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Hi, does anyone have experience of taking glibenclamide? I’ve put on this during pregnancy to treat the baby for mody before there born. Does anyone find there really sensitive to it? I was put on 5mg tablet and have constant hypos, I’m now On a quarter of a tablet but I’m high after tea and in...

Hi I have a very rare genetic type of Diabetes, insulin does not work for me and will be harmful for the baby as they will also have the diabetes I have. My treatment is being led by Exeter university and the medication I need is unavailable in the uk x

Hi, so I have a really rare type of diabetes and just found out I’m pregnant again. The tablets I take are gliclazide and not safe for baby In pregnancy on the flip safe insulin is also detrimental to the baby. I have to take glibenclamide which unfortunately my consultant can’t source in the...

Hi, I’m really trying to get a control of my diabetes, my problem is I have a big appetite and a sweet tooth! I have a rare type of genetic diabetes and take gliclazide medication. I’m after inspiration for snacks really, that won’t spike my blood sugar, it can be tricky finding the right...

I’ve been working to reduce my hba1c. I’m due a follow up I know my latest result is 48mmol. Is this ok? Thanks

Hi, Just after a bit of advise. I’m suffering with pain in my hip just the left side which can also affect my thigh. It hurts when I sit, stand and keeps me awake at night. It doesn’t seem to bother me when out walking. I am going to book a doctors appointment just a little nervous this is...

Hi, I’m 28 weeks pregnant and just had my growth scan. They have told me my amniotic fluid is high reflecting my blood sugar readings but the baby is small. I have another scan booked in two weeks. Has anyone else any experience of this? Thanks

Hi I am 25 weeks pregnant and currently having my eyes screened every 4 weeks. I have a received a letter today saying due to this they want me to get my blood pressure checked. Has anyone experienced this?

Hi has anybody had experience being pregnant with MODY diabetes. I saw my consultant today who said having high reading after meals can be dangerous for the baby and cause him to grow to big. My last HBA1C was 6.4. I have been told he only has one kidney this could be due to my high blood sugars...

Thank you it’s Monday the 30th July so not to long to wait now! Have you had a scan or had a date x

Hi Yvonnie Sounds like we both had a similar experience, told me on the spot and said they would arrange it for me! I have everything crossed for my 7 weeks scan. xx

Thank you so much it really helps having people to talk to about it xx

I spoke to the diabetic nurse today who said there’s a high chance at my 7 week scan there is No baby. She also said it’s a very heightened risk I will miscarriage or the baby will be stillborn. I have told them I am continuing the pregnancy, I’ll give it every chance I can, plus I won’t make a...

Hi no I haven’t been advised to take this but I will look into buying some straight away thank you

Thank you all so much for your replies. I have been scared more by being told I will miscarry and if I don’t the baby will die in the womb or at birth. I didn’t expect to find myself on my own with 3 consultants saying I should terminate it doesn’t feel right to me. I have been to the hospital...

Hi, I know no one can tell me medically what to do, but I was hoping to hear from people who conceived with a high hba1c. As I have put in a previous thread mine was 11.8 and a consultant told me I should have a termination. This is without having my 7 week scan yet

Hi I am 5 weeks pregnant. I have just been to the pregnancy clinic to see a dietician and consultant. Before I left a consultant started telling me that because my hba1c was 11.8 at conception I need to think about having a termination because I’m extremely high risk of miscarriage, but that my...

I have a type of mody and found out this week I’m pregnant. They put me straight on insulin yesterday and I have a referral tomorrow. My blood sugar is high and my last reading was 24 should I be really worried?

Hi thanks for all the replies [emoji4] I have transient neo natal and it’s treated with tablets. I would say that at the minute I am living like my diabetes doesn’t exist. My specialist said the longer I Control my blood sugars the longer it will be until I need insulin. I find trying to...

I’ve had diabetes now for 2 years. Ashamed to say but I don’t know when I last controlled my blood sugars. I haven’t been going to my specialist appointments and I’m completely fed up with it. I know what I am doing is wrong I notice the blurred vision and exhaustion when my blood sugar is high...