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Type 2 Newly Diagnosed

nbenn

Member
Messages
18
Hello .. I was diagnosed on Friday 13th July 2018 ...of all the dates ..lol..
My HBA1c is 21.3... the diabetic nurse explained all this and went through diet, exercise etc etc..
Even gave me magazines to read ... after being with her for over an hour I'm still none the wiser, I don't feel diabetic I don't feel ill, I exercise regularly (road cycling) at least 3 times a week..
I just don't understand... I'm supposed to take metformin twice daily.... I did take it for the first week but have since stopped, it made me feel ill, I felt lethargic, sickness and most of all felt ill..
I'm taking more control over what I eat and increased my cycling from twice weekly to 3 times..
I've even bought a " accu chek " monitor...
I've stopped feeling lethargic, sickness etc etc...
So please can someone explain to me in laymens terms ( who, what, why, where, when) so to speak ... am I being ignorant, stupid I just don't understand any of it... help please..
 
Hello .. I was diagnosed on Friday 13th July 2018 ...of all the dates ..lol..
My HBA1c is 21.3... the diabetic nurse explained all this and went through diet, exercise etc etc..
Even gave me magazines to read ... after being with her for over an hour I'm still none the wiser, I don't feel diabetic I don't feel ill, I exercise regularly (road cycling) at least 3 times a week..
I just don't understand... I'm supposed to take metformin twice daily.... I did take it for the first week but have since stopped, it made me feel ill, I felt lethargic, sickness and most of all felt ill..
I'm taking more control over what I eat and increased my cycling from twice weekly to 3 times..
I've even bought a " accu chek " monitor...
I've stopped feeling lethargic, sickness etc etc...
So please can someone explain to me in laymens terms ( who, what, why, where, when) so to speak ... am I being ignorant, stupid I just don't understand any of it... help please..

Hi there @nbenn ,

Do you remember what your blood glucose levels were at the point of diagnosis?

@daisy1 may be able to stop by with some basic information.
 
I felt really ill taking the tablets prescribed, so I stopped too.
The simple explanation is that your body can't cope with carbohydrates, starches and sugars, so it would be a good idea to avoid eating foods which are high in carbohydrate - things made with sugar, flour, grains, potatoes and other root vegetables, high sugar fruits, as they are going to elevate your blood glucose. Sticking to salads, low carb veges, berries - I set a limit of 10 percent carbs, should reduce your readings with any luck. Foods such as eggs and cheese, meat, shellfish and fish are all great for low carbing.
 
Hi there @nbenn ,

Do you remember what your blood glucose levels were at the point of diagnosis?

@daisy1 may be able to stop by with some basic information.

Hi.. I don't remember, I know it's only just over a week ago.. I only remember she said it was 20.6 on the first test on the second it was 21.3 the only other things I really remember are that it is dangerously high and should of been picked up earlier, she seems to think that I've had it for a few years and the only other thing I really remember is I'm diabetic...
 
I felt really ill taking the tablets prescribed, so I stopped too.
The simple explanation is that your body can't cope with carbohydrates, starches and sugars, so it would be a good idea to avoid eating foods which are high in carbohydrate - things made with sugar, flour, grains, potatoes and other root vegetables, high sugar fruits, as they are going to elevate your blood glucose. Sticking to salads, low carb veges, berries - I set a limit of 10 percent carbs, should reduce your readings with any luck. Foods such as eggs and cheese, meat, shellfish and fish are all great for low carbing.

I really do like to cycle so high do eat lots of carbs... I'm not a meat,fish lover and as for fruite I only like bananas.....
I'm losing weight and toning up, I have cut down on the sugary cakes I used to eat.. though I still eat chocolate buiscits though just not half a packet , I limit myself to two or three maybe twice in a week, I just don't get it I eat lots of pasta, rice etc which was good for me and now isn't... should i just not eat and just drink water....
 
I only remember she said it was 20.6 on the first test on the second it was 21.3 the only other things I really remember are that it is dangerously high and should of been picked up earlier, she seems to think that I've had it for a few years and the only other thing I really remember is I'm diabetic...
Hi @nbenn and welcome to the forum. There are 3 different scales used for measuring blood glucose levels. The figures given by your DN sound as if they are in the mmol/L range, which would be the same range as shown on your blood glucose meter.

20.6 mmol/L would be 136.1 on the HbA1c IFCC range, and 21.3 mmol/L would be 141.0 on the HbA1c IFCC range.
The HbA1c IFCC range is usually used for diagnosing your diabetic level in the UK.
Below 42 is non-diabetic, 42-47 is pre-diabetic, and 48 and above is diabetic.
So your figures are quite high.

You should ask your GP surgery if they have online access to your test results, and request access if they do. If not you should ask for a printout of the test results, which you are entitled to. It gives you a lot of information and is useful as you will know where you are starting from.

It's good that you have a blood glucose meter to monitor how you are doing and how different foods affect you. You should test before eating, then 90 -120 minutes after eating to see how your bg level is affected. Type 2s should aim for a bg of 4-7 mmol/L before eating, and not more than 8.5 mmol/L 2 hours after eating. Your 3 chocolate biscuits may well spike you to over 8.5 mmol/L and are best avoided completely.

Although you might not be experiencing diabetic symptoms now, prolonged high readings will be doing damage to your body and are likely to cause complications in time.
 
@nbenn

Hello Nbenn and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
I doubt that the heavy starches were ever good for you, but with your exercise, you managed to cope with it. You probably don't feel different because you aren't - this is your normal.
I find that my stamina is improved with eating low carb, and I used to do a lot of cycling before my knees became painful - I can still go along on the level, but hill climbing is no longer an option. Well - at 67 I suppose the mileage is rather high.
Rather than chocolate biscuits, perhaps a few squares of high coco chocolate or possibly baking some low carb variants could assist - your blood glucose numbers are about three times what I aim to keep as a maximum, so I am rather concerned that you regard carbs as your fuel when they are really not your friend.
 
Hi @nbenn and welcome to the forum. There are 3 different scales used for measuring blood glucose levels. The figures given by your DN sound as if they are in the mmol/L range, which would be the same range as shown on your blood glucose meter.

20.6 mmol/L would be 136.1 on the HbA1c IFCC range, and 21.3 mmol/L would be 141.0 on the HbA1c IFCC range.
The HbA1c IFCC range is usually used for diagnosing your diabetic level in the UK.
Below 42 is non-diabetic, 42-47 is pre-diabetic, and 48 and above is diabetic.
So your figures are quite high.

You should ask your GP surgery if they have online access to your test results, and request access if they do. If not you should ask for a printout of the test results, which you are entitled to. It gives you a lot of information and is useful as you will know where you are starting from.

It's good that you have a blood glucose meter to monitor how you are doing and how different foods affect you. You should test before eating, then 90 -120 minutes after eating to see how your bg level is affected. Type 2s should aim for a bg of 4-7 mmol/L before eating, and not more than 8.5 mmol/L 2 hours after eating. Your 3 chocolate biscuits may well spike you to over 8.5 mmol/L and are best avoided completely.

Although you might not be experiencing diabetic symptoms now, prolonged high readings will be doing damage to your body and are likely to cause complications in time.

Why didn't the doctors explain it like you just have... .. I am trying I only test twice a day because I don't want it to rule my life.. .. I normally test 1st thing in the morning and usually a couple of hours after evening meal normally around 9pm...
I really appreciate your explanation and I will go back to my doctors... any other information/ advice would be greatly appreciated... thank you
 
Why didn't the doctors explain it like you just have... .. I am trying I only test twice a day because I don't want it to rule my life.. .. I normally test 1st thing in the morning and usually a couple of hours after evening meal normally around 9pm...
I really appreciate your explanation and I will go back to my doctors... any other information/ advice would be greatly appreciated... thank you

Possibly because like most GP's they simply don't know this stuff. And here I'm assuming they said you were a Type 2 as you were prescribed metformin...
Testing when you are is a bit pointless because you won't learn anything. Better to test just before eating and then 2 hours afterwards to see what the effect of that meal has been on your blood sugars. If your BG has gone up by more than 2 mmol/l then you have had something not good for you. Highly likely to be carbohydrate pasta,rice, potato, bread, sugar are the usual culprits.
I would suggest you test more in the short term to find the foodstuffs that your body can't cope with any more.
What do you like to eat? Apart from the sticks of sugar that are bananas?
 
I just don't understand... I'm supposed to take metformin twice daily.... I did take it for the first week but have since stopped, it made me feel ill, I felt lethargic, sickness and most of all felt ill..
Hi @nbenn Metfornin is useful in reducing bg levels, it also suppresses appetite. Many people do find it causes problems initially but that usually settles down after a couple of weeks.
If you are going to see your GP again you could ask to be prescribed the slow release version, Metfornin SR, instead which has less side effects.
 
Why didn't the doctors explain it like you just have... .. I am trying I only test twice a day because I don't want it to rule my life.. .. I normally test 1st thing in the morning and usually a couple of hours after evening meal normally around 9pm...
I usually only test first thing in the morning. But I did learn from this forum which foods are likely to raise my bgs and cut those out immediately. Like you I used to like bananas and could eat half a packet (or more!) of chocolate biscuits at a time but haven't eaten either since diagnosis. I occasionally test before and after eating now, just to check that I am not spiking, or if I want to check the effects of certain foods.
It is useful to initally test before and after eating to find out which foods effect you. Once you know, you can avoid those and don't need to test so much.
 
Hi.. I don't remember, I know it's only just over a week ago.. I only remember she said it was 20.6 on the first test on the second it was 21.3 the only other things I really remember are that it is dangerously high and should of been picked up earlier, she seems to think that I've had it for a few years and the only other thing I really remember is I'm diabetic...

I really appreciate your explanation and I will go back to my doctors... any other information/ advice would be greatly appreciated... thank you
You might also ask your doctor if he is sure you are Type 2, and not Type 1. Sometimes Type 1s are misdiagnosed because they become diabetic as adults. If he isn't sure he might refer you for further tests.
 
Hello .. I was diagnosed on Friday 13th July 2018 ...of all the dates ..lol..
My HBA1c is 21.3... the diabetic nurse explained all this and went through diet, exercise etc etc..
Even gave me magazines to read ... after being with her for over an hour I'm still none the wiser, I don't feel diabetic I don't feel ill, I exercise regularly (road cycling) at least 3 times a week..
I just don't understand... I'm supposed to take metformin twice daily.... I did take it for the first week but have since stopped, it made me feel ill, I felt lethargic, sickness and most of all felt ill..
I'm taking more control over what I eat and increased my cycling from twice weekly to 3 times..
I've even bought a " accu chek " monitor...
I've stopped feeling lethargic, sickness etc etc...
So please can someone explain to me in laymens terms ( who, what, why, where, when) so to speak ... am I being ignorant, stupid I just don't understand any of it... help please..
Hey nbenn,

You're not being stupid: basically none of us knew anything about T2 (and nutrition that does work for us) when we got hit with the diagnosis. You already got an accu check, now you just have to start using it properly. As stated, before a meal and 2 hours afterwards will tell you exactly what you need to know about that meal: was it too carby (if it goes over 2 mmol/l, then it was), or if it was fine for a repeat performance. Just semi-randomly testing is mostly a waste of strips, as it doesn't tell you what your body is doing when you put food in your mouth. And then it does only serve to make you nervous, because you're not actually getting any useful information. That's all a meter is: a tool to help, not something designed to stress you out or to get obsessed with.

I got really ill with metformin, so you're not alone there. After living in the bathroom for 2 weeks I was bleeding from places you don't want to bleed from. You do need to tackle those bloodsugars though, because they are really high. I've once heard sugar/glucose being compared to ground glass in your veins... Imagine how that affects arteries, heart, kidneys, eyes, extremities... Not nice. And some of those things you really, really need. So you may be feeling okay when running high levels, the damage is being done, and you won't actually notice it until some of it is irriversable. So facing it head on is a good move. Diet is what works for me, but there are meds other than metformin which could help you. (Gliclazide for instance.) Diet is better for the long term, at least, that's the consensus, and it makes sense. Rather than treating the high bloodsugars, you just make sure they don't get high to begin with.

Personally, I run on ketones rather than carbs, following a ketogenic diet (meaning 20 or less grams of carbs a day), combined with Intermittent Fasting (I just skip breakfast and sometimes lunch. Dinner's a staple.). So even heavy excersize like cycling can be done without carbs. Just takes a few weeks to become fat-adapted, should you choose that course of action. Just something to know. You have options: Low Carb/High Fat, Ketogenic and/or Intermittent Fasting, medication, or even insulin. Make sure you make a well-informed choice; take time to learn about the options and which is suitable to your lifestyle/outlook/willingness to make a lifelong committment.

I am a picky eater, though not by choice; there's some food intolerances at play, and though some of them are getting better (rheumatism-related), the migraine-triggers and ibs-causers are still abound. So I know what it's like to start a limited diet, and then find it's limited further because some things just don't agree with you. It's a good thing to just go over to dietdoctor.com and look up foodstuffs you do like. And possibly find alternatives for foods you don't want to do without, but are not working out for you. Fish and meat are wonderfully low-carb, but so are above-ground and/or leafy green veggies, avocado's, eggs, mushrooms, berries, greek full fat yoghurt, double cream, 82%+ pure chocolate, olive and kokonut-oils, olives, nuts, seeds, butter.... The occasional modest cookie won't kill you, just don't eat a whole packet of 'em. And there's a special sort of pasta (Konjak?) which is low-carb. I wanted to try it but haven't had the oppertunity yet. There's oopsie-bread, low-carb mug cakes, fatbombs (oh lord, fatbombs!), so there's still stuff to choose from.
Good luck!
 
Hi jokalsbeek,... I really appreciate your message, I feel as though I've got to do this and don't do that ,do this do that... I feel pressured to do something now...
I really want to and how you've described the alternatives sounds really good especially the alternative pasta...im gonna take my time in choosing my own diet but the suggestions you make sound good with the exception of meat and fish (I don't really eat either)... but like you say where's there's a will there's a way...
If you have any other suggestions to alternative food suggestions please let me know..
Thanks nbenn
 
Start testing at the appropriate times and download the mySugr app. Use it to record your readings and your food. You can record all sorts of other things.
After a few days of entering data, you will get an estimated HbA1c.

In addition to meals I also test first thing on waking and at bedtime. Not strictly necessary but I like the data.

Testing doesn't have to be forever. You will get your numbers down and find a place where y are happy.

You will make mistakes at first, we all did. Treat it as part of your education.
 
You might also ask your doctor if he is sure you are Type 2, and not Type 1. Sometimes Type 1s are misdiagnosed because they become diabetic as adults. If he isn't sure he might refer you for further tests.

I'm going back to the doctors in September.. they did say I was possibly type 1 but they wanted to try metformin and so treating as type 2...(confusing or what)..
I've had bloods bloods & more bloods, urine test after test I've even had a camera stuffed up me backside... (all in a good cause I suppose)...lol..
When I go back to docs hopefully ill know enough to get the answers i need..
Thank you for your he'll n advice...
 
Hi @nbenn , please do not leave it until September to make a start changing your diet. Order the packs of strips for your meter online and tick the box that asks if you are diabetic, that way you don't pay VAT and it is considerably cheaper than buying them in the High Street. I found keeping a food diary more of a bind than the testing, but both were essential for me to find out what my body can no longer tolerate. We are all different, so what one can eat in small doses another can not tolerate. If you use the meter as a tool to find out what is going on inside your body as a reaction to the food you have eaten then you will begin to see patterns. Berries are better than bananas as fruit for diabetics, usually things that grow above the ground are also fine, watch out for below ground vege and potatoes//pasta/bread cut out as far as possible. Be wary of anything that is labelled 'low fat', it often has sugar of various sorts added to make it palatable. When shopping you want to look for items that have less that 10g/100g carbs. It takes an age the first few weeks because you have to find and read the labels, but it does get quicker. Even reduced sugar items spiked my bg
Your body is used to the high levels at the moment so you may experience some side effects by reducing your carb intake, but these pass and you will feel healthier than before. By increasing your fat intake you stop feeling hungry, and your body changes to using that as fuel, it has not done that so much in the past because it takes effort and the body is economical. Leave the chocolate biscuits, buy a pack of the highest percentage chocolate that you can find, put it in the fridge and treat yourself to a square at a time. It really is sufficient for a chocolate 'hit'.
You are not alone in not understanding where the diagnosis came from, I almost had a row with my DN about what I was eating, how often I had dieted because I was marginally overweight but nowhere near obese, and my close family history does not have anyone with diabetes. The forum here has been so friendly and helpful with helping me to take back control of my body.
 
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