Hello fellow diabetics,
I wonder If I could pick your brains. Eight years ago at aged 42 I was diagnosed with Type 1. This in itself is a unusual as I had already sought help for Diabetic retinopathy before even being diagnosed!. I don't carry any antibodies associated with Type 1, I am producing insulin myself which is making insulin delivery very difficult and hypo's very common. I inject 12 units of Levimer a day and generally about 3 or 4 units of fast acting at each meal, I have again been told this is a very small amount. I asked for some genetic testing to determine whether I have another form of diabetes or indeed another condition causing diabetes. I was seen by a genetics expert who requested some bloods at the start of this year, I have just recently received correspondence form his office that he has retired and that the person taking over his position had talked to the diabetic team at the hospital and have decided without testing that I am type 1 and no testing will be done. My team are aware how much I struggle as I cannot tell how much insulin my body is producing and I tackle hypo's frequently, My Ophthalmologist at the hospital has never come across someone like myself who devolved symptoms of diabetes before diagnoses. I was registered as sight impaired in 2015, Two years after diagnosis. I was just asking for some advice from anyone who has experienced the same. Thanks
I wonder If I could pick your brains. Eight years ago at aged 42 I was diagnosed with Type 1. This in itself is a unusual as I had already sought help for Diabetic retinopathy before even being diagnosed!. I don't carry any antibodies associated with Type 1, I am producing insulin myself which is making insulin delivery very difficult and hypo's very common. I inject 12 units of Levimer a day and generally about 3 or 4 units of fast acting at each meal, I have again been told this is a very small amount. I asked for some genetic testing to determine whether I have another form of diabetes or indeed another condition causing diabetes. I was seen by a genetics expert who requested some bloods at the start of this year, I have just recently received correspondence form his office that he has retired and that the person taking over his position had talked to the diabetic team at the hospital and have decided without testing that I am type 1 and no testing will be done. My team are aware how much I struggle as I cannot tell how much insulin my body is producing and I tackle hypo's frequently, My Ophthalmologist at the hospital has never come across someone like myself who devolved symptoms of diabetes before diagnoses. I was registered as sight impaired in 2015, Two years after diagnosis. I was just asking for some advice from anyone who has experienced the same. Thanks