be tempted to suggest that your chronic fatigue is a symptom, not a cause, but hey, wot do i know? lol)

 

[Lamont D]

Hi @ktg

I'm travelling myself at the moment, and I have to be careful who no give my endocrinologists details out to, but if you are genuinely seeking another specialist, I will pm you if you can receive them.

I will read your post again and I think as Brun has already said, that most of your problems are symptoms. Anxiety and worry are major symptoms. Fear of hypos can sometimes work against you.
I do know how you feel.
I will get back to you, when I log on later.

 

[Lamont D]

Hi @nosher8355 Would you mind sharing the details of your consultant with me? Sorry if you've mentioned elsewhere but this is my first time on the forum.

I was diagnosed with RH 18 months ago after a year of 'panic attacks' that when therapy didn't work and I finally resorted to anti depressants, which after just one tablet my body went into some sort of crisis. Several trips to A&E and an endocrinology referral via a gastro referral I was eventually diagnosed through a prolonged GTT (5.2 at 2.5hrs to 2.1 at 3 hours, so 'unequivocal' according to my Endo). I've followed a low carb diet since, although have become more relaxed and introduced more complex carbs as time has gone on. I still have bad days when even though my blood sugars are normal I feel rubbish and I don't understand why. Despite my length of time with the condition and my reasonable management it still causes me a lot of stress and anxiety and I have good and bad days. I no longer have such regular night time hypos, so things have improved, but I have plateaued and feel like I've never really had answers as to the root cause, or if I will ever live a normal life without fear of hypos (it doesn't help that I witnessed my first hypoglycemic fit recently when a diabetic collapsed in front of me. I had my glucose testing kit on me so his friends asked me to test him and he was 2.5 - higher than I know mine has dropped to in the past. It was really scary). I'm a naturally anxious person so it doesn't help. I have a scientific background (and very nearly did medicine had I not had health issues as a teen), so I have a dangerously small amount of knowledge, an overactive imagination, and a need to understand how things/my body works. I read incessantly about the condition when I was first diagnosed but became frustrated by all the conflicting and dubious information on the net with very little actual medical research to be found. Plus I found it all rather depressing. 18 months on I feel really fed up that it's still a major part of my life and i would love some answers. I've been lucky to have a good endo who knew what it was almost immediately, but feel I still need to understand more. I am recently married and I'm scared to go on honeymoon in the far east in case I am ill, I struggle being on my own for more than a few hours, and I want to start a family but am scared about what the changes to my body during pregnancy will do to my RH. I'm 32 and have always been slim but I also have hypothyroidism (diagnosed at 17), low Vit D, pernicious anemia, and low iron. My endo thinks the root of all my problems is chronic fatigue, but that is his specialism and tests showed I had the epstein barr virus years ago. I feel that's a bit of a cop out.

Sorry for the essay! Not sure why I've written all that. I think just nice to be telling someone who knows how I feel! I know I should feel lucky that I don't have diabetes, but I guess it's relative.

Hi again.

Three things you will probably have to do and if I believe that what is causing so much distress is the actual symptoms.
First you need a glucose monitor, without one, you don't have a clue to what is going on. You will need to keep a food diary to record all the details of what you eat and your readings, this will help in so many ways of understanding.
Second, review your food intake and how and when you eat. It's important to understand that eating very small meals every two to three hours will keep the hypos away. If you want to kick start feeling better, then maybe fasting will help. I will help if you want to because the fasting wether intermittently, day, or a couple of days. This will help you if you can do it.
Third, and most important is the carbs, wether complex or slow acting, whole grain, it doesn't matter, carbs are carbs! They will spike you regardless. If you spike, a hypo will follow. So you have to start thinking about how to get around this.
I would read the low carb forum to get ideas and recipes.

If you have questions, please ask.