Assistance needed?

[LittleWolf]

Ok. I said I would not bother people on this forum anymore. I said I was not diabetic because the GP said I am not and has stopped replying to my emails

I stopped smoking and started a pole fitness class once a week. Healthy, right? My blood sugar is only 10.5 and my urine tests have been showing the same thing for the last week.



Is this a cause for concern or not. If it isn't I will go away and stop being a hypochondriac...

Thanks


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[Andy12345]

awwww your not bothering me lol, I don't have a lot of faith in doctors so..... on the other hand I don't know about the pic, good luck getting an answer

 

[mo1905]

Hi Littlewolf, I can't really make the pic out too well but BG 10.5 is a little high ? Hope all is well. BTW, if your doc is ignoring emails, don't email them. Go see them !
Mo

 

[Netty70]

Nothing is a bother for anyone on here you ask anything you want someone will always have an answer
But I do agree with other posts get back to the docs
Good luck


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[LittleWolf]

I have been back to the docs... Twice in the last month. Once mentioning the extreme back pain I was in which turned out to be from a UTI after I did my own dipstick. I was given Amoxicillin after my root canal which cleared it up so thats fine.

I came back to review my fasting blood sugar results. One was 7 (though a different doctor said it was 6.5) and the other was 12.5. The second doctor said because the first was under 7 I am not diabetic; go home, stop worrying, even after I showed her my food and BG diary an told her my blood sugar goes as high as 19.4.

She said she 'cannot explain' my blood sugar levels, but I'm not diabetic.

This is making me very depressed and frustrated. I wonder if it's even worth being so proactive if they tell me I'm being paranoid, maybe I should just try and ignore it. Other people my age (20) at uni are out partying and eating student snack food and being lazy slobs... I honestly don't know what to do anymore. I even phoned Diabetes UK Careline. They said they understood my frustration and wished me the best in getting the help I need and to 'keep them uodated'. That's all,

This is my ketone reading next to the color chart. Looks about as dark as the maximum... or darker. The number next to the last color square is 16. I don't know what number is supposed to be Bad.

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[wiflib]

I can see that you are producing high levels of ketones in your wee. Without any further info, it's impossible to guess at what's happening but based on a high BG and ketones alone, I'd suggest you take a trip to A&E.

 

[angieG]

I can see that you are producing high levels of ketones in your wee. Without any further info, it's impossible to guess at what's happening but based on a high BG and ketones alone, I'd suggest you take a trip to A&E.

I agree with this too. Have a good 'healthy' high carb meal and a couple of hours later when you should be back to normal levels go to A&E and say you feel like you are going to pass out or something! Maybe when your Doctors get the Consultants letter they may rethink their diagnostic methods.

Hope you get sorted soon, good luck.
Angie

 

[LittleWolf]

Thanks. I know I just sound like I'm going moan moan moan, shouting for attention but I couldn't think I anywhere more appropriate to do it.

I'm not sure if A and E would appreciate me turning up with BG under 15mmol. Categorically I am not at risk of DKA. I'm very confused though. I had a good carby meal, 2 hours later at 9.2, still with ketones.

They must be so used to T1s in real trouble then in I traipse and I'm not even diagnosed. I know I need to get over this horrible guilt that I'm wasting people's time... It did take over a year of paranoid nagging to get my PCOS, endometriosis and perforated uterus diagnosed, and I still have unexplained symptoms. I just hate the feeling of going to my doctor and knowing they are going 'oh, it's her again'.

So very angry and frustrated. I'm 20, 110lbs, into many sports and dance. I'm scared they'll take one look at me and think I'm nuts. Timewaster...

Thanks I letting me rant. I do appreciate your support and I only wish I could give enough back.

I have so much coursework to get on with. I need to do so much around the house. I know it will likely take up the entire day, but if BG or ketones don't go down by tomorrow I will go.

But my dad is sick of it too. Ive passed out on public transport or at school and been taken to hospital before and he's just been ****** off that I'm home late again, doesn't believe that pills made me worse and shouted at me because he was asked to come take me home from hospital because he has 'better things to do'. My ma just reminds me of how much money I must be costing the NHS

So upset. I NEED to be at my best for this next year of university. I already have to redo last semester Now in my holiday because I was in hospital on my coursework deadline and I already dropped out of my first year on another course because I was again, sick in hospital for too long and fell behind... Then had to pay back my student loan for the year I wasn't even there out of my pocket...

Sorry I'm whining so much.. It's just been bottled up inside




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[angieG]

Have you tried doing your own GTT test? I know someone on here did one with some Lucazade or something a while ago. (I think Pheonix put some information up about the method / requirements)
Keep testing and keeping records of everything and if you feel rough at any time go to A&E and let them check you out.
Regards
Angie

 

[Andy12345]

sigh, there are many issues here, first thing is to change your GP and parents, stop worrying about what other people think and drive them nuts if you have to, you obviously have medical problems and its there job to sort it out, try to keep calm, ignore the a***oles, get yourself help, go to a&e they will have to help, best wishes

 

[LittleWolf]

The funny thing is straight up glucose is tolerated more than fructose or carbs on bread and things. I couldn't believe my BG never went over 10.9 with Lucozade. But when I made up 75 grams with supposedly health bran flake and orange juice it went like this

35 minutes (I felt a bit funny): 16.6

1h: 13.2

2hours: 8.2

3hours :8.3

4 hours: 7.8

On another occasion I had a handful of ritz crackers and was in the 14s for the fort two hours, 13 at 3 hours, then 8 at 4 hours then just stopped testing, but I didn't chart that properly or anything.

Wheat crackers are Satan. It was wheat prawn crackers that gave me my highest reading of 19.4 at 1 hour, 10.2 at 2 hours.

Fruit juice sends me up to 15s/16s. I find it absolutely nonsensical that tests with table sugar and Lucozade don't out me through the roof. Only makes it more complicated for anyone trying to make a diagnosis

My dad thinks I'm a smart ass if I try and tell him about the carb content of the cereal he buys. He bought bran because he thought it would help his high cholesterol and doesnt believe in 'good' cholesterol.

I wish I could get him on my side with going to the doctors and stuff but I know I'm 20 years old I SHOULD be able to handle this on my own...

Head is ******* pounding now :'(


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[LittleWolf]

Thanks Andy.

I hate the idea of upsetting my parents because they pull the whole 'we've put up with you and your issues for 20 years and you live under our roof' guilt trip. And shout. And get physical. Then they argue with eachother about whose fault it is that I came out screwed up

I will make a nuisance of myself at the surgery tomorrow. The first Dr I emailed about my numbers asked me to check for ketones (as protocol) and I didn't have them at the time. Now that I do he might listen. Though it makes no sense as my BG is not sky high, my HbA1c is normal I'm told. Haven't got much of a leg to stand on beside my recordings and photos of dipstick tests/BG meter readings, but of course they are asking why the hell I am testing my own blood and urine anyway.

I will try...Thanks everyone...


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[janeecee]

This is ridiculous! Those GPs need to sit up and listen for once.

OK, just a few random thoughts. Are you eating? If so, are you eating enough? Lack of food can put you into ketosis if your blood sugar runs low, or if you aren't getting enough calories. Are you skipping meals? Eating very small meals?

OK I'm clutching at straws, but in my efforts to get my BG down by cutting carbs I ended up cutting calories—unintentionally—to the extent that today I was in ketosis between meals and feeling very out of it, debilitated and nauseous. I couldn't function at all. Not only that but I was so hungry I couldn't think straight. I stood on my scales this morning and was shocked about how much weight I've lost in recent weeks. My BMI is now down to 19.1. Another 4lbs and I will be clinically underweight. Somehow I need to refeed, but that's my problem… I only checked for ketones because I felt so weird and though I got out of ketosis, I was back in ketosis within a couple of hours. Just wondering IF your eating enough.

(Now, I know people think ketosis is great etc, but my body was in some sort of emergency mode which isn't good for me, and I'm not here to get into debates over the pros and cons of ketosis.)

OK, back to you, LW. This situation can't go on. 6.5 fasting is prediabetic and they should diagnose you and advise you on prediabetes at the very least.

As for going to A&E, you don't have to if there is no emergency. If you stay above 13.5-14 for more than a couple of hours AND you have high levels of ketones then GO! But if not, there's NHS direct, or an out of hours doctor. Otherwise, you could see the practice nurse for another reason, just make one up, and show her your numbers, assuming she runs diabetic clinics as a lot of them do. It's worth a try.

I'm also own my own trying to work out what to do next. I had the same old rubbish from yet another GP last week, and what did she focus on? My weight, or rather lack of it—she said being "lean" will protect me from diabetes. She would not even consider I had a BG problem. So for all those people up in arms about the obesity/diabetes stereotype, remember it works both ways. ;-)


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[tizzy]

Speak to your local pals or such patient liaison service I know it's difficult but don't let them make you feel in the wrong they will try to make you feel others are worse than you to get you off their back you will be the worse off if they don't help you I know myself how difficult it is they seem so superior and make you feel a fool but ask if you we're their relative how would they want them helped and please offer you the same courtesy

 

[LittleWolf]

Hi guys an update.

I have mixed feelings about today's appointment. An OGTT has been ordered, but like I said I cope better with Lucozade than food for some odd reason. Maybe because of rate of absorption vs the rate my body can catch up with insulin.

The GP had to actually go look up the diagnostic criteria for diabetes on the Internet and sat there reading going 'oh isn't this interesting' for 20 minutes. He was perplexed, I had to answer his questions for him. He phoned another doctor and said 'If you could tell me the difference between IFG and IGT and all this nonsense you'd be an angel'. I could tell him that. He also struggled to spell my email address which is a very common Latin word. Ok so I did 3 years of Latin, but shouldn't a doctor be able to recognise the name of a common species when he must come across Latin in his medical training? It's a nice compliment but it makes me worry when I tell him things and he goes 'you're so clever!' when he's the one with the qualifications @_@

As far as he's concerned anything under 11.1 after the OGTT is absolutely fine and he wont look at my case any further. He said my high blood sugar spikes were intriguing and seemed to think it was really cool and started wondering about how many *perfectly normal* people spike to nearly 20. After half a bag of crisps.

What The ****

He was going to refer me to a specialist because he had no idea how an OGTT is performed, but after looking it up on the Internet and asking another doctor he decided to do it at the surgery. If he sends me home and cannot explain my crazy BG swings and spikes I give up.

I officially will stop caring, stop testing and what happens to me happens to me...




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[janeecee]

No, don't give up! Keep your diet under control as best you can.

If you are 7.8-11.0 you will at least be tested annually and the long term goal is to stop progression regardless of doctors etc.


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[ElyDave]

Don't assume that GPs know what they are talking about.

I have two brothers-in-law who are GPs, onbe now specialises in cosmetic treatments. The other, I visited on Sunday, I took with me Think Like a Pancreas and Handbook of Exercise in Diabetes, offering to lend them both to him. He told me that GPs have almost no time to read stuff like that, and that if I've read them both and with the other stuff I told him, I probabaly know more about T1 than he does after just 8 weeks.

You might say that's a sad state of affairs, but lets face it, a GP is a screening tool fro new illnesses, directing us to the right specialist services, naming our conditions to make us happier, prescribing us drugs and then performing some limited management of our illnesses. And all in ten minutes.

 

[LittleWolf]

The GP also repeatedly misquoted my numbers as lower than stated when consulting another doctor, so think I will email him this.

Someone please tell me I am not paranoid or crazy or a hypochondriac... This isn't normal or healthy is it? I am seeing these sorts of numbers more and more frequently yet he says, smirking, 'I think there isn't a problem at all'

He said its because 'artistic types' are probably too analytical. All in my head



Not sure what else to do. I can't go to A and E unless it's an emergency. Unless I call them and explain the situation and find out if there is a way of referring myself to an endo. Or use my diagnosis of Polysyctic Ovarian Syndrome as that is an endocrine disorder I have received no advice, treatment or support for.


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[LittleWolf]

No, don't give up! Keep your diet under control as best you can.

If you are 7.8-11.0 you will at least be tested annually and the long term goal is to stop progression regardless of doctors etc.


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I won't. They have not heard of any such thing as Prediabetes or a Prediabetes range. He had not heard of IGT or IFG and could not understand the difference when looking them up on the Internet.


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[whompa73]

No, don't give up! Keep your diet under control as best you can.

If you are 7.8-11.0 you will at least be tested annually and the long term goal is to stop progression regardless of doctors etc.


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I won't. They have not heard of any such thing as Prediabetes or a Prediabetes range. He had not heard of IGT or IFG and could not understand the difference when looking them up on the Internet.


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Many havent and diagonse pre daibetes as diabetes I beleive that is why people keek saying they have cured it. My aunt was told she was diabetic several years ago and ik she has lots weight but she eats carbs snd sugar without a thought. But has now been told she is no longer diabetic. She dose/has not taken medication for it. And thr only symptom is numb feet which could be down to water retention. I do feel though that it has given her a slightly squed idea of it