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I am bleeping furious

drahawkins_1973 said:
Sorry this is going to be a bit of a long rant but needed to get it off my chest.

I have been having problems with my levemir as it no longer lasts the full 24 hours. I cant split it because I'm quite sensitive and the overlap gives my hypos.
I have ben managing this by given myself some quick acting novapaid to cover the shortfall which although doesn't solve the problem it is a solution of sorts. I dont really like having to keep give my self correction doses all the time to bring my suagrs downand would obvisouly prefer my basal to do its job.

So I made an appointment with my GP who arranged a consultation with the new diabetic nurse to discuss changing from levemir to another long acting. I;v just come back from the meeting and I'm really really peed off. He basically said I dont need to change my levemir as what I am doing is fine. So I said well it isn't as I'm using my bolus insulin to do the job becuase my basal is not working. He sdia well just dont use the quick acting to correct. And I said but then my sugars will be at 9-10 before bed and with dreaded DP about 10-12 in the morning and he said that was ok!!!!! So for 9-10 hours a day my DSN is happy with me be 9-13!!!

So they refised to give me any different basal.

I have asked to see the consultant as I am not happy with this.

Am I being pedantic?
Andrea
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That is quite frankly bloody appalling and i would be lodging a compliant with the surgery in that the GP seems to be completely unaware of current NHS guidelines in this area and is giving contradictory advice that may lead to long term complications. How many other people has he possibly mis advised?

I'm currently contemplating a complaint against my surgery. I've had about ten phone calls this week to try adn sort my change in prescriptions for the new pump, only to log onto the system this evening to find yet another f@ck up. Every type of test strip I've had before has been prscribed as 6 x 50 strips per month in agreement with the docs to cover driving and exercise. What do I find? 4 x 50 - I am bloody livid
 
ElyDave said:
That is quite frankly bloody appalling and i would be lodging a compliant with the surgery in that the GP seems to be completely unaware of current NHS guidelines in this area and is giving contradictory advice that may lead to long term complications. How many other people has he possibly mis advised?

I'm currently contemplating a complaint against my surgery. I've had about ten phone calls this week to try adn sort my change in prescriptions for the new pump, only to log onto the system this evening to find yet another f@ck up. Every type of test strip I've had before has been prscribed as 6 x 50 strips per month in agreement with the docs to cover driving and exercise. What do I find? 4 x 50 - I am bloody livid
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It's **** isn't it. The more you try and help yourself the more grief you seem to get!!


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Steady and persistent argument with demonstrable figures and proven arguments and you will win out in the end , keep us posted please.
 
Clivethedrive said:
Steady and persistent argument with demonstrable figures and proven arguments and you will win out in the end , keep us posted please.
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In preparation for the discussion today I did a couple of new basal tests showing what happens so I could explain it better. I took my book with all my readings to which he replied...god how many times are you testing? I really don't think he has the slightest clue of diabetes at all.


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drahawkins_1973 said:
In preparation for the discussion today I did a couple of new basal tests showing what happens so I could explain it better. I took my book with all my readings to which he replied...god how many times are you testing? I really don't think he has the slightest clue of diabetes at all.


Sent from the Diabetes Forum App
Click to expand...
Now you know why he is the practice nurse, he needs a lot more practice. Treat him as if he has the plague and avoid a all costs.
 
drahawkins_1973 said:
Sorry this is going to be a bit of a long rant but needed to get it off my chest.

I have been having problems with my levemir as it no longer lasts the full 24 hours. I cant split it because I'm quite sensitive and the overlap gives my hypos.
I have ben managing this by given myself some quick acting novapaid to cover the shortfall which although doesn't solve the problem it is a solution of sorts. I dont really like having to keep give my self correction doses all the time to bring my suagrs downand would obvisouly prefer my basal to do its job.

So I made an appointment with my GP who arranged a consultation with the new diabetic nurse to discuss changing from levemir to another long acting. I;v just come back from the meeting and I'm really really peed off. He basically said I dont need to change my levemir as what I am doing is fine. So I said well it isn't as I'm using my bolus insulin to do the job becuase my basal is not working. He sdia well just dont use the quick acting to correct. And I said but then my sugars will be at 9-10 before bed and with dreaded DP about 10-12 in the morning and he said that was ok!!!!! So for 9-10 hours a day my DSN is happy with me be 9-13!!!

So they refised to give me any different basal.

I have asked to see the consultant as I am not happy with this.

Am I being pedantic?
Andrea
Click to expand...


Thought you were going to be posting to say they agreed to change you onto Tresiba :(

I would bypass your gp surgery for your diabetes care and ask to be referred over to the hospital diabetes clinic, as your well aware Andrea, they are more adapt at dealing with type 1/insulin related issues and will hopefully work with you to resolve your basal issue problems.

No way do you want to be spending a third of your day between 9 - 12mmol, that is a ridiculous suggestion.
 
Yikes poor you, another example of someone claiming to have a little bit of knowledge and too much power, tell him to try walking in your shoes..

I know you mentioned that you tried splitting your levemir and you had hypos, was this a regular occurrence ? I was on lantus and changed over to levemir and now have a split dose, so taking 18 units in the morning and 10 at night, I don't get hypos, only from too much QA, so maybe your dosage wasn't quite right ? It shouldn't cause hypos if the right dose is being taken and would save you managing on a QA to get you through to your next injection. Could be worth looking at again maybe ?

Good luck it's all trial and error !!
 
Oh my that's disgusting Andrea. So sorry. You'll see on other threads that I've had similar problems with Levemir and very poor advice. My consultant insisted I raise my night levels to 10+ to stop suspected night time hypos - guess what, my 10+ fasting levels have risen to 13+, which consultant was insisting was a rebound from hypos and I should reduce evening Levemir. Having used the Libre for 6 weeks I can now categorically state that my high fasting are due to high night levels + DP. My previously excellent control is now all over the place. I'm gradually getting back on top of it, but it's been very frustrating and really hard work. I'm back with the consultant next week and am dreading it. Don't give up and don't let them tell you those levels are OK.

Smidge
 
noblehead said:
Thought you were going to be posting to say they agreed to change you onto Tresiba :(

I would bypass your gp surgery for your diabetes care and ask to be referred over to the hospital diabetes clinic, as your well aware Andrea, they are more adapt at dealing with type 1/insulin related issues and will hopefully work with you to resolve your basal issue problems.

No way do you want to be spending a third of your day between 9 - 12mmol, that is a ridiculous suggestion.
Click to expand...
I thought that I'd have to argue getting tresiba on a cost basis but I couldn't even get him to agree I needed a different basal let alone a newer more expensive one. :-(
I'm not going to let this go and will make sure I get to to talk to a consultant who knows what he's talking about!


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Thanks juicy. I've tried different timings, different ratios of splitting and different levels and I can't balance the overlap. Whatever I do I either go low or I go high so I'm a bit stuck. I just think levemir isn't for me.


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Hi Smidge.
It's frustrating isn't it. I know every diabetic is different and so for GPs, consultants etc they can only recommend from their experience and so it's not a specifc answer sometimes. But, and it's a big but they HAVE to appreciate when people like us really truly understand our diabetes we are better placed to decide what works for us than they are.
Good luck to you too :-)


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Yep, get to a consultant.

Look up hospitals on line.. See who their consultants are and then go on the GMC website and check oht when they qualified and where....

Then go back to your GP and ask to be referred to xx hospital and xx consultant.

You can ask specifically for a certain consultant or hospital...

If you get **** from the GP tell him that you need to see a specialist in diabetes and not a general practictioner who is not a specialist or treating you within the guidelines of the CQC.. Ie with dignity and respect and listening to the parient and treating as an individual.
 
You are not being fussy Andrea. Just keep at them and patiently insist that staying outside these guidelines is not acceptable. Good luck being calm - you probably are, but I would have to rehearse what I said to stay calm. This kind of **** makes the blood boil. As an informed patient who exercises good glycemic control, you expect to be helped to levels that are not toxic to you.

Good on you
 
Argh... What stupid people...! Yes, as said before, ask to be referred to a clinic in a hospital.
Although, to be honest, a DSN from a hospital clinic told me a similar thing, but in a bit different situation - my basal was too high and I was dropping by 3mmol over night. So if I went to bed below 7, I'd hypo. Her answer was "don't go to bed below 7"...

Hope you get this sorted soon!
 
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