Thank you.The online opt out is on this age
https://digital.nhs.uk/data-and-inf...ice-data-for-planning-and-research#opting-out
And then click on this bit where it says "national data opt-out" which is the online part.
View attachment 49953
Thank you.The online opt out is on this age
https://digital.nhs.uk/data-and-inf...ice-data-for-planning-and-research#opting-out
And then click on this bit where it says "national data opt-out" which is the online part.
View attachment 49953
Yes (so far).Not sure if it's already been asked but is this just applicable to NHS England data?
Just rang my surgery, and the receptionist has no idea what I am talking about and thinks it must be the emergency database that is already set up and in use. This is the one A&E access in ER to get limited access to your data in the event of an incident. Apparently, this database cannot be opted out of, and all practices in the UK should be uploading your records on a regular basis. New patients signing onto NHS do have the option of opting out when they first use the practice,
Apparently, this was started about 5 or 6 years ago and was a dry run for the new database, which will it seems to suck all this data up anyhow when it is merged. Pandora's box is already open.
I think we should.. t-bones all round?
Data that can be deanonymised falling into the hands of companies like Facebook.What exactly is everyone afraid of?
Can you give an example of how it might actually be used though?Data that can be deanonymised falling into the hands of companies like Facebook.
but the data is mine to share, it’s private medical data that is used for me and me alone. I have no interest in it’s usage for commercial mining. That’s my reason.
I don’t care how it might be used. If you want to share yours, go for it. But we all have a choice, my choice is no. Once it’s shared, that data is shared foreverCan you give an example of how it might actually be used though?
That doesn't really answer my question. I am not saying sharing data is a good idea but I was hoping to get some suggestions as to how the data might be used to my detriment. Everyone seems to talk about vague concepts of privacy without giving any examples.I don’t care how it might be used. If you want to share yours, go for it. But we all have a choice, my choice is no. Once it’s shared, that data is shared forever
It’s mine and I don’t want it shared plus I have no faith that it will remain anonymous. It is clearly stated it can be reversed. Given how much hacking happens daily, it’s not hard to believe that’s not a risk. If it is purely for research, why can it be reversed?
Again, it’s all about choices and the choice was made deliberately hard to know about. That doesn’t engender trust does it?