3 month review with diabetes nurse

Mick1959

Well-Known Member
Messages
151
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Gold star for the Nurse.

Perhaps, we could arrange for an official recognition for health professionals who go above and beyond what is required.
 
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Peadair O Brionn

Well-Known Member
Messages
445
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
having diabetes...... people who wear backpacks on the tube
Well done eggs wonderful news . How come people get a diabetic nurse I haven’t got one I just see my GP
 
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Rachox

Oracle
Retired Moderator
Messages
15,880
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Well done eggs wonderful news . How come people get a diabetic nurse I haven’t got one I just see my GP

Don’t worry I’ve never seen a nurse either. I don’t think my surgery has a Diabetes specialist nurse. I just see my own GP. I was given the choice to see the GP who specialises in Diabetes, but chose to stick with my own GP.
 

eggs11

Well-Known Member
Messages
638
Type of diabetes
Type 2
Treatment type
Diet only
Well done eggs wonderful news . How come people get a diabetic nurse I haven’t got one I just see my GP
Thanks @Peadair O Brionn! As @Rachox says I think it's just that some surgeries (maybe the larger ones?) delegate all the diabetes care to a nurse, but some keep it with the GPs. I'm the opposite to you in that I've never met my GP! I've spoken to him a couple of times on the phone as he ordered my blood tests for diagnosis, but once diagnosed all my diabetes-related care was handed over to my nurse.
 

Bluetit1802

Legend
Messages
25,216
Type of diabetes
Treatment type
Diet only
I didn't even get my diagnosis from my GP. I had routine blood tests and was called in to see the nurse. I have never seen a GP for diabetes stuff. I am pretty glad about that. Nurses do seem to be more clued up, or at least mine is.
 
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Sumai

Member
Messages
5
Type of diabetes
Type 2
My nurse doesn't seem interested in the low carb high fat diet. At My last check at Christmas my cholesterol had dropped from 6 to 3.3. She said I Must be doing something right. Explained I was eating more fat but it didn't seem to impact on her.
 
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dbr10

Well-Known Member
Messages
2,237
Type of diabetes
Treatment type
Tablets (oral)
My nurse doesn't seem interested in the low carb high fat diet. At My last check at Christmas my cholesterol had dropped from 6 to 3.3. She said I Must be doing something right. Explained I was eating more fat but it didn't seem to impact on her.
It doesn't seem to compute with some of them.
 

Kittylitter

Well-Known Member
Messages
116
Type of diabetes
Prediabetes
Treatment type
Diet only
Hi all,

Reporting back from my 3-months since diagnosis appointment with my nurse today.

She was really pleased and amazed about my latest HbA1c of 42, from a high of 72 at the end of December. I had typed up a few notes of what I'd done to show her (in a nutshell - 2 months of Blood Sugar Diet and the following weeks on more calories but still low carb high fat with some fasting - plus I mentioned the support I had from this site and forum). She was so excited - and wants me to write the details up again with an introduction as well, so they can put it into their magazine for other patients to read! She is so up on the latest research and totally agrees with me that low carb is the way forward and in her words that low fat diets are based on 'one piece of flawed research from the 1950s'. She says she has had one other patient reverse their diabetes using the Newcastle Diet and that they were just as evangelical as I was.

I showed her my copy of The Diabetes Code by Dr Jason Fung and she wrote down his name as she wants to read the book herself (whoop! @bulkbiker @DJC3 - hopefully a new Fung fan is born!).

She totally understands that the current guidelines do not work, but it was heartening to hear that she feels the low carb message is really filtering through now as more and more research becomes available, and at some point the guidelines will catch up. She also agreed that my cholesterol profile, although the total has risen, has improved with higher HDL and low trigs and that the ratios are what counts. She said - "which means I won't be giving you a statin" - I responded, "that's good, because I wouldn't have taken it!"
I won't have my bloods taken again for another 6 months now.

She had another nurse sitting in with her and at the end she said, "thank you so much, you have really made our week!"

I hope this experience gives other members on here some encouragement that low carb is becoming more well-known and that times are changing - although at the same time I realise I am very lucky to have such an exceptionally forward-thinking nurse.

Edited to add: I forgot to say the most important point of all - THANK YOU everyone on this forum, without your support I wouldn't have had the confidence to stick with the LCHF lifestyle, let alone tell my nurse this is what I had done - most of the information I have found to help me has been from this site, you are all wonderful.
Well done you - I am so pleased for you.

I notice your HB thingy has gone down a lot, could anyone advise on why mine has stayed at 41 for 18 months, yet I have lost 2.5 stone doing low carb, plus my cholesterol ratio has gone down to 2.9 from 3.2 - I assumed that the hb thingy would also go down with my weight.
 
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eggs11

Well-Known Member
Messages
638
Type of diabetes
Type 2
Treatment type
Diet only
Well done you - I am so pleased for you.

I notice your HB thingy has gone down a lot, could anyone advise on why mine has stayed at 41 for 18 months, yet I have lost 2.5 stone doing low carb, plus my cholesterol ratio has gone down to 2.9 from 3.2 - I assumed that the hb thingy would also go down with my weight.
Hi @Kittylitter, thank you. Re. Your HbA1c - do you test your blood sugars at home? If so are they giving you readings that would suggest a lower HbA1c? I ask as sometimes our HbA1cs don't accurately reflect what's going on with our bloods - I know @Brunneria and @Bluetit1802 have experienced this and I myself, although pleased with 42, have found my home testings would have indicated an even lower result. Obviously home testings aren't foolproof as they aren't catching every level of blood sugar throughout the day, but it's something to compare against the hbA1c.
 

Kittylitter

Well-Known Member
Messages
116
Type of diabetes
Prediabetes
Treatment type
Diet only
Hi @Kittylitter, thank you. Re. Your HbA1c - do you test your blood sugars at home? If so are they giving you readings that would suggest a lower HbA1c? I ask as sometimes our HbA1cs don't accurately reflect what's going on with our bloods - I know @Brunneria and @Bluetit1802 have experienced this and I myself, although pleased with 42, have found my home testings would have indicated an even lower result. Obviously home testings aren't foolproof as they aren't catching every level of blood sugar throughout the day, but it's something to compare against the hbA1c.
Thank you for replying - yes my home readings are a little lower than 18 months ago. I have never been diagnosed with diabetes or pre-diabetes, it was just I noticed my HB was at 41 - 1 point away from pre-diabetes, and I decided to lose weight etc, even though the doctor was not worried, and did not like me testing my blood at home to keep an eye on my bg levels, and never told me what the HB levels meant, I just researched them myself as I was given a print off of my blood test results with no explanation or warnings.
 

eggs11

Well-Known Member
Messages
638
Type of diabetes
Type 2
Treatment type
Diet only
Thank you for replying - yes my home readings are a little lower than 18 months ago. I have never been diagnosed with diabetes or pre-diabetes, it was just I noticed my HB was at 41 - 1 point away from pre-diabetes, and I decided to lose weight etc, even though the doctor was not worried, and did not like me testing my blood at home to keep an eye on my bg levels, and never told me what the HB levels meant, I just researched them myself as I was given a print off of my blood test results with no explanation or warnings.
Well first of all a very well done for taking matters into your own hands and going carb and losing weight - you have been really motivated. It's interesting that your home testings have shown an improvement where the HbA1c has not - although if the improvement is small, just the fact that there is a small margin of error on all A1c tests may mean on another day you could have seen a small drop.

Having said that, let me paste below some links that @Bluetit1802 gave me on another thread for why HbA1cs can sometimes be inaccurate - and you can have a read through and see if anything might be relevant to you. I know some people get their levels to where you are and don't seem to go lower, as we're all different, but the good news is you are keeping yourself at a non-diabetic level and your efforts so far can have only helped your control.
Here are the links:
https://pbs.twimg.com/media/DG4FKXNUQAA2rMo.jpg

http://www.gpnotebook.co.uk/simplepage.cfm?ID=x20130320091936685340&linkID=75946&cook=yes

https://www.diabetes.co.uk/news/201...ted-through-hba1c-due-to-anemia-97409751.html

https://www.diabetes.co.uk/forum/th...due-to-red-blood-cell-age-variability.110793/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2581997/

https://blog.designsforhealth.com/hemoglobin-a1c

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3912281/
 
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Kittylitter

Well-Known Member
Messages
116
Type of diabetes
Prediabetes
Treatment type
Diet only
Well first of all a very well done for taking matters into your own hands and going carb and losing weight - you have been really motivated. It's interesting that your home testings have shown an improvement where the HbA1c has not - although if the improvement is small, just the fact that there is a small margin of error on all A1c tests may mean on another day you could have seen a small drop.

Having said that, let me paste below some links that @Bluetit1802 gave me on another thread for why HbA1cs can sometimes be inaccurate - and you can have a read through and see if anything might be relevant to you. I know some people get their levels to where you are and don't seem to go lower, as we're all different, but the good news is you are keeping yourself at a non-diabetic level and your efforts so far can have only helped your control.
Here are the links:
https://pbs.twimg.com/media/DG4FKXNUQAA2rMo.jpg

http://www.gpnotebook.co.uk/simplepage.cfm?ID=x20130320091936685340&linkID=75946&cook=yes

https://www.diabetes.co.uk/news/201...ted-through-hba1c-due-to-anemia-97409751.html

https://www.diabetes.co.uk/forum/th...due-to-red-blood-cell-age-variability.110793/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2581997/

https://blog.designsforhealth.com/hemoglobin-a1c

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3912281/
Thank you so much for all your help - I now have the answer I have low iron.
 

NewTD2

Well-Known Member
Messages
1,563
Type of diabetes
Treatment type
Tablets (oral)
My diabetic nurse, dietitian and the whole diabetic team does not support my low-carbing.

I was actually told that I was CHEATING !!!

I thought by eating low-carb is doing the right thing ...obviously not to the NHS.
 
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eggs11

Well-Known Member
Messages
638
Type of diabetes
Type 2
Treatment type
Diet only
My diabetic nurse, dietitian and the whole diabetic team does not support my low-carbing.

I was actually told that I was CHEATING !!!

I thought by eating low-carb is doing the right thing ...obviously not to the NHS.
That's a shame, but if I remember correctly your endocrinologist was really delighted with your results, so that's something.
 
Messages
6
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Moving at all on days when I feel doggone tired out
Well done, Eggs. And what a good thing your Diabetic Team was willing to listen. I actually managed my T2D for 6 years, from March 2004-March 2010, on diet only, and I logged everything I ate, and had HbA1cs between 5.1-6.0 (sorry, I don't know those new numbers!) for the whole 6 years. When the Team saw my notes they looked at them and said, You must have taken a lot of trouble over this. Well ... obviously! But just think of it, that for the last nearly 70 years we have been stuffing people with carbs and taking away fats from them, and leaving them hungry all the time, and subject to occasional binge eating out of desperation, and a large proportion of the profession still don't seem to have made the connection. 'What do you think of LCHF? you ask them. And either they reply, 'LCHF?', or they sigh sadly, and cough, and say, Well, of course you really need a proper balanced diet... Yes - sure, but my pancreas is bust! Oh, well, you still need a proper balanced diet... So, 11 out of 10 to you Eggs, and to your brilliant Open-Minded-Diabetes-Very-Specialist-Nurse!
 

eggs11

Well-Known Member
Messages
638
Type of diabetes
Type 2
Treatment type
Diet only
Well done, Eggs. And what a good thing your Diabetic Team was willing to listen. I actually managed my T2D for 6 years, from March 2004-March 2010, on diet only, and I logged everything I ate, and had HbA1cs between 5.1-6.0 (sorry, I don't know those new numbers!) for the whole 6 years. When the Team saw my notes they looked at them and said, You must have taken a lot of trouble over this. Well ... obviously! But just think of it, that for the last nearly 70 years we have been stuffing people with carbs and taking away fats from them, and leaving them hungry all the time, and subject to occasional binge eating out of desperation, and a large proportion of the profession still don't seem to have made the connection. 'What do you think of LCHF? you ask them. And either they reply, 'LCHF?', or they sigh sadly, and cough, and say, Well, of course you really need a proper balanced diet... Yes - sure, but my pancreas is bust! Oh, well, you still need a proper balanced diet... So, 11 out of 10 to you Eggs, and to your brilliant Open-Minded-Diabetes-Very-Specialist-Nurse!
Thanks - and well done to you for sticking to your plan despite the lack of understanding from others of how healthy LCHF is for diabetics. "we have been stuffing people with carbs and taking away fats from them, and leaving them hungry all the time" - my thoughts exactly - low fat diets have been my downfall unfortunately - glad my diagnosis forced me into looking for a better solution.
 
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jfreak

Newbie
Messages
1
Type of diabetes
Type 2
Wow. That is fantastic! I dropped my Hba1c from 81 to 45 in 4 months (I'm steroid induced diabetic and am on insulin as I can't take the pills)....and? I had to switch to my doctor for care as my nurse hates me for it. She wanted me to eat loads of carbs and I can't because I'm allergic to so much except rice and kumara and she said stay away from them. I also won't eat anything that spikes me and I learned to count carbs and she knows next to nothing about food - to the point that she tried to bully me about being able to have chickpeas but not hummus because - she claims - "chickpeas have sesame seeds!"....explaining they don't was embarrassing, to say the least. On the other hand, my doctors love me for it. ANYHOO, congratulations! Low carb works so well. =)
 
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jwt44

Newbie
Messages
1
Type of diabetes
Type 2
Whoop whoop indeed.. well done you!
Same here,very high hba1c which scared me. Dr prescribed Metformin and Statins. Decided I wasn't happy with meds so started on low carb/high fat, 3 months in I have lost 2 stone and as my nurse enthusiastically announced i am now in remission
Why Dr's dont heed the latest statistics for this change in diet I do not understand.