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Been denied FreeStyle Libre
- Thread starter karl76uk
- Start Date
- Messages
- 5,228
- Location
- Worthing, UK.
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Not being able to eat as many chocolate digestives as I used to.
I have the same issue down on the south coast. Bur Endo' showed me written instructions from the CCG so not really the hospital's fault.
Rokaab
Well-Known Member
Same for Berkshire West, no-one gets them no matter what -I got my CCG to send me the details.
karl76uk
Member
- Messages
- 13
I meet all the criteria but they say 10 is not enough. Hospitals live to keep people sick.
enzina
Well-Known Member
- Messages
- 289
- Location
- London
- Type of diabetes
- LADA
- Treatment type
- Insulin
- Dislikes
- pain, being dependent, egoistic people & jealousy
Same here, i saw my consultant last week and she said Islington CCG will most properly approve from April on. I told her i have heard the same thing a year ago.. She also said the best reason for qualifying is the good control i'm having since i use the Libre.
D
Deleted Account
Guest
It is frustrating isn't it?
However, hating the NHS is not the answer. If it was not for them, you would have to pay for your insulin and test strips and may not be alive today.
Libre is great but it does not stop you having hypos; it does not even alert you when you are having one: the Libre can tell you you WERE low, it can tell you when you WERE high, it can show you graphs for the last 8 hours (and more) but you have to scan it to get this information (unless you have purchased additional gadgets).
It is not great that you are losing hypo awareness and you have passed out. Can you work with your diabetes team to work out why this is happening and what you can do to avoid it in the future?
Things are changing - two years ago no one had NHS funded Libre, in April more of us should, 20 years ago no one had finger prick test meters but all of us with type 1 in the UK do now.
Change may not be happening as fast as we would like but it is happening.
However, hating the NHS is not the answer. If it was not for them, you would have to pay for your insulin and test strips and may not be alive today.
Libre is great but it does not stop you having hypos; it does not even alert you when you are having one: the Libre can tell you you WERE low, it can tell you when you WERE high, it can show you graphs for the last 8 hours (and more) but you have to scan it to get this information (unless you have purchased additional gadgets).
It is not great that you are losing hypo awareness and you have passed out. Can you work with your diabetes team to work out why this is happening and what you can do to avoid it in the future?
Things are changing - two years ago no one had NHS funded Libre, in April more of us should, 20 years ago no one had finger prick test meters but all of us with type 1 in the UK do now.
Change may not be happening as fast as we would like but it is happening.
karl76uk
Member
- Messages
- 13
The NHS are ****. They mess around with my dads health all his life and kill him by making him sicker. This was in Guys and St Thomas.
karl76uk
Member
- Messages
- 13
Also it’s tax and national insurance that pays for it.
ChrisJ_SLH
Member
- Messages
- 24
- Location
- Gateshead
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Lack of bacon.
What annoys me most about this is the inconsistency between CCGs. I'm a very frequent tester and have been lucky enough to not have any issues getting the test strips I need. My sister, who is also a Type 1, lives in a neighbouring county is effectively rationed.
No compensation for the original poster but for info I was accepted for a Libre this week on the basis of frequent testing (~9 per day). The clinical guidelines for the area I live in are 8-10 tests per day, unable to self manage or loss of hypo warning signs/brittleness. I still have to wait until April though (after first enquiring last October).
No compensation for the original poster but for info I was accepted for a Libre this week on the basis of frequent testing (~9 per day). The clinical guidelines for the area I live in are 8-10 tests per day, unable to self manage or loss of hypo warning signs/brittleness. I still have to wait until April though (after first enquiring last October).
buckmr2
Well-Known Member
- Messages
- 113
- Location
- Chester-Le-Street
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Exercise
Sorry to hear you can't get one at the moment .This should change in April.
I've been lucky as I was asked last Spring a month or so after enquiring about the Libre if I wanted to do a 6 month trial with 19 other T1s and as it improved my Hba1c I was allowed to keep it subject to quarterly reviews .Everyone on the trial ended up keeping it.
Regarding your control
I would suggest you ask your Diabetes Nurse if there are any DAFNE (Dose Adjustment for Normal Eating) courses coming up near you.This is a 5 day course that transformed my diabetes control and all others on the course.It teaches you how to carb count and adjust insulin,give correction doses.Each day your "slide" of daily blood glucose readings and insulin doses etc goes up on a projector and is discussed with the group, the diabetes nurse and diabetes dietician on how to adjust your insulin.After a few days often patterns arise so you can see what your basal and bolus insulins are doing allowing for how long your insulins are working.Very educational and I wished I had done the course many years ago.Key things I learned were to inject when your meal is infront of you so you inject for the carbs you are eating which stopped me chasing my tail and overcorrecting ,how to adjust when ill, or excercising,ketones,stress.
Which foods have quick/medium/slow acting carbs
I thought after 46 years with T1 I knew it all until doing the DAFNE course
Good luck and hopefully you'll only have to wait until April for the Libre
I've been lucky as I was asked last Spring a month or so after enquiring about the Libre if I wanted to do a 6 month trial with 19 other T1s and as it improved my Hba1c I was allowed to keep it subject to quarterly reviews .Everyone on the trial ended up keeping it.
Regarding your control
I would suggest you ask your Diabetes Nurse if there are any DAFNE (Dose Adjustment for Normal Eating) courses coming up near you.This is a 5 day course that transformed my diabetes control and all others on the course.It teaches you how to carb count and adjust insulin,give correction doses.Each day your "slide" of daily blood glucose readings and insulin doses etc goes up on a projector and is discussed with the group, the diabetes nurse and diabetes dietician on how to adjust your insulin.After a few days often patterns arise so you can see what your basal and bolus insulins are doing allowing for how long your insulins are working.Very educational and I wished I had done the course many years ago.Key things I learned were to inject when your meal is infront of you so you inject for the carbs you are eating which stopped me chasing my tail and overcorrecting ,how to adjust when ill, or excercising,ketones,stress.
Which foods have quick/medium/slow acting carbs
I thought after 46 years with T1 I knew it all until doing the DAFNE course
Good luck and hopefully you'll only have to wait until April for the Libre
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