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  1. W

    Type 3 after total pancreatectomy

    I had a similar operation four years ago. The surgery went well, and I was discharged after ten days. Eating was both trial, and error at first, and just small quantities. The major problem I had was finding good diabetes care, and help. Like your husband my blood glucose levels varied between...
  2. W

    CGM advice

    I couldn’t live without mine. I had my pancreas removed five years ago, and became instantly diabetic. My BG looked like a roller coaster, and I was finger pricking around 10 times a days, and through the night. Having the cgm allowed me to have more confidence and not finger pricking day and...
  3. W

    CGM advice

  4. W

    Just diagnosed and worrying

    Even though you can’t do the DAPHNIE course yet, I would try and get your name on the waiting list. I would still try and get your name on the waiting list now, because it could be at least six months before there is an availability place.
  5. W

    Just diagnosed and worrying

    Hi, I had my pancreas removed four years ago, and on leaving hospital was given needles, syringes, and insulin, and told that a diabetes nurse for my area would contact me. She did, and brought masses of leaflets, and information with her. All of which was totally baffling to a very nearly...
  6. W

    Can people with 3c control their levels ok

    The lack of expertise within the medical profession, and lack of education for the person with type 1 and type 3 diabetes is a disgrace. I became insulin reliant after having my pancreas removed. It took almost a year of constantly asking to go on a DAPHNE course before I finally was able to...
  7. W

    Type 3c - how many are we?

    I became type 3 after a Whipple operation as pre cancerous cells were discovered on the head of my pancreas. I had a total pancrectomy ,my spleen, and gall bladder were removed. It has left me very brittle, but with the help of a pump, and sensor, and a very supportive diabetes team my life is...
  8. W

    Chia seeds

    Me too
  9. W

    Type 3c - how many are we?

    HI, I had a Whipple operation a year ago including a total pancreactetomy. My diabetes has been very brittle, and I have felt totally out of control.mive been given very contradictory advice by diabetes nurses. The diabetes Doctor I saw tried every different insulin on the market. From day 1 I...
  10. W

    anyone else on creon?

    Thanks for your support. At last I have a foot in the door at a good diabetic clinic. There is so much conflicting advice both on this site, and talking to other type 1 s that it is difficult to know who to listen to.
  11. W

    Chia seeds

    I grind my chai seeds, and add a good teaspoon to my porridge every morning, plus teaspoon of mac a powder, and a tablespoon of blueberries. Fills me up until lunch, and is slow release carb.
  12. W

    Help please. My BG levels over 19 since after lunch.

    Hi Blackers183.before dinner was 18.9, 2 hours later 19.7, then thankfully 13.0 before bed. High I know, but I have been advised not to go to bed under 10.0 as I can also drop very rapidly,. Thank you for your interest.
  13. W

    Help please. My BG levels over 19 since after lunch.

    Thanks for that. I do try and follow carb counting, but my doctor doesn't want me to alter my unit doses, because I am so insulin sensitive, and can drop from 13.0 to 4.0 within an hour for no apparent reason. After my panic last night, I did drop to 12.0 before bed. Thanks again for your advice.
  14. W

    Help please. My BG levels over 19 since after lunch.

    My diabetes doctor has told me to have 5 units of Apidra before breakfast. 4 units before lunch, and 4 units before dinner. My long acting Tresiba is 5 units. I try to limit my carbs to around 40-45 each meal. I only have something sweet if I'm having a hypo.and don't have anything in between...
  15. W

    Help please. My BG levels over 19 since after lunch.

    thank you for your reply. 0.5 can lower my BS significantly. However, I am so unstable it can lower me anything from 3-6. I am nervous to do anything, especially as i will be going to bed in a couple of hours.
  16. W

    Help please. My BG levels over 19 since after lunch.

    Help, my BG has been 19.0 since after lunch. All I ate was pasta, and tomato sauce for lunch, and Chicken and rice for dinner. I am very insulin sensitive, and have very brittle diabetes, having had my entire pancreas removed. My doctor has only mentioned corrective doses, but nobody has told me...
  17. W

    anyone else on creon?

    I had a total pancreatectomy last November, which gave me brittle diabetes. As soon as I left hospital I asked to go on a DAPHE course. My diabetes nurse told me there wasn't one available. Several months later I started seeing the diabetes nurse at my doctors surgery. Again I asked to do a...
  18. W

    Newly diagnosed Type1 and SO frustrated

    Thank you For your encouraging advice. I have Carbs and Cals, and am raring to go. It's my diabetic doctor who is holding me back. The DN has gone off on leave for six weeks. On the positive side, I have asked my doctor to refer me to the hospital of my choice, and they have a very large...