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T1s: Angry Type 1

R

Robby

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I have never been so angry as I am today, (watched Panorama about type 2) I have had type one for 40 years I did not ask for it and I do not want it BUT I live with it.
At this time in my life age 60 I'm writing this as my first post I'm sitting at my pc with the rotting smell of a wound after the removal of a gangrenous little toe that I have had to wait for nearly four weeks to be seen by a v surgeon who h as now remove the rotten bones and dead skin as best he can.
Un fortunately for myself and family I now have developed a severe phobia (Nosocomephobia )due to traumatic events in the recent past while staying in hospital and this has led to problems even getting me to go to hospital.
The thing that has made me most angry is that I'm still at a high risk of loosing my leg and I have asked for the district IV team to come in and give me antibiotics.
This request has been dismissed and I have been given gut rotting (Clindamycin) I watched in amazement a family man with 2 small children filling his face with chocolate and then receiving a gastric band to hep him?.
There is something seriously wrong with this hospital as I can not get the quality of treatment I believe that I should receive can not even get a scan for over 3 years on my arthritic back that has now seen me reduced from an active and reasonable fit diabetic to a fat unfit depressed wreck.
Has the NHS and Heartland hospital given in on type 1s, I have to wait to see if anyone can give me the care, kindness and respect I deserve having survived with an illness.

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I really feel for you. Diabetes is a terrible thing, and when insulin resistance gets added in, that just makes it worse. I hope that you are able to get the most appropriate treatment for your situation and that things are able to improve.

You may find it useful to read this thread:
http://www.diabetes.co.uk/forum/threads/the-hidden-killer-type-2-diabetes.108797/

The guy in the Panorama programme was struggling, fat, and depressed - So it sounds like you have a lot in common, based on the self description you just wrote.
 
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Hi,

I'm a T1 of 40 years diagnosis..

Sounds "cheesy"? But the trick is not to give up on yourself...
 
Robby said:
I have never been so angry as I am today, (watched Panorama about type 2) I have had type one for 40 years I did not ask for it and I do not want it BUT I live with it.
At this time in my life age 60 I'm writing this as my first post I'm sitting at my pc with the rotting smell of a wound after the removal of a gangrenous little toe that I have had to wait for nearly four weeks to be seen by a v surgeon who h as now remove the rotten bones and dead skin as best he can.
Un fortunately for myself and family I now have developed a severe phobia (Nosocomephobia )due to traumatic events in the recent past while staying in hospital and this has led to problems even getting me to go to hospital.
The thing that has made me most angry is that I'm still at a high risk of loosing my leg and I have asked for the district IV team to come in and give me antibiotics.
This request has been dismissed and I have been given gut rotting (Clindamycin) I watched in amazement a family man with 2 small children filling his face with chocolate and then receiving a gastric band to hep him?.
There is something seriously wrong with this hospital as I can not get the quality of treatment I believe that I should receive can not even get a scan for over 3 years on my arthritic back that has now seen me reduced from an active and reasonable fit diabetic to a fat unfit depressed wreck.
Has the NHS and Heartland hospital given in on type 1s, I have to wait to see if anyone can give me the care, kindness and respect I deserve having survived with an illness.

.
Click to expand...

Robby I don't think and of us who watched it enjoyed it for a million reasons, but I can see how it could have rubbed salt in the wounds (pardon the pun).

I do hope your foot heals well and over time you can recover from the traumas that have clearly affected you deeply.
 
@Robby I second @Jaylee 's advice not to give up on yourself. Keep fighting - every Type 1 here understands the struggle of coping with this condition day in, day out.

If you're really unhappy with the care you're receiving from your hospital, then complain. There should be a complaints procedure somewhere. If you don't feel able to engage with that at the moment, could your GP help and push on your behalf?

Keep posting here and feel free to rant. There are some very supportive people here.

Take care X
 
Can you not contact your MP/Councillor/Ombusdsman to get them to intervene in you getting prompt treatment.
 
You've mentioned you now have a phobia - a fear of hospitals. Was the District Nurse aware of this? Has your GP offered any advice or support?

I guess what I'm saying is sometimes you have to spell out your needs to people even if it's on your notes or you think they should know. Assume nothing.
 
Hi. I can only hope that you get thru this period in hospital and are back at home where you can manage yourself properly. With insulin you should be able to control your diabetes together with a good diet etc. Do seek more advice form this site if you need it and I hope you find the support you need.
 
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