- Messages
- 328
- Type of diabetes
- LADA
- Treatment type
- Tablets (oral)
I am stuck 'diagnosed by nurses' as Type 2 - I haven't posted in the LADA or T1 forums, as not (yet) diagnosed and on the 12month+ wait list to see a consultant, (unless I can go private, which I am actively looking into). Apologies to any who have already read my sorry tale on other threads.
HbA1c 129.5
C-peptide 7.52
Creatinine 9.5
Ratio 0.79
GAD Ab 220.8u/ml
ZnT8 Ab 895.6u/ml
1A2 Ab 1664.1u/ml
Has anybody else had similar results and what happened to you? Trying to cut out the 'why do you need to know what type you are?' comments and concentrate on how soon was a formal LADA/T1 diagnosis given after high HbA1c, c-peptide and antibody tests were positive?
Although I was really lucky my tests were done in the first week 'to rule out T1', since the results came back positive, all urgency has evaporated and I am on the consultant's 'routine' list.
I was on a very low dose (I think) of Levemir for 4 days (8 units at night), and then 10 days on 10 units Humulin M3 (2x5units) then 4 days on 6 units (2x3) all the while building up Metformin. Stopped insulin at 1500g Metformin, and since early January only on 2000g Metformin. I have no insulin in the house as told to take my stockpile back to the pharmacy as c-peptide result was 'definitely T2'! My NHS record remains as T2.
I am keeping to a lowish carb diet, no more than 50g per meal, but probably nearer 100g over the day. A half hour of brisk walking a day exercise. Since 2 weeks after my huge HbA1c result, my BG has only gone over 10 once (**** you tiny Christmas pudding), and above 6.5 a half dozen times after eating something I maybe shouldn't have. My glucomen monitor has me at a 5.2 average for the last fortnight, 5.3 average for 30 days. I am monitoring my BG and basically waiting to see any signs of increase, with some ketone strips for if I go above 10.
Did your consultant/diabetes team immediately recognise LADA?
Did you have to fight to have your diagnosis changed or to see a consultant even after positive antibodies confirmed?
Has anyone been asked when they had their covid vaccines or a recent illness?(My booster, which knocked me out for a couple of days was 10 days before my initial HbA1c blood test and antibody tests - I'd also overreacted to both my earlier AZ jabs, the second just before I started getting thirsty...).
If GAD and/or others antibodies disappear, as they could 6 months after an illness/infection (or immune response to a jab?), can T1 be counted out?
Has anyone been misdiagnosed as T1 and gone on to be T2, or would having positive antibodies at any point always mean T1/LADA but waiting for insulin to be required?
Will being re-tested for GAD etc in 6 months be another frustrating battle?
I realise my questions may be completely ignorant, but try googling anything about antibodies and there are a million covid hits to sift through first!
Thanking you in advance
HbA1c 129.5
C-peptide 7.52
Creatinine 9.5
Ratio 0.79
GAD Ab 220.8u/ml
ZnT8 Ab 895.6u/ml
1A2 Ab 1664.1u/ml
Has anybody else had similar results and what happened to you? Trying to cut out the 'why do you need to know what type you are?' comments and concentrate on how soon was a formal LADA/T1 diagnosis given after high HbA1c, c-peptide and antibody tests were positive?
Although I was really lucky my tests were done in the first week 'to rule out T1', since the results came back positive, all urgency has evaporated and I am on the consultant's 'routine' list.
I was on a very low dose (I think) of Levemir for 4 days (8 units at night), and then 10 days on 10 units Humulin M3 (2x5units) then 4 days on 6 units (2x3) all the while building up Metformin. Stopped insulin at 1500g Metformin, and since early January only on 2000g Metformin. I have no insulin in the house as told to take my stockpile back to the pharmacy as c-peptide result was 'definitely T2'! My NHS record remains as T2.
I am keeping to a lowish carb diet, no more than 50g per meal, but probably nearer 100g over the day. A half hour of brisk walking a day exercise. Since 2 weeks after my huge HbA1c result, my BG has only gone over 10 once (**** you tiny Christmas pudding), and above 6.5 a half dozen times after eating something I maybe shouldn't have. My glucomen monitor has me at a 5.2 average for the last fortnight, 5.3 average for 30 days. I am monitoring my BG and basically waiting to see any signs of increase, with some ketone strips for if I go above 10.
Did your consultant/diabetes team immediately recognise LADA?
Did you have to fight to have your diagnosis changed or to see a consultant even after positive antibodies confirmed?
Has anyone been asked when they had their covid vaccines or a recent illness?(My booster, which knocked me out for a couple of days was 10 days before my initial HbA1c blood test and antibody tests - I'd also overreacted to both my earlier AZ jabs, the second just before I started getting thirsty...).
If GAD and/or others antibodies disappear, as they could 6 months after an illness/infection (or immune response to a jab?), can T1 be counted out?
Has anyone been misdiagnosed as T1 and gone on to be T2, or would having positive antibodies at any point always mean T1/LADA but waiting for insulin to be required?
Will being re-tested for GAD etc in 6 months be another frustrating battle?
I realise my questions may be completely ignorant, but try googling anything about antibodies and there are a million covid hits to sift through first!
Thanking you in advance