• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

New To This. Type 1

Messages
5
Type of diabetes
Type 1
Treatment type
Insulin
Hi, I'm a newly diagnosed type 1 Diabetic... Quite a late type 1 as I was diagnosed at 25 a few months ago.

So far it's been the worst experience of my life,
I've had the flu 3 times in the space of 6 months and have had colds left right and centre and now I have been struck down with a horrible cough that I can't seem to shift! Is this normal to be this sick all the time? I missed the flu jab by a month or so, so hoping it will help when I can get it later on in the year. I keep going backwards and forwards to the doctors and I can't be bothered with it anymore. I can't remember the last time I actually felt ok for longer than a month.
 
Hello @danielle_dw9547 and welcome to the forum. Sorry to hear that you have been unwell and hopefully that cough/cold shifts very soon. It is such a shock and emotional rollercoaster, it takes time to process it all but don't overload yourself with information because that will come with time. Take it a day at a time and you will grow in confidence and gain a better understanding of it all.

Has your diabetic team explained how to deal with colds/illness as a diabetic?

You will find this forum very supportive and includes lots of information on diet, lifestyle and any general concerns you might have. Just ask away! I'll tag @daisy1 who will provide some really helpful information.
 
Thank you @teacher123, it has been a bit of a shock, didn't expect it at my age! Yeah they have, it's just a pain to be poorly all the time. The nurses said my immune system doesn't work properly as a diabetic, just so frustrating - and the Hayfever makes it worse as well!
 
Your welcome @danielle_dw9547, just make sure you are still taking your insulin, eating good food and if you can't eat then have appropriate fluids.

Yeah - a total shock, I'm diagnosed 9 weeks now and at 24 I never thought it could happen but many have thought that I'm sure ha. In all fairness it already feels like second nature to me because I know how important insulin is to my body and I don't want to be doing my body any more harm after crazy blood readings 2-3 months ago!
 
@danielle_dw9547

Hi Danielle and welcome to the forum :)

Here is the information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
hi there, I'm 21 and like you thought "surely no one gets diagnosed at this age..." wrong we all were right!! I managed to get a bad cold a few weeks after diagnosis which was horrible, I was just starting to get my sugars under control then they were shooting super high again. I totally understand your frustration. I'm only three months down the line, so can't really speak from experience, but I've heard from a friend who's had it 5 years that a lot of us T1s are more prone to coughs and colds. All I can really advise I just try and stay healthy, eat as well as you can, though I'm sure all you want is comfort food! Go for a walk or something after meals if you feel up to it to try and prevent high readings. I've been told often you'll need to inject more rapid acting when ill, but being new to this I'd definitely recommend seeking professional advice from your diabetes team.

Hope this helps, if you ever want someone to moan at I'm here! Get well soon :)
 
Hi Danielle
welcome to the forum :)
it is really early days and you will have loads of emotions going on as well as trying to get on with life.
some great help already so I will just add -- take things slowly , don't panic over individual results , or bad days , and try to think of all the things that are good about you and your life -- I've been doing this ( D ) for nearly 43 years and life is wonderful from where I view it.
 
Hi,

I was also diagnosed nearly three months ago at the age of 24. And yes was a massive shock. I have been fairly lucky so far with colds etc. but for me it has been trying to chill out and not stress over all the details and just accept that it wk take time. But so far for me exercise has made me feel so good even though I struggle to do it haha
 
Thanks guys!! Nice knowing that there are people being diagnosed around the same age as me! I do exercise a lot but with the colds and coughs I have to rest otherwise I'll make myself worse! Such a catch 22 sometimes!
 
A unique club to be part of! :headphone:

I received a great little leaflet from my diabetic team regarding sickness/illness and what to do. It is so easy to understand and gives you a nice structure to work from. Ask for information like that so you can always be prepared :)
 
Last edited by a moderator:
even if you dont feel like going outside to exercise, try and do something at home - steps up on the bottom step of the stairs or something similar :)
 
I don't find I get more coughs and colds, but in the weeks before I was diagnosed I got something every month, it seemed. I felt really run down. Once I was on insulin and my BS was controlled I felt a lot better.

Take it easy and look after yourself. Try to keep your BS within range as much as possible and get extra rest. You'll soon get on top of it. It's early days for you yet. I think diabetes is a massive shock to the body and it takes time to get back to feeling normal.
 
Hello You've come to the right place. There are lots of friendly people who can offer guidance and advice. I was 32 when I was diagnosed. since getting my blood glucose somewhere near I found I got ill less but there have been lots of colds and coughs going around. Hope you shift yours soon.
 
Hi, I'm a newly diagnosed type 1 Diabetic... Quite a late type 1 as I was diagnosed at 25 a few months ago.

So far it's been the worst experience of my life,
I've had the flu 3 times in the space of 6 months and have had colds left right and centre and now I have been struck down with a horrible cough that I can't seem to shift! Is this normal to be this sick all the time? I missed the flu jab by a month or so, so hoping it will help when I can get it later on in the year. I keep going backwards and forwards to the doctors and I can't be bothered with it anymore. I can't remember the last time I actually felt ok for longer than a month.

I know GPs don't like prescribing antibiotics but last year (after I had the flu jab!) I had colds constant for 6 months and in end had the strongest antbiotics meant for malaria given to me. I don't normally get colds or coughs but ut went to chest infections etc. I was rough from Jan-June. Maybe worthwhile just soeaking to GP and saying that as you've been told your autoimmune system is playing havoc pleasecould you have the strongest antibiotics available...

Its probably a one off, its not typical that we diabetics get hit so hard by colds etc...
 
Back
Top