Great thread! I've only been diagnosed 6 months and my favourite so far....
Visit A&E with suspected broken rib. Write on the admission form that I was diagnosed T1D in that department 10 weeks prior. Triage nurse crosses out T1 and scribbled T2 over it. When I correct her she tells me I'm much too old for T1 so I am wrong. Me: no, definitely T1 I'm even showing positive on 2 antibody tests. Her: well what medication are you taking then? Me: well I've written it on the form it's lantus and novorapid. Her: you'd be taking insulin if you were T1. Me: they ARE insulin!
In the run up to diagnosis my GP had assumed I was type 2 and gave me tablets and told me to test my BG over the next few days. BG kept rising so I phoned surgery only to be told by one of the GPs that she didn't 'do diabetics' so I needed to wait until Wed until one of her colleagues was in. A&E 48 hours later....
Not good when they get patients mixed up. It was years ago now when I was admitted to hospital because I was going to be induced. I was put in my own room and when the sister came to register my details she called me a liar when I replied that my husband was my next of kin. She informed me that I wasn't married and wanted my father's name. Then I was given a physical examination that was more like torture. By the time my husband got there I was a nervous wreck and in tears. It seems they had mixed me up with a girl who was bought in from a nearby prison to have her baby. My consultant soon had me moved to the ward I should have been in. The 'prisoner' later absconded before giving birth and took money and jewellery from other patients on her way out, wearing just her nightie, dressing gown and slippers.
Then two weeks later, after giving birth, I was mistaken for another diabetic lady. We were testing our own urine and noting our records. She was showing high sugars whereas mine were good. The nurse had mixed our notes up and my consultant wanted to give me a large insulin dose. When I explained the mistake he threatened to have the nurse thrown out of the hospital because of the possible consequences.
Always worried now about being admitted to hospital as twice in less than three weeks was scary.
43 years later I do sometimes think about it, especially when my son's birthday comes round. I was only 20 at the time so was really scared. If I was as experienced and wise as I now am, there would have been hell to pay. At the end of day though, I gave birth to a beautiful baby boy and I would have gone through it all again to have had him.Oh my!..... That is absolutely hideous and beyond belief.. I am in awe of how awful that must have been for you..
If it wasn't so frightening it would be funny.. Absolutely unbelievable!.. Your experience has actually made me angry just thinking about it. I would have struggled getting over that. Honestly..
43 years later I do sometimes think about it, especially when my son's birthday comes round. I was only 20 at the time so was really scared. If I was as experienced and wise as I now am, there would have been hell to pay. At the end of day though, I gave birth to a beautiful baby boy and I would have gone through it all again to have had him.
my hba1c was 46, the dietician told me to look to increase my hba1c.. ?? (because i have some hypos) and told me to relax my control
I've been told that a couple of times too!I had my yearly check last week and was told that my insulin control is too tight and that I need to relax my control
I've been told that a couple of times too!
So I'm supposed to relax, even while I'm already failing?
Hi kev-W, I am so happy for you, I am trying to get one from York Hospital at the moment but I am getting nowhere and am very frustrated! Is there a magic set of words to say??! I have frequent hypos, migraines from hypos and am generally struggling... I have written to my MP and diabetes UK to try and help me. I will never give up, just annoyed at how long it may take... is there any more local campaigning you know about specific to York I could get involved with?"Kevin, you can have the libre on prescription for 6 months"
The sweetest thing I've ever heard from the NHS
After having troubles from my GP due to testing too much I went to my endo and he came out with "4 tests a day should be enough for you, no?". Literally the minimum testing they can give. They already know I'm active in strength sports and I quite like to know my level before doing 'dangerous' lifts (330lbs+ benchpress for example). Pretty sure the NICE guidelines even say to allow a t1 to test before, during, and after exercise. That's 3 strips alone.
Got given a freestyle libre trial but that lasts for 2 weeks only and prescription is not covered in my area. I've been told numerous times my control is too tight, and other times that my control is near perfect/is perfect. I wonder how much diabetic burn out or hopelessness is caused by doctors.
Compromise is not always failure.
Being outside a range you have been told to be inside is not a compromise. It's a failure.
I'm told to be between 5 and 7. I am often outside that range. That is not a compromise. That is a failure. You can make all the excuses you like, the damage will still happen.
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