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Type 1 Diabetes is killing me

I remember when my son who was diagnosed in his teens remarking that when he got his sugar levels under control that it was nice to feel well again. And with me, diagnosed T1 nearly six years ago, it was such a relief to be able to walk upstairs to the bathroom without having to stop half way to rest.

There are several T1 Diabetics on here who are happy to listen to you and to advise in an empathetic way.
 
I do need a buddy, someone who actually has diabetes not someone who reads from a book and pretends they understand! I tried carb counting for a while but it was more effort than I'm willing to put in I'm supposed to be on levemir and novorapid but I only take my novo
 
Try carbs and cals app ....no need to carb count, look at a photo of your portion size and it tells you the carbs! It's my lifesaver!!
 
hey Natalie, I have seen counsellors solely to deal with my diabetes and they haven't help one but they just tell me what I want to hear and I do the same back! oh I'm fully aware of all the shock stories and I've had to deal with diabetic complications through my job but it doesn't scare me into changing what I'm doing I just wish to feel better or even slightly well again, because I don't sleep through the night because I'm always thirsty and up to pee so my whole life is on its head, thank you x
 
I'm 26 diagnosed at 11 it is a struggle but it's worth it. I really hope you feel on top of the world again ASAP get them sugars down and look after yourself you will come through on top I can feel it lol :) sweet dreams all :)
 
hi Ambersilva, I struggle every day even to walk across a room without feeling breathless I feel like I should weigh 40+ stone but I don't, I'm su unfit and it's all down to my diabetes being uncontrolled x
 
I'm sure it's worth it in the end, I will do! you look after yourself also x
 
I've also tried the carbs and cals app i just find it daunting having diabetes take over so much of life especially because I'm a proper foodie
 
indiaemily said:
I have these symptoms 24/7 so it's normal for me and my diabetic team are aware of it and I work in a hospital so refuse to be admitted
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Hi Emily and welcome. Hats off to you for being able to hold down a job while you feel so exhausted and breathless, that's an amazing achievement! I wouldn't be able to do it. I reckon if you can keep getting up and going to work every day when you feel this bad, you are a pretty strong person, so that tells me you can do this.

Do you live alone or with others? What are your family like, are they supportive or do they give you a hard time?

I'm glad you joined the forum, there are lots of T1s here who are willing to offer whatever support and help they can. T2s like me also care, but we can't know what it's like to be in your shoes. All we can do is wish you the best.
 
Hello, well that's the thing I've been off work for two months now so my diabetes has really gone to pot! I live with my family and they've always been supportive but I feel they've come to a point where they just can't be bothered to harass me all the time because they had to physically put my insulin in my hand so I would remember to take it thank you for this x
 
indiaemily said:
Hello, well that's the thing I've been off work for two months now so my diabetes has really gone to pot! I live with my family and they've always been supportive but I feel they've come to a point where they just can't be bothered to harass me all the time because they had to physically put my insulin in my hand so I would remember to take it thank you for this x
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In a way, I'm glad you are off work because I think you really need the space to be able to address things. I'm glad your family are supportive. I still think you are a strong person... you haven't given up and you are reaching out looking for help, which is a good sign.

Would it help to think of what you need to do just for today and not think about the future too much? I have struggled with depression for most of my life, and something that helps me is writing down my plans for the day. At one point I had a checklist I typed up and printed copies out, just so I would remember to take my meds, eat, and shower. Once it became a routine I didn't need the checklist.

Baby steps... start with bite sized chunks you can manage. The past is gone, you can't change it. Nothing matters except the choices you make today. Tomorrow's worries can be dealt with tomorrow.
 
Feeling better is definitely within your grasp, no need to be afraid of taking control, it will take a few weeks to get to the point of feeling a lot better, you can also enjoy your food. Tell me though are you afraid of gaining weight ?
 
I'm looking for help wherever I can get it at the moment. I can't think as far ahead as tomorrow so I'm trying to keep busy, I need a routine though because all I'm doing is lounging about because I can't keep busy because my mind is going into overdrive and you're right about that, the past has happened and that is that x
 
to an extend I'm afraid of gaining weight, i used to control my weight through skipping my insulin but it's not a priority at the moment I just don't like taking my insulin
 
I hope you can take control and become well, do it for yourself you know your destiny is in your hands, think of what you'd like to achieve in life and go for it, it is difficult and when I was your age I used to worry about the future and was it all worth it but believe me it is, start by taking your insulin and see how you fell when your blood sugar drops, you are young and with the right care you can live a long life, please take care of yourself and I wish you well, good luck.
 
Ok well that aside, tomorrow can you look at doing a diary, so in the morning do a blood test when you wake and take your and record your results ? What doses are you supposed to be on and have you ever split your levemir ?
 
indiaemily said:
to an extend I'm afraid of gaining weight, i used to control my weight through skipping my insulin but it's not a priority at the moment I just don't like taking my insulin
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From what I have read on the forum, it's possible to control your weight without skipping insulin. Once you are back on track and not feeling so exhausted, you will be able to inject the right amount of insulin you need for each meal. Apparently people often gain weight by using more insulin than they need, and having to "eat to the insulin".
 
I know insulin can make you put weight on because my weight fluctuates a lot but that's from my diabetes being so uncontrolled! well I eat none stop so that won't help
 
indiaemily said:
thanks! well as I've said I've tried all sorts of therapies to try help and alternate methods in the actual treatment of my diabetes and nothing has worked for me yet, hence the reason I signed up to the forum because I've never had contact with another diabetic over the past decade so I thought it may help, so I'm giving it a shot to see what happens!
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Hi, do you write in a diary, or write a blog, as putting pen to paper can really open up a whole new world for you ? I have been type 1 for 26 years, my granddaughter, who was 7 on Sunday, was 2 1/2 years when diagnosed. You probably just want to be 'normal', like everyone else your age and not have diabetes and inject, test, medication, food, hypo's and hypers.
There is a thread called Diabetes Burnout on the forum, try and have a look at it, lots of members have posted their stories. Please don't let diabetes be a burden, overwhelm you or tear your life apart, you are worth far more than that. I had my daughter at 42 1/2 years old, my best diabetes moment ever.
http://www.diabetes.co.uk/forum/threads/diabetes-burnout.74048/
RRB x
 
Hello, I've tried writing things down or expressing myself other ways but I prefer to keep things bottled up. that's a really young age to be diagnosed, I feel really sorry for her and you of course having it for so long! Thank you x
 
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