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BG between 15-30 cant get it down!

lox2

Newbie
Messages
3
Type of diabetes
Type 2
Treatment type
Tablets (oral)
hi, ive always had 'normal' bloods but recently they are so high my meter wont even read it! Ive not yet been prescribed insulin but drs say i am definately being put on it, im just being passed around from gp to hospital to nurses and no one is actually giving me the insulin!

What can i do???? Im just getting nowhere and BG is out of control!

HELP!!!!! :)
 
Hello @lox2 Welcome to the Forum :). I will tag @daisy1 who will provide you with some basic information that all new members receive on joining the Forum.
How old is your meter?
Try not to worry as this will only raise your Blood Sugars.
When I was told that I would be going onto Insulin it was 4 weeks wait, but I was on other Diabetic Medication.
You could ring your GP Surgery on Monday morning and ask if they have any updated information about the start date for Insulin.
 
Hi @lox2 .. and welcome
I agree 100% with @Liam1955 .. but I would suggest that you *insist* on seeing a doctor and getting a sensible explanation. There's always 111 or A&E as well ..
 
@lox2 . Maybe some more information would help people to advise you.
What medication are you currently taking?
What tests have you had by GP to determine that you definitely need insulin?
Other than your meter readings have you any other symptoms?
How long have you been diagnosed T2?
 
How low is your carb intake Daily in grams and What do you typically eat ?

It is no shame being in a situation where you have to get adding insuline , after all most type 2 already when diagnosed have burned off parts of the cells in their pancreas and How much it has progressed at diagnosing time most of us do not know . So we can end up needing insuline, which is a normal thing to have in ones body and not something to avoid if one really need it . It is well not a medication in the ordinary understanding But more like a replacement of What should be in our body anyway ...

So if you need it and dont produce enough anymore Then dont fight getting on it , cause that can be very damaging to your body and over time lifethreatening
 
Last edited:
Hello @lox2 and welcome to the forum

While you are waiting for the medical profession to get a move on with sorting out your insulin you can lower your numbers by eating less carbs - try eating less / avoiding bread, fruit, potatoes, flour, rice, pasta and anything with sugar in it.
 
hi, I was diagnosed in 2014 as type 2 but still being tested as they believe I am in the MODY group,! Have been on metformin ever since but it seems to have stopped working now!

Mylast HBAC1 test was 149, usually around 49 which is why Drs called me in for more blood tests and have decided on insulin based on this.

Im just not sure who I should be nagging at to sort me out as Ive only ever seen my hospital team every 6 months but theyre refusing to see me until June!

No matter what I eat my levels are high, first thing in morning 14-19. I will definately avoid the carbs mentioned above until I see dr again!

Thank you for replies :)
 
@lox2 You do need to be seen. Your GP can provide insulin if it's needed. Push and don't be put off. High sugar levels are damaging.

It doesn't take two years to diagnose MODY surely? If it was me, I'd be pushing very hard and getting the meds and support I needed.
 
@lox2

Hello and welcome to the Forum :) Here is the Basic Information we give to new members and this should help you to get your levels down. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 147,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why :)
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Please demand to be seen urgently as something is clearly not working for you. Meanwhile until you get seen revise your diet to make sure you're not taking in too many carbs. If you're diagnosed as type 2 I would also suggest you ask them to do the diagnostic tests again... that's the GAD test to check for auto immune and the c-peptide test to check how much insulin your pancreas is producing if any. It's not until you have that information really that you know what you're dealing with. Although they should be putting you on insulin immediately anyhow to gain quick control of your BGLs at the very least. I wish you the best. :)
 
Hi. You must insist that your GP takes action as he/she is responsible under the NHS for your health (if in UK). My GP referred me to the excellent surgery prescribing DN when I needed to move to insulin and she did everything very quickly. MODY can cause confusion amongst the medics and there are tests for that including a c-peptide/creatinine urine test. I guess it's also possible you are simply Late onset T1 if slim and the GAD and normal c-peptide blood tests help with that diagnosis. Either way insist on the insulin being prescribed.
 
thank you everyone, thats the most info ive been given in one day than in the last 2 years, will definately look at my carbs and get back in with gp asap!

My mody testing is only just being done as hospital 'forgot' to send my referrals for 12 months! unfortunately has left me fending for myself! wish id joined here sooner!!!!
 
Hi from the US!! The same thing happened to me after my diagnosis in 2010. I was put on oral diabetic meds which did NOTHING!! I kept telling the doctors that it wasn't helping, but for some reason it just fell on deaf ears, HOWEVER, here in the US (I don't know about Europe), regular insulin is sold over the counter. Obviously it is kept in the frig in the pharmacy and you have to ask the pharmacist to get it, but you have the right to purchase it without a doctors prescription. So I went ahead and purchased a vial and I was EXTREMELY careful in dosing, but it totally changed the course of my diabetes. I told my doctor about my improved BG and immediately she wrote me a prescription. I didn't want to be insulin dependent, but I am. I am not saying go behind your doctors back. In fact if it is legal where you live you can tell your doctor what you want to do. Most people don't know it's legal in the US. I found out by accident myself. For some reason doctors are hesitant to prescribe. Tell your doctor you want to try it to see if it will make a difference.
 
Hi from the US!! The same thing happened to me after my diagnosis in 2010. I was put on oral diabetic meds which did NOTHING!! I kept telling the doctors that it wasn't helping, but for some reason it just fell on deaf ears, HOWEVER, here in the US (I don't know about Europe), regular insulin is sold over the counter. Obviously it is kept in the frig in the pharmacy and you have to ask the pharmacist to get it, but you have the right to purchase it without a doctors prescription. So I went ahead and purchased a vial and I was EXTREMELY careful in dosing, but it totally changed the course of my diabetes. I told my doctor about my improved BG and immediately she wrote me a prescription. I didn't want to be insulin dependent, but I am. I am not saying go behind your doctors back. In fact if it is legal where you live you can tell your doctor what you want to do. Most people don't know it's legal in the US. I found out by accident myself. For some reason doctors are hesitant to prescribe. Tell your doctor you want to try it to see if it will make a difference.

I know here in Australia you can't get it without a prescription. From what I've read on this forum it appears UK is the same. I'm glad you are able to get it without a script there in US. I think they get there insulin OTC in Canada too... not sure they need a script either. It's a nuisance though when script is needed as you have to keep seeing your doc for the scripts... mind you I have a lot of other scripts to get as well so not too much of a bother for me... but may be for others.
 
Yes @Mep is correct, we do require a prescription to get insulin in the UK.

I'm surprised that its available without a script anywhere.
 
The province I'm in Canada you can get certain medications with out a persciption provided that the pharmacy you go tohas your file and a record of your medications.
They call your doctor to confirm. They only give you enough till you can go see your doctor.
 
Regular insulin is the only insulin that you can get here in the United States without a prescription. The fast acting insulins as well as the long acting ones all need a script. The rationale (from what I've been told) is so a diabetic who might be traveling could go to the pharmacy and get some regular insulin if they lose their own supply. It is not well known here in the states that you can do that. I've been a nurse for 30 years and I only learned that 3 - 4 years ago.
 
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