Are there any type 1 diabetics here in remission?

[Billy Barroo]

Ostracised by the medical community, Dr Csaba Tóth insists the paleo keto diet is a groundbreaking diabetes treatment - Diabetes

“We can’t deny the paleolithic ketogenic diet and we can’t deny scientific fact.” – Dr Csaba Tóth. Hungarian physician Dr Csaba Tóth has been ostracised by the medical community. His research into the paleolithic ketogenic diet as a diabetes treatment is controversial in some circles. But his...

www.diabetes.co.uk

 

[Brunneria]

Paleomedicina doctors "are" shouting the news across the internet and at every carnivore and diabetes conference. Type in Zsofia Clemens and Csaba Toth on YouTube and Google.

Fast forward to the 1 hour 16 minute mark and listen to what Dr. Zsófia Clemens, a neurobiologist and clinical researcher specialising in nutrition, nutritional therapy and brain research has to say about putting type 1 diabetes into remission. They're still trying to cover it up.

Two case studies, with no follow up, is not going to get them very far - which is perfectly understandable.
They need more cases, and long term results, if they hope to achieve a sea change in diabetes management.
If, as you say, their protocol is so successful, then I find it astonishing that they have only got the two short case studies as examples, yet that is all their website shows.

 

[Billy Barroo]

Two case studies, with no follow up, is not going to get them very far - which is perfectly understandable.
They need more cases, and long term results, if they hope to achieve a sea change in diabetes management.
If, as you say, their protocol is so successful, then I find it astonishing that they have only got the two short case studies as examples, yet that is all their website shows.

Like Zsofia Clemens said, there's a backlash against case studies, it's the fault of the publication system they won't publish it. They wont publish anything about a full recovery or remission, this is how the publication system works. They'll publish animal studies but not humans. Doctor Anthony Chaffee said keep getting the word out and have people keep on doing this. we really can't ignore it anymore. That's what I'm doing.....getting the word out. It worked for me. Did you watch the video from the 1 hour 16 minute mark?

 

[Brunneria]

Did you watch the video from the 1 hour 16 minute mark?

No. I am afraid that I no am no longer interested in following conspiracy theories down the rabbit hole.

I will read any published studies though, if you can provide the links.

 

[AndBreathe]

Like Zsofia Clemens said, there's a backlash against case studies, it's the fault of the publication system they won't publish it. They wont publish anything about a full recovery or remission, this is how the publication system works. They'll publish animal studies but not humans. Doctor Anthony Chaffee said keep getting the word out and have people keep on doing this. we really can't ignore it anymore. That's what I'm doing.....getting the word out. It worked for me. Did you watch the video from the 1 hour 16 minute mark?

With respect, that you spurn the medical world and avoid contact is not doing your case any favours. Surely the way forward is to prove your case, but testing, providing you with factual data. That is the way to legitimise your standing.

There will always be outliers in medicine - like those fortunate folks who find their cancer spontaneously withers away. Black swan events - call them what you will, but if word of mouth were good enough the Loch Ness monster and the Yeti would be more universally accepted. Saying it is so doesn't necessarily make it so.

 

[oldgreymare]

Yes I do keep an emergency supply of insulin, both basal and bolus. I have 2 high saturated animal fat, medium protein, zero carb meals a day, I test my blood sugars 4 times a day. There are so many type I diabetics out there that I still keep in contact with that are still in remission and have been for years. I don't need carbs, I get all I need through the gluconeogenesis pathway.

Only observation from my personal experience, is in 15 years since diagnosis I've become acquainted with only a handful of adult Type 1s worldwide and most of these were through my DAFNE course. I have never met any Type 1 outside LADA individuals that can exist medium term without insulin. As above, if you're a very rare exception, I'm really pleased for you, but kindly be cautious about suggesting that you have discovered a universal magic bullet for a complex autoimmune disease.

 

[Billy Barroo]

"Patients with type 1 diabetes who entered remission at the beginning of the disease, despite its ending, have higher insulin sensitivity at 7 years after diagnosis of diabetes than nonremitters."

https://www.liebertpub.com/doi/10.1089/dia.2019.0473

 

[Billy Barroo]

Only observation from my personal experience, is in 15 years since diagnosis I've become acquainted with only a handful of adult Type 1s worldwide and most of these were through my DAFNE course. I have never met any Type 1 outside LADA individuals that can exist medium term without insulin. As above, if you're a very rare exception, I'm really pleased for you, but kindly be cautious about suggesting that you have discovered a universal magic bullet for a complex autoimmune disease.

I didn't discover a universal magic bullet, the credit goes to Paleomedicina and their Paleo Ketogenic Diet. They specialise in autoimmune diseases.

 

[Jaylee]

Like Zsofia Clemens said, there's a backlash against case studies, it's the fault of the publication system they won't publish it. They wont publish anything about a full recovery or remission, this is how the publication system works. They'll publish animal studies but not humans. Doctor Anthony Chaffee said keep getting the word out and have people keep on doing this. we really can't ignore it anymore. That's what I'm doing.....getting the word out. It worked for me. Did you watch the video from the 1 hour 16 minute mark?

Hi Billy,

I’ve seen the video. & remember the transcript you quote.

Before you start your support in this “message.” You need to enquire regarding your actual diagnosis…
Ditching exogenous insulin in favour of your way of eating. There seems to be more successful accounts in the mainstream with type 2s.

I’m going to offer you my best wishes. But if I were in your position, I’d be asking (& doing more tests on.) was this actually autoimmune on diagnosis. Or an undetected metabolic issue regarding insulin resistance, possibly climaxing with DKA?

 

[MrsA2]

The thread title is "

Are there any type 1 diabetics here in remission?"​

No one other than Billy has responded in the affirmative . So I'm taking the answer as No.

 

[oldgreymare]

I did manage to find this case study which also includes a brief literature review re T1 remission . At least partial remission after initial insulin treatment (I.e., LADA honeymoon) is apparently fairly common, complete remission is very much rarer, but has been documented -

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report​

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report - PMC

Type 1 diabetes mellitus (T1DM) is an autoimmune condition that results in low plasma insulin levels by destruction of beta cells of the pancreas. As part of the natural progression of this disease, some patients regain beta cell activity ...

www.ncbi.nlm.nih.gov

 

[Billy Barroo]

The thread title is "

Are there any type 1 diabetics here in remission?"​

No one other than Billy has responded in the affirmative . So I'm taking the answer as No.

There have been responses in the past over the years on the Diabetes Forums but they are no longer posting, because of the backlash they received from other members. They don't seem to hang around for very long with all the negative remarks, misleading and false information they received and the unwanted advice that they never asked for. So the answer is "YES." I'll be hanging around though, unless my threads and posts are deleted and I'm silenced for telling the truth about the fact that many Type 1 diabetics are still in remission. Repeat a lie often enough saying type one's can not go into remission and people will start believing it, Oh hold on they already are believing it. The propaganda is still strong on these forums.

 

[Billy Barroo]

Hi Billy,

I’ve seen the video. & remember the transcript you quote.

Before you start your support in this “message.” You need to enquire regarding your actual diagnosis…
Ditching exogenous insulin in favour of your way of eating. There seems to be more successful accounts in the mainstream with type 2s.

I’m going to offer you my best wishes. But if I were in your position, I’d be asking (& doing more tests on.) was this actually autoimmune on diagnosis. Or an undetected metabolic issue regarding insulin resistance, possibly climaxing with DKA?

I've been diagnosed several times by my diabetic consultant and diabetic team confirming that I'm type1 as you already know this. Type one is an autoimmune disease. The therapeutic protocol of Paleomedicina specialises in treating autoimmune diseases With its paleolithic ketogenic diet.This diet is the only diet that has put me put me into remission, NOT the low carb/keto diet. If I go back, even to low carb I have to start injecting again. This is why I "PERSONALLY" support and follow this way of eating. I do agree with you though there seems to be more successful accounts in the mainstream with type 2s........and I can also understand that some folk couldn't follow this way of eating for any length of time,, or even want to. I've ditched exogenous insulin because I no longer require to take any at this present time.

https://www.google.com/url?esrc=s&q...IQFnoECAoQAg&usg=AOvVaw1XvL3yE8dd198dOjmDZuR4​

 

[AndBreathe]

There have been responses in the past over the years on the Diabetes Forums but they are no longer posting, because of the backlash they received from other members. They don't seem to hang around for very long with all the negative remarks, misleading and false information they received and the unwanted advice that they never asked for. So the answer is "YES." I'll be hanging around though, unless my threads and posts are deleted and I'm silenced for telling the truth about the fact that many Type 1 diabetics are still in remission. Repeat a lie often enough saying type one's can not go into remission and people will start believing it, Oh hold on they already are believing it. The propaganda is still strong on these forums.

I am assuming you are assuming they push off ".... because of the backlash they received from other members. They don't seem to hang around for very long with all the negative remarks, misleading and false information they received and the unwanted advice that they never asked for....."

Some might assume that either they are living happily ever after, without insulin or metabolic challenges, and others might assume their "remissions" came to an end one way or another. The reasons for their remissions ending could be needing insulin again, a modified diagnosis, death or even they fell off their dietary wagon.

Have you found any other threads on this forum discussing remission for T1s, with folks living their best remission? I only ask that specifically because this is considered one of the largest diabetes fora in the world.

 

[Billy Barroo]

I did manage to find this case study which also includes a brief literature review re T1 remission . At least partial remission after initial insulin treatment (I.e., LADA honeymoon) is apparently fairly common, complete remission is very much rarer, but has been documented -

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report​

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report - PMC

Type 1 diabetes mellitus (T1DM) is an autoimmune condition that results in low plasma insulin levels by destruction of beta cells of the pancreas. As part of the natural progression of this disease, some patients regain beta cell activity ...

www.ncbi.nlm.nih.gov

I'm at the moment in "complete" remission, "not partial". I'm no longer taking any form of diabetes medication.

 

[AndBreathe]

I've been diagnosed several times by my diabetic consultant and diabetic team confirming that I'm type1 as you already know this. Type one is an autoimmune disease. The therapeutic protocol of Paleomedicina specialises in treating autoimmune diseases With its paleolithic ketogenic diet.This diet is the only diet that has put me put me into remission, NOT the low carb/keto diet. If I go back, even to low carb I have to start injecting again. This is why I "PERSONALLY" support and follow this way of eating. I do agree with you though there seems to be more successful accounts in the mainstream with type 2s........and I can also understand that some folk couldn't follow this way of eating for any length of time,, or even want to. I've ditched exogenous insulin because I no longer require to take any at this present time.

https://www.google.com/url?esrc=s&q=&rct=j&sa=U&url=https://www.paleomedicina.com/en/paleomedicina_hungary_%20therapeutic_protocol&ved=2ahUKEwiDjsfk5NX7AhXYg1wKHdDlAGIQFnoECAoQAg&usg=AOvVaw1XvL3yE8dd198dOjmDZuR4​

Have you submitted to the tests outlined in the programme you link to?

I'd be curious to know the full cost of the 2 week programme, bearing in mind ".... Total fee of the 7-day clinical program (of which €2,500 is refundable if canceled in time)....".

Have you engaged with any of the UK medics who live LC or keto lifestyles?

 

[Billy Barroo]

I am assuming you are assuming they push off ".... because of the backlash they received from other members. They don't seem to hang around for very long with all the negative remarks, misleading and false information they received and the unwanted advice that they never asked for....."

Some might assume that either they are living happily ever after, without insulin or metabolic challenges, and others might assume their "remissions" came to an end one way or another. The reasons for their remissions ending could be needing insulin again, a modified diagnosis, death or even they fell off their dietary wagon.

Have you found any other threads on this forum discussing remission for T1s, with folks living their best remission? I only ask that specifically because this is considered one of the largest diabetes fora in the world.

I've had a lot of feed back by the way of private messages, which I'm keeping private. Your assumptions are correct about the push off and the backlash. I reckon the majority of them, both type 1's and type 2's realise their time in remission will not last for ever.........but that's just me assuming, which means absolutely nothing. The remission period can last for days or years, we're all different.

 

[Rokaab]

I'm at the moment in "complete" remission, "not partial". I'm no longer taking any form of diabetes medication.

I think a lot of the scepticism is coming from the fact you've said you're T1, but you are mostly quoting HbA1C numbers - which say absolutely nothing about your type, there was one C-Peptide mentioned which as far as I can tell wasn't in the T1 range anyway (though I could be wrong) and have not answered questions about any other tests that would help confirm your type (for example antibody tests, or even the mody tests - mody is often confused for T1 I think), so people are not convinced.

Maybe you just have a very rare gene that allows this to work you (and the two cases studies you have linked), and its very cool that its working for you, but I suspect for many T1's especially the ones who are younger, its just not going to work like that

 

[Billy Barroo]

Have you submitted to the tests outlined in the programme you link to?

I'd be curious to know the full cost of the 2 week programme, bearing in mind ".... Total fee of the 7-day clinical program (of which €2,500 is refundable if canceled in time)....".

Have you engaged with any of the UK medics who live LC or keto lifestyles?

I can't afford the paleomedicina tests or private UK medics fees. I became a member of the PKD group to find out all the information that I needed, including,the 2 week clinical program and the follow ups. Anyone can find this information out, it's there for all to see. I was tested at the Queen's Medical Centre, Nottingham, a period from the end of December 2019 till the 3rd March 2020.

 

[Oldvatr]

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report - PMC

Type 1 diabetes mellitus (T1DM) is an autoimmune condition that results in low plasma insulin levels by destruction of beta cells of the pancreas. As part of the natural progression of this disease, some patients regain beta cell activity ...

www.ncbi.nlm.nih.gov

Low carb diet leads to "clinical remission" in three case studies of adults with type 1 diabetes

Following a low carb, high fat diet shortly after being diagnosed with…

www.diabetes.co.uk

Edit. Since reading this article it has since been blocked

https://edm.bioscientifica.com/view/journals/edm/2014/1/EDM14-0072.xmlhttps://www.researchgate.net/publication/348592373_Complete_Remission_in_Newly_Diagnosed_Type_1_Diabetes_Mellitus_Patient

Edit on Edit above Its been moved
https://www.researchgate.net/public...ly_Diagnosed_Type_1_Diabetes_Mellitus_Patient

There are other reports but from dubious sources. I did not see Paleo or carnivore mentioned in any of the above, but I was speedreading.