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Desparate

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What am I going to do?
I'm endentulous and still in alot of pain despite it being 16 months since the surgery to remove them all. More than 20 all at once awake.
I've been drinking nutritional drinks and soup but barely testing as I feel I can't do anything anyway. So I've discovered now that the nutritional drink are making my Bs very high even with insulin.
What am I going to ?
I can't drink fruit juice It would likely be just as bad. I've had my gums checked 3 times they don't see anything wrong. But I can only drink things.
I had to reduce the soup amounts due to high BP.
And now the drinks I guess .
What do I drink?
 
I tried the diabetes version of the nutritional drinks and get the runs immediately as well as the same high bs.
 
cdpm said:
What am I going to do?
I'm endentulous and still in alot of pain despite it being 16 months since the surgery to remove them all. More than 20 all at once awake.
I've been drinking nutritional drinks and soup but barely testing as I feel I can't do anything anyway. So I've discovered now that the nutritional drink are making my Bs very high even with insulin.
What am I going to ?
I can't drink fruit juice It would likely be just as bad. I've had my gums checked 3 times they don't see anything wrong. But I can only drink things.
I had to reduce the soup amounts due to high BP.
And now the drinks I guess .
What do I drink?
Click to expand...
Who checked the gums? The dentist of the surgeon? And did they make an x-ray of your upper and lower jaws to check for bone splinters and the like? Did they do absolutely everything they could do, otherwise it's time to get a referral to a specialist. You shouldn't be made to live like this.

I think it'd help if you could try soft stuff like scrambled eggs, but I'm guessing that's still a no-go. :(
Thinking of you,
Jo
 
What insulin are you taking?
How do you calculate your dose?
If my levels are high after eating, I take more insulin to bring my levels down. Is this possible for you?
 
JoKalsbeek said:
Who checked the gums? The dentist of the surgeon? And did they make an x-ray of your upper and lower jaws to check for bone splinters and the like? Did they do absolutely everything they could do, otherwise it's time to get a referral to a specialist. You shouldn't be made to live like this.

I think it'd help if you could try soft stuff like scrambled eggs, but I'm guessing that's still a no-go. :(
Thinking of you,
Jo
Click to expand...
Checked twice by the surgeon and around 6 months later by my dentist. And between them they pulled out 3 bone fragments.
They only just checked the gums.
No other checks. No x-rays nothing. Mainly due to insurance reasons. They only get paid a tiny fraction of what they charge.
Or maybe even nothing.
 
cdpm said:
Checked twice by the surgeon and around 6 months later by my dentist. And between them they pulled out 3 bone fragments.
They only just checked the gums.
No other checks. No x-rays nothing. Mainly due to insurance reasons. They only get paid a tiny fraction of what they charge.
Or maybe even nothing.
Click to expand...
That sounds quite horrible. I'm so sorry.
 
In Response said:
What insulin are you taking?
How do you calculate your dose?
If my levels are high after eating, I take more insulin to bring my levels down. Is this possible for you?
Click to expand...
I'm using trurapi. The biosimilar for novo rapid.
I have a ratio of 1 to 3.
Yes I can use more. I'm afraid to because my specialist just told me to reduce my basal due to weight concerns and the basal causing extreme hunger.
And my a1c is good. But doesn't match my other numbers.
What will he say when I tell him I increased the rapid?
He doesnt seem to want me to get better.
 
Perhaps the dysphagia Cookbook would be of interest. Available on Amazon and other sources. In the UK there are food outlets that sell prepared meals for Dysphagia patients at different levels of smoothness and the one we used would deliver to the door and put the frozen meals into the freezer for you. They are only UK, but you may find a similar service in Canada? Ask the Speech and Language team at your local hospital if they have any guidance since health poviders also need to address this issue for inpatients.
 
Oldvatr said:
Perhaps the dysphagia Cookbook would be of interest. Available on Amazon and other sources. In the UK there are food outlets that sell prepared meals for Dysphagia patients at different levels of smoothness and the one we used would deliver to the door and put the frozen meals into the freezer for you. They are only UK, but you may find a similar service in Canada? Ask the Speech and Language team at your local hospital if they have any guidance since health poviders also need to address this issue for inpatients.
Click to expand...

Edit to add: Your local care homes may be another information source since they probably deal with people with no teeth or broken dentures.
 
So I just called my pharmacy and their suggestion was first cut out all sugars all refined carbs. Then cut out all carbs. Then if that doesn't work contact my prescriber about insulin adjustments.
I didn't want to say I've done all that as the guy was very helpful.
I did say that I rely on the nutritional drinks with no teeth and he suggested premier protein drinks.
I've seen them and tried them. They are good. I can't order any right now as have to go away and no one will be able to get the delivery for me. If they didn't go up out of my price range that is.
So I just need to try to get thru until then which is mid Sept.
That's a long time on water.
 
Oldvatr said:
Edit to add: Your local care homes may be another information source since they probably deal with people with no teeth or broken dentures.
Click to expand...
I will look into a dysphagia cookbook. I might be able to borrow one from my family's kindle app.
 
I looked into the cost of the protein premier drinks. Ya. Not an option there. I'd only be able to have 1 a day but nothing else .
That's not enough for the day.
Very sad.
 
Any food can be puréed smooth and you can buy moulds to make them into shapes to make it look more appealing. My dad was on level 4 because he had dementia and lost his swallow and he used to get these meals in his care home - even steak! This may be worth a try and you can get the moulds from Amazon
 
So I've been having fruit juices and a bit of soup and spitting out the pieces.
Not able to buy much for a few dollars a day.
But I decided to drop my feet off at my Dr's office in a few years.
 
Hopeful34 said:
Have you tried @lovinglife suggestion and pureed some food you really like, in order to have a more varied diet, that won't spike your blood sugar like fruit juice will?
Click to expand...
Yes
And unable to physically tolerate the foods that don't bother my blood sugar. There is insulin that helps me but my Dr only wants to use the newer insulins and now the biosimilars. And he only uses my a1c for treatment decisions despite my evidence of everyday numbers radically different then the a1c.
I've done everything I can to the best of my knowledge, my ability and my finances.
 
cdpm said:
Yes
And unable to physically tolerate the foods that don't bother my blood sugar. There is insulin that helps me but my Dr only wants to use the newer insulins and now the biosimilars. And he only uses my a1c for treatment decisions despite my evidence of everyday numbers radically different then the a1c.
I've done everything I can to the best of my knowledge, my ability and my finances.
Click to expand...
What foods can you tolerate? (By that do you mean like?) Maybe we can help work out how to get it in a form/texture you can cope with.

Meats, fish, dairy, non starchy veg, eggs are all thing that won’t raise blood glucose levels much. Many smooth soups and blended stew type meals could be made from these. The pharmacist gave good advice about lowering carbs and sugars and these are still present in your current diet in high amounts by the sounds of it . The liquid meals will probably be high carb if they are spiking your levels a lot and fruit juice is pretty much liquid sugar

Do you have any other options if your dr refuses to investigate your pain further? Another dr? Having someone else come with you to the drs to advocate for you? Asking the insurance company for an advocate (I’m in the uk so no experience of such but I’ve seen other talk about these things a little)
 
HSSS said:
What foods can you tolerate? (By that do you mean like?) Maybe we can help work out how to get it in a form/texture you can cope with.

Meats, fish, dairy, non starchy veg, eggs are all thing that won’t raise blood glucose levels much. Many smooth soups and blended stew type meals could be made from these. The pharmacist gave good advice about lowering carbs and sugars and these are still present in your current diet in high amounts by the sounds of it . The liquid meals will probably be high carb if they are spiking your levels a lot and fruit juice is pretty much liquid sugar

Do you have any other options if your dr refuses to investigate your pain further? Another dr? Having someone else come with you to the drs to advocate for you? Asking the insurance company for an advocate (I’m in the uk so no experience of such but I’ve seen other talk about these things a little)
Click to expand...
Tolerate for me in this situation means-- no vomiting no diareah .
Dislikes are mainly just fish and chicken.
Intolerance I have are--
Beef, pork ,most milk and its products , cheese.
Blood sugar raising foods for me are coffee, sweeteners, grains, potatoes, fruits, all sweets, several vegetables.( including boost and ensure).

Leaving me--
A few vegetables I can insulin for. Peanut butter ( no insulin).
A few soups that I can insulin for.
I can tolerate canned chili and canned beefaroni with insulin.
I can eat scrambled eggs no insulin. These choices are a little sore for me but not horribly.
Basically anything touching my mouth inside hurts but not liquids. I think this is because they go past very quickly whereas even the pureed food gets moved around . I can eat raspberries with insulin.

My appts. are by phone as the Dr I finally found after many years is nearly a days drive away from me. My city is very isolated.
We sometimes don't even get some products shipped.
So I'm not sure about advocacy because my family is far far from diabetes food beliefs of foods raising blood sugar so there's no support in that way. Meaning they believe you should be able to eat nearly any food no meds. if it's "HEALTHY" but alot of us have found this to be untrue.

For the pain I was eating a popsicle after every meal until my bs just stayed too high(11-16). At the present I have no idea of my numbers as it's absolutely distressing to see them when I cannot change them.

So the food I have available now until I can shop in Sept next are--
Smooth pb, some soups, a few beefaronis.
 
A list of foods I wish I could work in to eat--

Pizza slices
Sub sandwiches
Egg salad
Chickpeas
Spaghetti and sauce
Meatloaf
Shepherds pie
Tortoire pie (spelled wrong?)
Egg and cheese and round flat breakfast sausages on English muffins
Lettuce tomato salad with a dressing maybe ranch

(Yes these may not be the healthiest but neither is the very salty soup I have to eat plus it includes some of my intolerances)

I guess we are still allowed to dream. Diabetes can't take these from us.
 
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