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- Type of diabetes
- Type 1
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- Pump
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- Hypos, rude people, ignorance and grey days.
I'm sorry to hear, as much as I enjoy talking to my GP and he or she understands the struggles that I go through, they do say it is out of their expertise and that I should leave it to my endo/consultant. So again if you need anything you'll need to be referred to a consultant. Out of the years of my diabetes I only had one awful consultant but the rest are very nice and understanding. I hope you find the courage to see a consultant, because it is the only way to get funding approved for a libre on the NHS. I had to bite the bullet to go to DAFNE because my consultant said it was one of the requirements for a pump, so I did and I felt proud for beating the beast.I am a well controlled type 1 of 45 years but the anxiety and addition of other auto immune problems has led me to suffering from depression.
I take pills for that.
My GP has looked after me for years and does anything I ask of him if he can.
I manage the anxiety by completing anything up to 10 blood tests a day.
The idea of talking to strangers about my condition fills me with dread and I really don't want to do it.
I hope this makes some sort of sense.
Tony
Why should Libre be any different to any other medication and treatment that can interpreted and budgeted by each CCG.I find it strange that even after 1st April, when all CCG's were meant to dance to the same tune, there are many differences in what various CCG's demand from patients.
Thank you for the replies so far and if anyone can contribute anything different please do as I'm desperate to avoid seeing a consultant/specialist/dsn.
Thanks again
Tony
This question has been answered earlier in this thread.Why are you reluctant to see the Consultant?
Because the whole point about the ruling due to have come in on April 1st was that ALL CCG's had to follow the same rules and criteria and obviously they aren't.Why should Libre be any different to any other medication and treatment that can interpreted and budgeted by each CCG.
For example some CCG require special approval for Fiasp and others offer it to most patients; some provide pumps with a week of training and others provide it with a couple of half day training; some provide Libre with no training others provide online training. ...
Because the whole point about the ruling due to have come in on April 1st was that ALL CCG's had to follow the same rules and criteria and obviously they aren't.
I didn't know you needed a prescription for the libre. I just bought all of the gear online and started using it myself, and when my endo saw it she said "that's such a great option for you since you test a lot"
Thanks for the replies people.
I live in Rochdale which I think comes under the Manchester CCG.
My GP has since arranged an appointment with a specialist for 4 weeks time.
How does one prove the number of tests I do and explain some of the anxieties I have to a stranger?
Thanks
Tony
I know at my hospital clinic they say to bring my testing machine(s) and then they just plug them into their system (they use Diasend) at which point it downloads all the data - their system can connect to the libre reader as well - so they may do that or ask to see all the tests/readings you've been doing.How does one prove the number of tests I do
I know at my hospital clinic they say to bring my testing machine(s) and then they just plug them into their system (they use Diasend) at which point it downloads all the data - their system can connect to the libre reader as well - so they may do that or ask to see all the tests/readings you've been doing.
I upload my readings to Diasend myself.How does one prove the number of tests I do and explain some of the anxieties I have to a stranger?