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all is not well

I wouldn't really want o sit up in bed in hospital with a peaked ca p. Some people would just l augh.So sunglasses maybe. And if somebody says anything. Just say 'Its all the fans really'. Good luck.
 
And in the end just a bit of humour will maybe let you forget about everything, peack ed cap, sunglasses
Whatever,
Just surrender yourself to their care. Xxx xxxxx
 
lucylocket61 said:
I have been quiet for a while, as all is not well mentally and physically. At the beginning of October I got covid, then I got pneumonia, which I am still recovering from. It took two courses of antibiotics to stop the infection. On top of that, covid has left me with a very dry mouth, making eating or swallowing food very difficult. This was also why my salivary gland was swelling, apparently is a covid thing too. My taste buds are doing weird things, making some things bitter, some very salty, some too strong to bear. I am basically living on full fat milk, and trying to keep my daily carbs to under 100 - which is not easy.

In the midst of this I had some worrying blood test results and am being investigated for ovarian cancer and/or lung cancer, based on some of the x-rays, and an ultrasound scan. I am having a CT scan of my abdomen on Monday and see the respiratory consultant on Tuesday.

I dont know how people bear the wait, and fear, and worry while investigations are going on, let alone if the diagnosis is cancer. I am a mass of nerves, along with coughing and not being able to eat. If anyone has ideas on how to cope with this process of investigation, I welcome them.

I am sorry, but I dont have the reserves to help other just now, but I feel sure you understand why.
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Hi there know exactly what you mean about covid affecting taste buds, and the salty/bitter thing, plus loss of smell at some stage with me. My saviour then was having a hot Bovril drink, which really didn't taste as salty as expected, but the fact I could taste it was wonderful. Covid also knocked out my good habits re low carbs. Getting back to normal slowly and the fatigue does improve I have found. As for coping with the stress of waiting for your scans and results, fingers crossed they are negative for any nasties, I have found my chair yoga classes and online YouTube exercise programmes an absolute god send. Even during lockdowns, they were perfect. There are various instructors on YouTube and for general exercise at home, without fancy equipment, the people at Be Mobile Physiotherapy (based in Australia) have been super during the pandemic and since. Good luck.
 
lucylocket61 said:
I have been quiet for a while, as all is not well mentally and physically. At the beginning of October I got covid, then I got pneumonia, which I am still recovering from. It took two courses of antibiotics to stop the infection. On top of that, covid has left me with a very dry mouth, making eating or swallowing food very difficult. This was also why my salivary gland was swelling, apparently is a covid thing too. My taste buds are doing weird things, making some things bitter, some very salty, some too strong to bear. I am basically living on full fat milk, and trying to keep my daily carbs to under 100 - which is not easy.

In the midst of this I had some worrying blood test results and am being investigated for ovarian cancer and/or lung cancer, based on some of the x-rays, and an ultrasound scan. I am having a CT scan of my abdomen on Monday and see the respiratory consultant on Tuesday.

I dont know how people bear the wait, and fear, and worry while investigations are going on, let alone if the diagnosis is cancer. I am a mass of nerves, along with coughing and not being able to eat. If anyone has ideas on how to cope with this process of investigation, I welcome them.

I am sorry, but I dont have the reserves to help other just now, but I feel sure you understand why.
Click to expand...
The wait for a cancer diagnosis is horrendous. It’s the worst of it. Once you’ve been told, if you are told, that you have it, you begin to settle down and come to accept that it is what it is and there is nothing you can do about it except wake up every day pleased that you have woken up. If you have people who care about you, it helps. If you are clear or given a positive prognosis, resolve to be thankful for every minute. You are not alone, there are a lot of us who have been in your position so good to reach out for help. Big hugs and hope all goes well for you.
 
Just catching up. Thank you for all your messages. I can breathe much, much better now. It's amazed me to look back and realised how ill I was. I am not as tired now either, which helps too. I am halfway through the drainage. 3.5 litres drained so far. Your support is helping. I think I underestimated how much illness affects my mental health. XXX
 
lucylocket61 said:
Just catching up. Thank you for all your messages. I can breathe much, much better now. It's amazed me to look back and realised how ill I was. I am not as tired now either, which helps too. I am halfway through the drainage. 3.5 litres drained so far. Your support is helping. I think I underestimated how much illness affects my mental health. XXX
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Oh my, Lucy, what a drain (sorry, but it was apposite) all of that fluid will have been on you. You must have been working so hard just to get from one hour to the next.

They are obviously making a real difference. Don't fight being there. Take whatever help you can.

Whilst your husband and son will likely be missing you badly, it won't do them any harm to realise what a good egg you are in all that you do for them both.
 
With all that fluid on your lungs, your Oxygen sats must have been well down. This would account for the tiredness. just think 6 litres of fluid is about 12lb of instant weight loss. Every cloud eh!
I'm so glad things are improving for you. It probably won't happen but if you keep dropping hints about your CT scan it's not impossible that they can push it forward whilst you are in hospital.
 
ajbod said:
With all that fluid on your lungs, your Oxygen sats must have been well down. This would account for the tiredness. just think 6 litres of fluid is about 12lb of instant weight loss. Every cloud eh!
I'm so glad things are improving for you. It probably won't happen but if you keep dropping hints about your CT scan it's not impossible that they can push it forward whilst you are in hospital.
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They were planning on doing the CT scan today, but I can't lie flat enough to breathe yet. The hospital are going to do it as soon as I can breathe enough.
 
Good to hear you are improving lucylocket61 and starting to feel much better in yourself. Yes illness has a lot to answer for in every way with our health and mental health and isn't it strange how we don't accept how ill we are until we start on the recovery road. Hope that drain isn't too uncomfortable, big hugs sent.
Pleased to hear they are looking after you well and that you are getting some much deserved rest and that you are able to get online.

Thinking of you and praying that the scans go well (((hugs)))
 
Hi Lucy- so good to hear that you can breath better now. That will help you feel better. It's a testament to your strength of character that it got so bad and you still carried on. I can't even imagine that much fluid on my lungs.

I'm also glad you have internet- that will help fill in time while you are recovering.

Best wishes for your continued improvement and praying that the scans go well.
 
God bless you Lucy , my wife is going through exactly the same at the moment , she has had so many scans and biopsy we have lost count , but I have always been allowed in with her and on one occasion I thought she was going to pass out , but on every occasion we have walked out and she has said " That wasn't as bad as I thought is was going to be " so chin up think positive and you will defeat this awful disease .
 
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