21 newish to this

hi there @Aambler
welcome to the forum
Diabetes is really tough to live with because it never takes a holiday

you've come to the right place - there are lots of people to talk to on here who "totally" get it.

keep posting !!

tagging a few of my lovely friends to come along and say hello too
@Juicyj , @becky.ford93 ,@wiserkurtious , @Mrsass

Aambler said:

Im 21 and was diagnosed when I was 18. I thought I had it under control but every time I go in for my check up my insulin gets upd or lowered and it takes me a little while to get it back in order. Then some times it just straight up depresses me. I really just need someone to be able to talk to about all of this.

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Hi @Aambler,

I have had diabetes for most of my life. And I still struggle today trying to control it day in and day out. I have good days and feel like I'm on top of it all and yes it's easy, then It slips and I sometimes feel like you do, and get down about it all. So you are deffo not alone. And I think I can speak for most diabetics out there on that one too.

I joined the forum only a few weeks ago, and it's so good to just talk with people that understand and are going through the same as you.

It is hard, and as himtoo said - we never get a break. But you're doing a great job. And being on this forum will give u so much info/guidance and support - u will be surprised how much it will help u



Sent from my iPhone using DCUK Forum mobile app

Hi, Aamber! Posting on this forum was a good move, there are many people who will be glad to be of help.
What you report about your insulin doses being changed is nothing to get depressed about: it surely does NOT mean you are 'doing wrong'. Always changing and adapting insulin doses is what managing diabetes is all about. I mean, continuously changing and adapting doses is not only normal, but required and necessary.
I was diagnosed at 20 (now I'm 52) and back then I used to feel very much like you: I expected doses will 'get settled' sooner or later, so I wouldn't have to go on by trials and errors any more... (And yes, I felt like a failure for my 'not being able' to attain that goal). Well, I blame my doctors for never, ever telling me that such a thing was impossible. Our bodies are not engines, you see: they are organisms. An engine will respond to very few conditions or factors (in a word: it's simple, predictable, easily manageable), while an organism will respond to an enormous number of factors, both internal and external, all very complex and intertwined. Most important, we – I mean scholars, researchers, health providers (not that I am one, mind you!) – still have a very rough understanding of such factors. Actually, I'm convinced we are still totally clueless about quite a lot of them. So, managing a condition like T1 is bound to be a matter of keeping correcting and adapting and changing, on and on and on, trying to keep up pace with an ever-responding body who lives in an ever-changing environment.
Now, leaving my long-winded explanation apart (I'm such a bore, sometimes!), my heartfelt message to you is: don't feel depressed. Changing doses is normal. You will soon learn how to change and adapt them yourself, when needed (i.e. very often). You will make mistakes, sometimes (who doesn't?). You will get puzzling results, some other times. But you will be doing great, most times. Just feel proud, OK?

Hey @Aambler Welcome to the forum, I am just coming up to 4 years of being diagnosed and yes it does get me down some days, I have got alot better in the past year or so, but it's so easy to let the numbers rule your life, if this happens then you can get down about it. A few things that help me..

- Exercise, just getting on a bike or going for a walk can help both my BG levels and my mood.
- Talking, just get it off your chest and talk to us (your new T1 mates) or a sympathetic ear
- Learn, keep educating yourself on how you can manage better, get on DAFNE or speak to your DSN/Consultant about doing a course, or get a T1 related read, 'Think like a pancreas' or 'Diabetes Solution' by Dr Bernstein
- Keep a diary, download diaconnect on your phone, helps track patterns and you can email them to your team if you're struggling.
- Distraction, do a challenge, see your friends, listen to music, don't focus on the negatives.

Try not to get down about the numbers, perfection with type 1 is impossible so it's just learning to accept the reading and act on it. You do an amazing job, so be proud you've coped with the diagnosis and each day you are a warrior fighting many more battles than anyone else around you x

Bic said:

Our bodies are not engines, you see: they are organisms. An engine will respond to very few conditions or factors (in a word: it's simple, predictable, easily manageable), while an organism will respond to an enormous number of factors, both internal and external, all very complex and intertwined. Most important, we – I mean scholars, researchers, health providers (not that I am one, mind you!) – still have a very rough understanding of such factors.

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This is quite possibly the best ever description of type 1 I have ever heard..

Hi there
I was diagnosed 14 months ago aged 21. If it makes you feel any better about your regime changing all the time, my monthly cycle seems to like making me go back to square one every month. Gets very frustrating!!!!