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Chance to give feedback about use of language regarding diabetes

Dark Horse

Dark Horse

Well-Known Member
Messages
1,840
Evidently Cochrane has published a blog article about the impact of language on people living with long-term conditions. https://www.evidentlycochrane.net/t...CrAWx2bWK1LTYbZ47HvqVKfgJRkMkquqirqCM0ypMpbQo

There is a chance to give feedback about your own experiences via Twitter. Here are the details-

"Cochrane UK is hosting a conversation on Twitter on Tuesday 22nd June at 20.00 BST on the use and misuse of language when talking about long-term conditions. Everyone is welcome to join in, as we discuss these questions:

  1. What language used to talk about a long-term condition do you find problematic and why?
  2. What alternatives do you prefer and why?
  3. What impact does language used, positive or negative, have on you?
  4. What can we do, individually and collectively, to change problematic language?
  5. What advice and guidance is there to help health professionals around language use?
Join in using the hashtag #LanguageMatters and tag @CochraneUK. We’ll also have a blog reflecting on the tweetchat."​
 
I am not on Twitter. Why do people insist on getting responses via twitter or Facebook? That, in itself, is exclusionary (if thats not a word, it should be!)
 
Antje77 said:
Their project, their choice.
If you want to join in, make a fake profile on twitter, join the conversation, and delete your twitter profile again.
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That is not the point. More and more those who, for various reasons, do not use some social media are excluded. It is a disturbing and unfair growing trend.
 
lucylocket61 said:
That is not the point. More and more those who, for various reasons, do not use some social media are excluded. It is a disturbing and unfair growing trend.
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It's your choice.. no doubt you have a way of accessing the internet as your presence here (another form of "social media") shows.
 
lucylocket61 said:
That is not the point. More and more those who, for various reasons, do not use some social media are excluded. It is a disturbing and unfair growing trend.
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I do somewhat agree with your sentiment. But I think the alternative is going back to small happenings in local libraries.
They both have their function, but I don't think it's possible to have every happening available on every possible platform in case people object to joining in on specific platforms.
 
Antje77 said:
I do somewhat agree with your sentiment. But I think the alternative is going back to small happenings in local libraries.
They both have their function, but I don't think it's possible to have every happening available on every possible platform in case people object to joining in on specific platforms.
Click to expand...
For some, not using social media is not a choice. More effort should be made to be inclusive. I resent the implication that people are objecting just to be awkward. There are many valid reasons why Twitter is not usable for some. Including the large percentage of us in Wales with almost unusable internet, for example. There is a lot of privilege talking on forums like these from the ones who have good internet access and the means to have their own internet connection.

I expect this post to be deleted, but I am not going to be silenced by the privileged ones who won't understand the constraints some are under, financial and technological. People like the ones mentioned in the original post should take that into consideration, otherwise the don't hear a well rounded set of views.
 
Folks. Please could we stick to discussing the topic in the OP. The inclusivity / method of input is not the main focus of the topic. Thanks.
 
I think they should stop saying ‘suffering from diabetes’ this makes me so angry! It’s very outdated.
 
I have T2 Diabetes, therefore I am a diabetic. [✓]

I have T2 Diabetics, therefore I am a diabetes. [X]

Makes sense to me, but there are a lot of people out there that have nfi.
 
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