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1/2 unit of insulin causing hypo

Thanks for checking in. Did they investigate for reactive hypoglycemia ? There is a thread on that topic going on right now that you might want to read. Good luck. Sorry your daughter does not yet have a diagnosis you can use.

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You said before daughter was a high sugar addict.. And how easily she has adapted...

I don't know when the higher levels will return, but if your daughter has cut out the high sugar intake and keep to the adjusted diet she may well keep away from having injections for a long while.

Everybodys interpretation of high sugar intake will be different,but I would keep doing what you are doing.. Food diary and blood tests etc.

Go back to your endochronolist and ask his opinion though.. I'mnot sure whether you have said whether they did the full type 1 tests or not...


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Hi the hospital didn't do the antibody test or any other at the time of diagnosis. After a few weeks they did Addison's and coeliac. Her sugar was 25.0, keytones and she had a dry mouth/thirst when taken to hospital.
The first week off insulin was ranging between 5.5-11.5 roughly with a random 2 highs but when she took the 1/2 unit of insulin it made her unwell. The second week is a different story she has to eat more throughout the day to keep it above 4.0 and food is dropping the sugars. Maybe a strange conciseness the change to low sugar started to happen the day after she got her metal braces off.
I keep telling the hospital I don't think any of this is normal. I get people have been taken off insulin in the honeymoon period but as far as I know that should be a pretty straightforward period of time that's easy to control. I feel like I'm going crazy I'm never off the phone with them but they always have a reason for everything.


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We may have covered this before but in addition to asking them to investigate for reactive hypoglycemia, try alternate insulins in case she has a specific bad reaction to one type. Unusual but it does happen.

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donnellysdogs said:
You said before daughter was a high sugar addict.. And how easily she has adapted...

I don't know when the higher levels will return, but if your daughter has cut out the high sugar intake and keep to the adjusted diet she may well keep away from having injections for a long while.

Everybodys interpretation of high sugar intake will be different,but I would keep doing what you are doing.. Food diary and blood tests etc.

Go back to your endochronolist and ask his opinion though.. I'mnot sure whether you have said whether they did the full type 1 tests or not...


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We would have always kept sweets to a minimum as a young child and she didn't drink anything fizzy until she was 9, but as she got older, more independent and went to secondary school that's when we had problems with her sugar intake and lack of proper food. The worst intake was fizzy drinks, energy drinks, mints, jelly sweets. We think she was over the top with sugar intake and on many occasions interviened by removing money, etc. On many occasions I would remove so much junk food from her room and bin it. I remember many times telling her she was going to end up with diabetes, and she was destroying her body, she adjusted well to a new diet due to the shock that it actually happened!


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Spiker said:
We may have covered this before but in addition to asking them to investigate for reactive hypoglycemia, try alternate insulins in case she has a specific bad reaction to one type. Unusual but it does happen.

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I think the reactive hypoglycemia is something to investigate although if she took any amount of insulin at the moment that would be the end of her. If her sugars were to go up maybe a different insulin could be an option.


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Spiker said:
Thanks for checking in. Did they investigate for reactive hypoglycemia ? There is a thread on that topic going on right now that you might want to read. Good luck. Sorry your daughter does not yet have a diagnosis you can use.

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Thank you, I just wish I could find someone with similar problems that you could relate to and take advice from.



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Don't know if this will help or not but, for a few years before diagnosis i would get unbelievable hunger pains and shakes and can only liken it to what I now know is a hypo. Although, they did ease after food but that was just my natural reaction. At the time not a clue about hypos or diabetes. My only thinking is that my insulin cells were being attacked and sending the ones able to work into overdrive causing an uncontrollable insulin response from my body and it didn't seem to regulate itself. When I was finally diagnosed started on insulin even more problems as I would have massive drops from small amounts also, eventually having no insulin for a few months after, then as i introduced basal, kept hypoing between meals, so ended up on tiny amounts of quick acting with no basal. This went on for roughly 12 months and am still on relatively small doses but, at least things are consistent. One test they did do was to check my cortisol level response which was great apparantly. Swapping from lantus to levemir when injected basal also helped smooth things out. Keep in touch with your team as your doing and maybe they will find a totally different cause and keep checking pre/post meal changes.

Type 1, pumping nova rapid
 
brett said:
Don't know if this will help or not but, for a few years before diagnosis i would get unbelievable hunger pains and shakes and can only liken it to what I now know is a hypo. Although, they did ease after food but that was just my natural reaction. At the time not a clue about hypos or diabetes. My only thinking is that my insulin cells were being attacked and sending the ones able to work into overdrive causing an uncontrollable insulin response from my body and it didn't seem to regulate itself. When I was finally diagnosed started on insulin even more problems as I would have massive drops from small amounts also, eventually having no insulin for a few months after, then as i introduced basal, kept hypoing between meals, so ended up on tiny amounts of quick acting with no basal. This went on for roughly 12 months and am still on relatively small doses but, at least things are consistent. One test they did do was to check my cortisol level response which was great apparantly. Swapping from lantus to levemir when injected basal also helped smooth things out. Keep in touch with your team as your doing and maybe they will find a totally different cause and keep checking pre/post meal changes.

Type 1, pumping nova rapid
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Thanks for sharing that with me, I am going to push for the hospital to do some kind of testing, think that's what bothering me the most the fact they are just ignoring it all hoping it will steady out soon.


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I just wondered actually whether ur daughter was literally crucifying her own pancreas to be honest.. The total overload of excessiveness would have put a huge strain on that organ.

I think I killed my pancreas off totally as a kid,very similar to your daughter to be honest.. But worse in some aspects because I never ate a meal except plain sausages and complan with jersey cream milk and nesquik till I was 6 years old... My teenage years were bad too.

I really, honestly wonder if your daughter unintentionally was totally overloading.... It doesn't sound as she done it since she was born though. I always believed I caused my own t1 despite all the evidence that dhows its a faulty gene or chromozone etc...

Just hope that you can support your girl to stay off **** and change forever.. Besides speaking to endo and spikers suggestion I guesss all you can do is test and test.

Not a solution for you, but true reasons what I always believed about my **** childhood foods and eating.. I was and sti am the black sheep of the family... And the only T1!







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I think that the sugar overload has something to do with it also. The consultant wants her in hospital again today to get a blood test when she goes under 4.0
I'm browned off with the whole lot of it!


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Hi scoobyzoo...my daughter who is 8 and diagnosed 3 months back has quite similar symptoms.This Is iindeed honeymoon period but can b quite tricky at times.she gets up with bg of 4.7 then goes to hypo (3.9)just bfr lunch at 12:00..then her levels are between 5-8 till dinner and after dinner it might shoot up between 8-15 during night.She takes 1 unit Levimir around 9:00 pm bedtime.no novrapid at all.The levels do come down to 4 by the morning irrespective of levels during bedtime.


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anuja said:
Hi scoobyzoo...my daughter who is 8 and diagnosed 3 months back has quite similar symptoms.This Is iindeed honeymoon period but can b quite tricky at times.she gets up with bg of 4.7 then goes to hypo (3.9)just bfr lunch at 12:00..then her levels are between 5-8 till dinner and after dinner it might shoot up between 8-15 during night.She takes 1 unit Levimir around 9:00 pm bedtime.no novrapid at all.The levels do come down to 4 by the morning irrespective of levels during bedtime.


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I don't believe your daughter would have been totally binge overloading on carbonated drinks and sweets though prior to a diagnosis of T1 and now adhering to a balanced diet... I personally believe that OP's daughter is getting used to normally foods and eating again rather than a honeymoon....



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anuja said:
Hi scoobyzoo...my daughter who is 8 and diagnosed 3 months back has quite similar symptoms.This Is iindeed honeymoon period but can b quite tricky at times.she gets up with bg of 4.7 then goes to hypo (3.9)just bfr lunch at 12:00..then her levels are between 5-8 till dinner and after dinner it might shoot up between 8-15 during night.She takes 1 unit Levimir around 9:00 pm bedtime.no novrapid at all.The levels do come down to 4 by the morning irrespective of levels during bedtime.


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At the moment with your daughter it sounds as if she needs more carbs at breakfast and less carbs at tea time.


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No my daughter always had a balanced diet....she's got other autoimmune conditions like Coeliac,hypothyroidism and vitiligo....she never tasted coke till she was 7....I think you are right that she needs more carbs at breakfast..we tried giving her a banana instead f an apple today for morning snack and she did nt have a hypo before lunch..such a relief..she was having so many hypos in school that she had stopped recognizing them anymore :(


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But now I am really worried about her hypo unawareness....do you think it can be fixed ? Like if she does not hv hypos for few weeks will her body start recognizing it ? Or is it gone forever ?she was in the pool today and I had a feeling ....I asked her to come out and check..she was 4.4... I wonder what wud hv happnd if I wud hv let her in the pool for another half hour....


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Daughter (and you!!) needs to have levels running at 6-8 for a good few weeks to get awareness back..

It can return. Some people will debate on what levels should be kept at, and for how long.

Some people believe that being able to realise a hypo at 3.0 they think acceptable... I don't count that as hypo aware because of the 20% error rate the meters are allowd. Especially more so as we are talking about a child....and the fear factor of parents too!!

Personally if I was a parent, and not the diabetic... I would be wsnting to get my childs levels above 6 consistently for at least 6 weeks..

That is only my opinion though. It may be worthwhile to phone hospital DSN and check their advice. My consultant says levels of at least 8 for 8 weeks....

I do feel for you. Are your pens childs 1/2 unit ones? So if need be you could lower or raise by 1/2 unit insulin doses?


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