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Type 1 - Hey

db89

Well-Known Member
Messages
1,134
Location
Cumbria
Type of diabetes
Type 1
Treatment type
Insulin
Just wanted to say hi! I'm David, fairly newly diagnosed in October with Type 1 - was quite a shock at the time but I think I'm starting to get used to things. I've been told I'm in a honeymoon period at the moment so things are mostly fairly stable but sometimes go a bit erratic without an obvious reason. The main issue I have had has been keeping high enough for driving (there are some frustrating times where I am just below the 5.0 limit) but equally I have had mornings where I've woken up in double figures and can't explain it.

Joined up to hopefully learn some more about my new way of life and share any of my experiences so far.
 
Hi David. Not sure if you've been directed here, but @daisy1 has some brilliant info for all diabetics.

I'm borderline T2 so have no information on T1, but you'll get fantastic support and information here. You've come to the right place. :)
 
Hi David! I'm also a recently diagnosed T1 (nearly four weeks in now!) and having 'good fun' learning!
 
Thanks for the warm welcome everyone.

@kittypoker I found the forum via a link on the diabetes.co.uk Facebook page

@Adam.froud it's certainly a learning curve, I'm finding the planning ahead before having meals and snacks the biggest change.
 
Hi David @db89

While you are getting to know your body with D and what makes it tick, you will get these swings which seem to come out of the blue for no reason. Don't be thinking you've failed - it's just part of the learning curve.

The biggest thing that helped me was LCHF as it stopped all those swings within a week, and gave me the clear head I needed to get to grips with D. Honeymoon is great as it gives you some breathing space to master what you need to know. Although previously honeymoons were very short periods of time, several people have now stretched them into years - my consultant told me of someone in their 5th year of honeymoon .

Dawn phenomenon (DP) is a common effect from your liver dumping glucose into your bloodstream at night. It affects people quite differently, so you need to see what works for you. Personally I do some exercise about (2 mile walk with the dogs!) late evening, which seems to limit the climb to around 1.5 - 2 units. Also no carb intake after 9pm, unless I'm below 3.9BG's in which case I'll have a cheesy oatcake (3.7g) which will give me a 1 unit rise.
 
Thanks for the warm welcome everyone.

@kittypoker I found the forum via a link on the diabetes.co.uk Facebook page

@Adam.froud it's certainly a learning curve, I'm finding the planning ahead before having meals and snacks the biggest change.

If you go LCHF you won't need to bother with snacks, because you'll always feel full between meals
 
Hi David @db89

While you are getting to know your body with D and what makes it tick, you will get these swings which seem to come out of the blue for no reason. Don't be thinking you've failed - it's just part of the learning curve.

The biggest thing that helped me was LCHF as it stopped all those swings within a week, and gave me the clear head I needed to get to grips with D. Honeymoon is great as it gives you some breathing space to master what you need to know. Although previously honeymoons were very short periods of time, several people have now stretched them into years - my consultant told me of someone in their 5th year of honeymoon .

Dawn phenomenon (DP) is a common effect from your liver dumping glucose into your bloodstream at night. It affects people quite differently, so you need to see what works for you. Personally I do some exercise about (2 mile walk with the dogs!) late evening, which seems to limit the climb to around 1.5 - 2 units. Also no carb intake after 9pm, unless I'm below 3.9BG's in which case I'll have a cheesy oatcake (3.7g) which will give me a 1 unit rise.

If you go LCHF you won't need to bother with snacks, because you'll always feel full between meals

Thanks @Nidge247, I went low carb at the back end of 2015 to lose some weight - in the short term for a holiday I had coming up and in the longer term because I was concerned about the risk of type 2 as my dad was diagnosed with this a few years ago. Funny how life has a way of kicking back at you when you decide to do something good for yourself. :(

I've never gone really low carb as I've read a bit about on here but certainly been well under the NHS recommended amount for some time by, for example, having mainly egg based breakfasts. I found doing this stopped me feeling hungry before lunch and reduced a tendency to snack as you say. I do still allow myself the odd snack in an afternoon (usually a bit of fruit or some cheese) after diagnosis as it stops me feeling like it's a gamble whether I'll be over 5 in order to drive home and have to sit and snack on something I don't want anyway!

I'm not sure how much further I could realistically go low carb, I've always had resistance from everyone since I did it - even the dietitian I saw after diagnosis was pushing whole grains heavily!
 
Thanks @Nidge247,
I've never gone really low carb as I've read a bit about on here but certainly been well under the NHS recommended amount for some time by, for example, having mainly egg based breakfasts. I found doing this stopped me feeling hungry before lunch and reduced a tendency to snack as you say. I do still allow myself the odd snack in an afternoon (usually a bit of fruit or some cheese) after diagnosis as it stops me feeling like it's a gamble whether I'll be over 5 in order to drive home and have to sit and snack on something I don't want anyway!

I'm not sure how much further I could realistically go low carb, I've always had resistance from everyone since I did it - even the dietitian I saw after diagnosis was pushing whole grains heavily!

@dp89

The fruit will usually give you a rise; if I am nearing 5 before driving, an apple is a good healthy way to bring it up for the journey.

If I have had a meal with little fat, then we always have pork scratchings in, which are of course zero carb and high fat which often feel like a meal in themselves - and it's easy to have a pack in the car. (Of course you don't have to eat the full bag in one go!)

I have found having raspberries, blueberries, yoghurt/cream, and some nuts/seeds a good way to bring it DOWN (despite having some carbs in it) so often have these as a top-up in an evening so I can be nicely in the low 4's for going to bed. It leaves me nicely full, and I no longer want/need any supper later on, as being something of a night-owl, I don't go to bed until the small hours, and only sleep for around 5 hours a night. It works well for me - but as usual, everyone is different with this condition, so test test test if changing your routine for a suggested remedy.

My GP and dietician although having heard of LCHF don't offer it as a method, though both are impressed with my figures and are keeping tabs on my progress. We can change the worlds outlook a step at a time!
 
@db89

Hello David and welcome to the forum :) Here is the basic information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 147,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why :)
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Technically, '5 to drive' is advice, not a legal requirement. Have a read of this: http://www.diabetes.co.uk/forum/threads/official-dvla-guidelines-for-insulin-driving.112042/

That said, if your levels are a bit erratic at times it's better to be on the safe side. And welcome to the forum.

Hi all,

Thanks to everybody for taking the time to look.

I've now found what I was looking for . . . it's in the PDF which @GrantGam1337 was pointed to by the DVLA. In Chapter 03 on Diabetes Mellitus it's mentioned that all insulin-treated drivers must follow the information provided in 'Information for drivers with diabetes' which is given in the Appendix. In Appendix D on Page 114 you find this one-pager, labelled 'DIABINF'. It's implied that this printed page is sent to every insulin-treated driver.

https://www.gov.uk/guidance/assessing-fitness-to-drive-a-guide-for-medical-professionals

I've copy-and-pasted info from the DIABINF document below.

Regards :)
Antony



DRIVERS WITH INSULIN TREATED DIABETES ARE ADVISED TO TAKE THE FOLLOWING PRECAUTIONS
.

 You should always carry your glucose meter and blood glucose strips with you. You should check your blood
glucose no more than 2 hours before the start of the first journey and every two hours whilst you are driving.

If driving multiple short journeys, you do not necessarily need to test before each additional journey as long as
you test every 2 hours while driving. More frequent testing may be required if for any reason there is a greater
risk of hypoglycaemia for example after physical activity or altered meal routine. The intention is to ensure
that blood glucose is always above 5.0mmol/l while driving.

 In each case if your blood glucose is 5.0mmol/l or less, take a snack. If lt is less than 4.0mmol/l or you feel hypoglycaemic, do not drive.

 If hypoglycaemia develops while driving, stop the vehicle as soon as possible.

 You should switch off the engine, remove the keys from the ignition and move from the driver’s seat.

 You should not start driving until 45 minutes after blood glucose has returned to normal (confirmed by
measuing blood glucose). It takes up to 45 minutes for the brain to recover fully.

 Always keep an emergency supply of fast-acting carbohydrate such as glucose tablets or sweets within easy
reach in the vehicle.

 You should carry personal identification to show that you have diabetes in case of injury in a road traffic
accident.

 Particular care should be taken during changes of insulin regimens, changes of lifestyle, exercise, travel and
pregnancy.

 You must take regular meals, snacks and rest periods on long journeys. Always avoid alcohol.

I was advised by my DSN that if I was a driver in an accident, I may be required to produce my meter to prove I was 5 or above at the time. Thankfully that has not been necessary as I'm accident-free, but in my mind that does give the requirement to ensure you are 5 to drive.

I agree that the guidelines do not set the figure 5 in stone, and even lean nearer to the figure 4 as a cut-off, but you need a margin in any case. I can always tell once I've dropped below 5 thankfully, as I still have good hypo awareness. Long may it continue.
 
Thanks for the info daisy1.

@CapnGrumpy interesting link and info. I was also told similar to @Nidge247 about producing my meter if I ever needed to to show I tested before getting behind the wheel. The DVLA information isn't completely clear - testing at 2 hour intervals on longer journeys makes sense but not what to do if you're making a few short trips and away from the car for say 30 minutes within the 2 hours. I try to keep in the 5-8 range agreed with my DSN at my last appointment as I drive most days and usually not very short journeys. If I've dipped below 5 I've found an apple or some grapes quite effective at giving a rise as long as I'm careful with the size/amount.
 
Thanks for the info daisy1.

@CapnGrumpy interesting link and info. I was also told similar to @Nidge247 about producing my meter if I ever needed to to show I tested before getting behind the wheel. The DVLA information isn't completely clear - testing at 2 hour intervals on longer journeys makes sense but not what to do if you're making a few short trips and away from the car for say 30 minutes within the 2 hours. I try to keep in the 5-8 range agreed with my DSN at my last appointment as I drive most days and usually not very short journeys. If I've dipped below 5 I've found an apple or some grapes quite effective at giving a rise as long as I'm careful with the size/amount.

@db89

The test you carried out at the start of journey 1 will cover you for the next few trips that you do in the following 2 hours. You should then retest to continue safe driving each 2 hour period you remain behind the wheel.
 
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