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Autoimmune experts

Discussion in 'Parents' started by Shinealight, Sep 25, 2019.

  1. Shinealight

    Shinealight Type 1 · Member

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    Hello, I am trying to find out if anyone has come across any health care / licensed alternative health care professionals who are really expert in treating the overall autoimmune system. My 8 year old daughter has T1, vitiligo and is awaiting a confirmed diagnosis of morphea. It seems to me we need to be looking at her whole autoimmunity but with someone with proven experience and success in lowering the body's autoimmune response.
    Any advice gratefully received.
     
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  2. ert

    ert Type 1 · Well-Known Member

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    I've questioned my specialist about this. It would appear that as type 1's have insulin, there is little funding or progress in terms of researching autoimmune suppressants. They certainly have made better progress with rheumatoid arthritis and MS along these lines.
     
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  3. Shinealight

    Shinealight Type 1 · Member

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    Thank you Ert for your reply... You're right I'm surprised that each disease is only treated separately but as I'm trying to do my own research you've given me another (rheumatology) line to look into. X
     
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  4. Marie 2

    Marie 2 LADA · Well-Known Member

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    Do try B vitamins for the vitiligo, it can help sometimes. A lot of the alternative care doctors will specialize in helping the immune system. But helping the immune system is different than autoimmune problems, which is an overactive immune system. A much harder thing to deal with. I believe there is still a lack in this area in the natural world too. More of a modern day development, so it might be a harder find.
     
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  5. Shinealight

    Shinealight Type 1 · Member

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    Thank you very much Marie, I will look into B vitamins for vitiligo. X
     
  6. ickihun

    ickihun Type 2 · Master

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    My Endo left for Dubai.
    They are a rarity in the nhs. More and more each day.
    Very complex field, not for the fainthearted to train to be either. A mistake can be disastrous. The nhs like safe, even to some peoples detriment. All risk assessed these days.
     
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  7. Indy51

    Indy51 Type 2 · Expert

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    I'd urge anyone with an autoimmune disease to watch the following presentation by Dr Alessio Fasano on intestinal permeability as a necessary factor in autoimmunity. Gluten in particular seems to be related to intestinal permeability.



    If you go into PubMed and search for "gluten + {insert any autoimmune disease}", you're almost assured to get results back.
     
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  8. Shinealight

    Shinealight Type 1 · Member

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    Thank you Indy51. I will look at this with interest.
     
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  9. Veryanxious

    Veryanxious Don't have diabetes · Well-Known Member

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    You should look into paleomedicina. They are helping lot of people with autoimmune.
     
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  10. bizzilizzi

    bizzilizzi Parent · Member

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    Well I’m in a family full of auto-immune goings on - two of my siblings have coeliac, I have ankylosing spondylitis, my husband has T1D and my daughter has both T1D and coeliac - so I’m very interested in anything you find out about this.
    My sister is more into alternative/natural remedies for things than me (mainly due to where she lives it’s both difficult and expensive to get modern medicine) and she’s very into this gut permeability thing. Here’s an article she forwarded me that’s aimed at coeliacs but is also very relevant for other auto-immune diseases, you might find it interesting.
    https://gluten.org/looking-beyond-g...portive-diet-long-term-health-celiac-disease/
     
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