Hi all, I've only just found this forum, for years I've been told by medical professionals RH is incredibly rare and my symptoms are almost "unheard of". Thankfully I'm now reading there's plenty of others out these just like me!
The question I have is, does anyone who has a grip on their RH have suggested resources; online, books, apps etc?
I've been through 8years of trial and error, when I get any consistency, something in my life changes (excersise, sleep, weight) and everything goes out of the window, I then find myself on the daily rollercoaster of just stuffing my face with carbs every few hours!
I've been LCHF for 2 months and haven't crashed once, but can't find the energy to sustain excersise (cycling) so desperate to re-intriduce carbs in a measured way.
Any help greatly appreciated.
I have 'Late Reactive Hypoglycaemia'
I have been more or less very low carb since diagnosis and my health is better in and around normal levels continually.
As mentioned above you have to avoid the trigger.
If you eat carbs, your insulin response is poor due to various reasons, that creates the trigger to produce a secondary insulin response, which is called an overshoot, this is the reason you go hypo.
The trick is being in control in normal levels. No carbs means no surge up in blood glucose levels, so no spike, no trigger, no overshoot, no hypo.
If you do want your health back, go Keto.
But, isn't there always? I have found that exercise is dependent on how much you can do without triggering a liver dump of glucose. This is your body's natural reaction to get glucose to continue exercise. But the last thing you need is going hypo after extensive exercise. I have found walking, swimming and a normal work day is enough for me, I fast till the afternoon and eat a Keto meal and finish before seven p.m. because I make sure that my levels are good going to bed.
I am on a drug called Januvia, or sitagliptin, it has been used to have an effect on the first insulin response, which lowers the risk of Hypoglycaemia because if your balance of dietary intake is low enough, then there is less risk of developing the problems you are having, but it is not a cure. I have been a guinea pig in using the drug to get better control. The test was an eOGTT and even though the high spike wasn't there, I still went hypo.
I can imagine your day starts with porridge or cereal, toast, coffee and tea with semi skimmed milk, and of course this is the recommended NHS guidelines, this healthy food is fine for someone who hasn't got a rare condition such as RH.
With RH, the healthy dietary advice is avoid those so called healthy foods because they are not healthy for me and others who have the condition.
Carbs, any carbs will make you ill.
Please, read some of the threads, most doctors and some endocrinologists, don't understand the condition and don't understand the significance of avoiding carbs..
RH is a dietary driven condition, and if it was something like an allergy, the doctors would tell you to not eat what you are allergic to.
Keep safe, keep asking and welcome to the forum.
