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Be honest, how -are- you doing?

Discussion in 'Type 1 Diabetes' started by daemoncor, Mar 19, 2018.

  1. LooperCat

    LooperCat Type 1 · Expert

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    You’ve got every right to make adjustments to your doses, it’s your body. I’m always fiddling about with mine. You do what keeps your BG where you want it, as long as you eat enough to keep you fuelled for what you want to do x
     
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  2. h4kr

    h4kr Type 1 · Well-Known Member

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    I’m on 17 lantus in the evening, have been tweaking it up and down since I started trying to find the right level for me. Having my pancreas butt in every now and then doesn’t help. But agree.. my body I’ll do what I think is right (even if it’s wrong - and I have been wrong a few times lately).
     
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  3. Circuspony

    Circuspony Type 1 · Well-Known Member

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    Me too. I've changed all the settings on my Accu check since last DN appointment.

    Pondering over why I am at 13 today when I have had the same morning routine for a while. I had an allergic reaction to something yesterday and took piriton, so thinking that might still be causing problems in the background.
     
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  4. **shell**

    **shell** Type 1 · Well-Known Member

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    How refreshing to be asked how you are really doing without the condescending look (and comments) when you are up front and honest and say "hey I'm not perfect".

    I am having a rubbish time at the moment but I have probably been having a rubbish time for a while but just ignored it.

    I am constantly riddled with guilt about how I manage by diabetes and know I should do better. I am more than aware of the consequences of poorly controlled levels but I often find myself like a rabbit caught in the headlights.

    I am trying though, I have bought a Libre, I am writing a food diary (attempting to lower by carb intake), I am regularly reading things on here and I am seeing a counsellor. I just hope this isn't a phase and I fall back into my old ways.

    x
     
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  5. quintel

    quintel Type 1 · Well-Known Member

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    It’s so refreshing to hear all these answers! I’m really feeling the pressure to maintain my BGs at the moment. I’m 34+4 weeks pregnant with twins and the pressure of keeping my blood within range on top of all the pains and sickness and aches is so tiring Getting a higher reading then riddles me with guilt. 3 weeks left before they’re here but then feeling scared of how I’ll be able to maintain the control I’ve had for the last 9 months whilst juggling 2 small babies is terrifying!
     
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  6. Jc3131

    Jc3131 Type 1 · Well-Known Member

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    I was caught really early with my t1 diagnosis and it seems with the little insulin i take it has boosted my pancreas for the time being.
     
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  7. LooperCat

    LooperCat Type 1 · Expert

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    It’s so hard, isn’t it? I was sick morning, noon and night with my (only) pregnancy, and was sleeping when I wasn’t puking. There was no way I’d be able to do that again, with a child to look after, so I only had one. Sending you all the love and luck in the world xxx
     
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  8. lmsk

    lmsk Type 1 · Member

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    Terrible, sick of feeling ill and the constant bouncing from high to low back to high. Type 1 for 28 years and it's just all gone to pot lately. Really struggling mentally with it makes me feel bad I should be able to deal with all this after all this time but I think it's just getting worse! Doesn't help that no one else in mymlife realy understands and work Def don't. They seem to think it's so simple. I'm gahaviisdues forgetting my nightime lantis several times lately and never done that before but hey ho surely things will get better. So nice to hear it's not just me that struggles and feels guilty!!! Love to all of you
     
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  9. ickihun

    ickihun Type 2 · Master

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    Thankful I'm on insulin.

    When ill I'm very disjointed. Last thing I need is diabetic problems too.
    Although nerve pain is hopefully from bulging disc. Not diabetes.

    Once I can exercise properly I will. Swimming is back on the books. :) :) :)
     
  10. dancer

    dancer Type 1 · Well-Known Member

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    How am I? . . . Not really sure. Blood sugars are playing games that I don't like. When I plan a basal test, I'll go high or low, so have to forget about the test. Had an 18.9 BG one morning this week. All was well once I corrected and changed my set, but that kind of level I can do without, as I've been referred to an eye specialist after retinal screening (it's a 20 week wait for an appointment).

    I'm trying to lose weight I put on after being diagnosed coeliac. I've lost 6lbs since the beginning of January but haven't lost anything for a couple of weeks. Am I bovvered? . . . Well, of course I am, especially as it's most likely due to the jelly babies I've had to eat, when my cgm alerts me I'm going low. . . . and what did I say about basal tests? I have reduced basals, mostly in February, but need to do more testing asap.

    Sometimes I could see my diabetes far enough but this isn't actually one of those times. I'm ok. Monday was an absolutely beautiful day which I think cheered me up for the rest of the week and my dancing added to that good feeling.

    How am I? Could be better, but I'm fine, thanks.
     
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  11. Bertyboy

    Bertyboy Type 1 · Well-Known Member

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    I just this morning got me a NovoPen Echo. Felt terrible throwing away all that plastic from the pre-filled pens, and was surprised that the diabates nurse was more than happy enough to hand over some rep stock and change my prescription (she also put my prescription on repeat so I could order stuff online and let me order 200 strips at a time instead of 50. She is my new best friend).

    On the down side, having thought I'd nailed BG control as a T1 diagnosed >4 months ago, I've been struggling to keep numbers down for the past 2 weeks. Even tweaking basals up I end up waking up in the 7s and 8s. Even this small overshoot has left me feeling a bit **** (adding to the stress of work at the moment). I'm paranoid about getting a hypo (only had one mild one so far), so I'm not confident to start doing Novorapid corrections. And to boot, I've caught something off someone and the "pneumonia" jab I was encouraged to have has left my arm with what feels like a hot golf ball in it.

    So, nothing I can't deal with, but diabetes no longer feels like the breeze I thought it was.
     
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  12. vaughanie

    vaughanie Type 1 · Member

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    Just had my annual bloods done and to be honest I was expecting mixed news. I seem to go in 3 month cycles of improved control followed by poor control and on and on. I am in my poor control cycle now with Hbac1 80% above where it should be but good weight, 0.2 above for Cholesterol and ideal blood pressure. I know it would great to get my blood sugar bang on but I'm nearly 50 hanging in there. I need a dog collar shock thing to keep me away from Greggs I try to stay positive because there are so many worse conditions I could have. Not everyone you see is a healthy as you might think.

     
  13. Glucobabu

    Glucobabu Type 1 · Well-Known Member

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    So true. Weekend causes problems to most of us. As does eating out, be it at friends relatives or a restaurant!
     
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  14. Glucobabu

    Glucobabu Type 1 · Well-Known Member

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    Oh no, I can never forget I’ve got diabetes. However after 43 odd years I am a little relaxed about it, to the point that most people I know forget that I am Type 1 or say I don’t look like one!
     
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  15. johnpol

    johnpol Type 1 · Well-Known Member

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    How am I doing?? Fineish (if that's a word) working on getting my blood's in range. Have some issues with my eye's (which is worrying) but I'm always trying to be positive, after 23yrs you have to be. Healing going well with cataract surgery, but I find that when your sugars aren't doing what you want, at all, you need to just carry on. Unfortunately my diabetes isn't going away so as a sign has said carry on regardless. Thank you for listening
     
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  16. mountaintom

    mountaintom Type 1 · Well-Known Member

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    Waking up in the 7’s and 8’s is awesome!
     
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  17. Bertyboy

    Bertyboy Type 1 · Well-Known Member

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    Until now, I've managed to keep it to 5s and 6s. Perhaps I'm taking the '4-7' target range too much to heart. I assumed it to mean "aim for 5.5".
    The diabetic nurse today also said my last A1C result of 40 was "a bit too low", which pricked my smug-bubble (having got it down from 152 in November). I thought that was supposed to be about right?
     
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  18. Glucobabu

    Glucobabu Type 1 · Well-Known Member

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    Oh please never think you are alone in this whether it’s 28 weeks or 28 years. People take your condition for granted or aren’t really interested in it. We all suffer, it’s a never ending struggle but then as my dear wife often reminds me, just think of the people who are suffering from far more debilitating conditions than you are and put things in a better perspective. You try your best and don’t feel guilty about occasional failures. We are only human.
     
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  19. deb1960

    deb1960 Type 2 · Well-Known Member

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    Ummm bread. It's the thing I miss the most. It seems unfair that I can eat butter but it's the crusty fresh loaf that's missing.
     
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  20. deb1960

    deb1960 Type 2 · Well-Known Member

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    Oh Tracey I really feel for you. I wish that I could give you a big hug. Take care, deb x
     
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