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BYETTA

Discussion in 'Incretin Mimetics' started by Dennis, Aug 22, 2007.

  1. Dennis

    Dennis Type 2 · Well-Known Member

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    Re: Anyone use Byetta?

    Great news Marty - I'm keeping my fingers crossed for you (makes typing a bit of a ****** though!).
     
  2. martinbuchan

    martinbuchan · Well-Known Member

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    Re: Anyone use Byetta?

    Thanks Dennis

    The 5mcg syringe in is my fridge. But I have too much stuff on the next few days - so I will start next wednesday. Having as much spicy stuff as I can get beforehand.

    Cheers
     
  3. xxxleonadxxx

    xxxleonadxxx · Well-Known Member

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    Re: Anyone use Byetta?

    Hi there,

    I am currently on Byetta and have been for almost 18 months now.

    I had struggled with Byetta in the beginning but have now came full circle and its now no longer working.

    I take many many different tablets, along with Byetta and have now been told that I will also be taking pioglitazone, and another 2 tablets and possibly more insulin too. Sadly I am allergic to insulin and as my doc see's this as the only way forward I am facing the possibility of docs attempts at de-sensitising me to insulin in order to allow me to use it ...... no idea how they do that :(.

    Has anyone else had any experience of Byetta NOT working?

    Before I was diagnosed diabetic I was a healthy 11 stone, since diagnoses I have struggled with my weight and ballooned to a high of 17 last year, having now came down to 15 stone, through determination rather than medication, I have hit stalemate and sadly exercise is harder and harder to do ......... I think my body is giving up lol

    Thanks, Leona.
     
  4. Dennis

    Dennis Type 2 · Well-Known Member

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    Re: Anyone use Byetta?

    Hi Leona,

    You have been on Byetta almost as long as me so must also have been one of the first in the country to use it. There are certainly cases of it not working, but these are nearly always due to patients not being to overcome the nausea side effects. I have come across isolated cases of people putting on weight while on Byetta, but in each case the gain has been small and has been down to the patient simply eating more of the bad stuff than is good for them! With a change to a lower carb diet these people all managed to lose the weight again.
     
  5. philipburdekin

    philipburdekin · Member

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    Re: Anyone use Byetta?

    I have been using Byetta for about 8 weeks now and I think it is absolutely fantastic stuff.
    I am now on full dose of 10 units twice daily, I also have 4 insulin injections a day too.

    Prior to taking Byetta my insulin intake was , morning 42 units (rapid) Lunch 24 units (Rapid) Evening meal 24 units (Rapid), long lasting insulin 42 units My wieght was 16 stone since using Byetta I now take morning 10 units (Rapid) Lunch 10 units (Rapid) Evening meal 10 units (Rapid) Long lasting insulin 42 units.

    I take the Byetta up to an hour prior to my Breakfast and again prior to my Evening meal .
    my wieght has dropped by over 16 lbs during this period.

    Fortunately it is supplied on the NHS

    To me me it is well woth the extra 2 injections total daily is 6 injections.
     
  6. thepominlaw

    thepominlaw · Member

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    Re: Anyone use Byetta?

    Been on Byetta about 4 months now, must say it is really suiting me except for the nurse saying i had put on 7kg :shock: my scales at home show an increase of 2kg. I put it down to nurse using 2 different sets of scales. Thats my reasoning and I am sticking to it :lol:

    Must say i have noticed a vast improvement since having it, luckily i have never felt sick not once, but it doesnt make me feel full. Massive difference is in my sleep. I can now sleep through the night without waking up every 2 hours for a pee - first time in years. My H1 whatever has gone from 11.9 when i started to 7.2 when it was tested last month.

    Not had an issue with the injections except being covered in bruises at times. (Nurse gave me 12mm needles) only get the odd hypo (also on Metformin and Gliclazide) other than that this lizard spit really suits.
     
  7. vivkaroo

    vivkaroo · Well-Known Member

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    Re: Anyone use Byetta?

    hiya dennis still waiting for specialist to get back to me finally found out its the glucoghage making me ill gone back on 2 a day bloods are high between 9 and 12 comes down occasionally counting carbs at min hoping he is gonna let me back on byetta now we know its the metformin that was making me ill lost stone 3 lbs on byetta sadly put it all back onbut now we know it was not the byetta sorry to all who were gonna go on it i did say it was rubbish but now i no the byetta was not my problemnow cant wait to hopefully fingers crossed i can go back on it should no by weekend feel 100% better with only 2 metformin a day will let you know if i can get back on it my daughterin law said she doesnt want me to go back on byetta but i explained dennis had explained things a lot to me so she is happier now thanks dennis xx
     
  8. ben3smith

    ben3smith · Newbie

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    Re: Anyone use Byetta?

    Hiya - I have used Byetta and it is available on prescription in the UK. Unfortunately, it had no significant results for me - but there again nothing I am taking is working. Maybe you will be luckier than me.
     
  9. Dennis

    Dennis Type 2 · Well-Known Member

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    Re: Anyone use Byetta?

    Hi Viv,

    If your doctor agrees for you to go back on Byetta, please make sure that you are started back on the 5mcg dose. I know you would have been on 10mcg when you were taken off it, but you have been off it for some months now so it is vital that you re-acclimatise to it by starting again on the lower dose for the first month. I have seen a few people re-started on the full dose and in every case they have become violently ill and their bodies simply reject it.
     
  10. Dennis

    Dennis Type 2 · Well-Known Member

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    Re: Anyone use Byetta?

    Hi Ben,

    If you don't mind my asking, what were you expecting Byetta to do for you that it didn't do?
     
  11. Pumpkin

    Pumpkin · Member

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    Re: Anyone use Byetta?

    Hi all, my first post here.

    I am finding this thread very helpful as I have started Byetta today. Was pleasantly surprised at the ease of the injection despite my apprehension. No nausea thus far! Now time for my evening jab. I will let you know how I get on with this medication.

    (Most people seem to mention their medication; suffice it to say I am on 4mg amaryl and 3000mg metformin - plus loads of stuff for heart disease, blood pressure, and painkillers for arthritis.)
     
  12. xxxleonadxxx

    xxxleonadxxx · Well-Known Member

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    Re: Anyone use Byetta?

    Hi Dennis,

    I was fortunate at the start that Byetta had shown all the good signs that it was going to work for me, apart from my nausea being REALY bad, which kinda made me wish they would take me off it. Docs are struglling now with how to control my 'twistedness' (meant by my consultant in a nice way ... he assures me lol) but I am just starting to get worried as to how they are going to go on and treat me.

    I have been on meds since my diagnosis was reached 3 years ago and since then it just seems to have spiraled out of control, even by the docs own admissions my 'condition' has them scratching their heads.

    I believe I was one of the first on Byetta, I know I was definately the 1st in my area, but now there are a lot more. I even had the chance to meet one of the american consultants that came over to sing the praises of Byetta, mind you at that time I wasn't it was making me mega ill lol.

    Leona.
     
  13. vivkaroo

    vivkaroo · Well-Known Member

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    Re: Anyone use Byetta?

    hi dennis thanks for reply specialist rang me tonight said i can go back on byetta 5first then 10 after month but they will keep close eye on me got to take 2glucoghage aday and increase glicklazide to 1 and half a day got a new diabetic nurse and he is going to keep close eye on me the extra glicklazide is just to help lower bloods as it will be about 2 weeks before i get it think the specialistis playing caution to the wind if you know what i mean,but he is taking me off the glicklazide when i go on the byetta, he did say you no the sickness is a part of byetta dont you i said yes i am a little wary about second time on but think hopefully it should be ok 2 weeks will let my body settle he said thanks for your advice i will keep in touch let you know day i start it bye dennisxx
     
  14. radioham

    radioham · Newbie

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    Re: Anyone use Byetta?

    Been on Byetta dor quite a while now. Yes it dose help reduce weight but it makes me feel sick alot have lost just over two stone but don't like eatting anymore :(
     
  15. jeppo

    jeppo · Newbie

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    Re: Anyone use Byetta?

    Hello
    I have been using Byetta for about 12 months, no side effects, but slight weight loss.
    Blood sugar levels staying steady around 8.0
     
  16. Denis

    Denis · Member

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    Re: Anyone use Byetta?

    Hi everyone

    Just started on my 10mg of Byetta, after a month on 5mg, hope the side effects won't be as bad, had the normal nausea sickness feeling etc, but they soon subsided after a few day's on the 5mg,

    However one thing I have noticed, does everyone go through the new pen setup, as instructed in the leaflet, now my diabetic nurse say's there's no need, but when using my first pen of 5mg I had to turn the dial up twice before anything came out, now on starting my new 10mg pen it took three dial up's :shock: before anything came out, just thought I'd mention it as people could be getting no dose at all for the first few times of a new pen.

    Also does anyone feel the cold more since being on Byetta, looked up on the side effects but nothing about feeling cold, so is it just me.
     
  17. Cornish Maid

    Cornish Maid · Newbie

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    Re: Anyone use Byetta?

    Hello... very new to this forum chat stuff, first time infact so please excuse :? I would like to say I am on the 10mcg dose of Byetta and so far so good (except for feelings of morning sickness) but this has thankfully passed! Feel quite privilaged as only 3rd person to be perscribed it... just have to sort out my diet as one of the worlds worst diabetics out there for denial!!! Look forward to hearing from someone.
     
  18. sussex

    sussex · Member

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    Re: Anyone use Byetta?

    I am planning on a holiday, this Summer. In order to obtain travel insurance what do I put on the form re medication.
    I am on Byetta (exenatide) Metformin, & Gliclazide. The Travel insurance company advertised on the home page asks if you are on insulin.
    What do you put down.Is it Insulin, Byetta or Exenatide? Also what is the best way to describe my meds on a ID to carry with me.Thanks. :?
     
  19. Denis

    Denis · Member

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    Re: Anyone use Byetta?

    Hi sussex

    If I were you I would stick to one of the specialist diabetic ins companies, I always take holiday insurance that way, you normally have to go through a screening process, but at least you know you have told them everything and would be properly covered, also as Byetta is a relativly new drug some ins companies may not understand and assume if your injectin it must be insulin, if you still want to go ahead then I would put no as an answer in the box, as byetta isn't insulin, in fact I know at least 3 taxi drivers on Byetta and it does'nt affect there car insurance, although you do have to notify D V L A if your on Byetta and Gliclazide.

    As for your ID and meds, I carry mine on a neckchain from (MEDIC ALERT) it tells the emergency services what illness's you have and an emergency phone number where a hospital or doctor can obtain your list of medication. :D
     
  20. cugila

    cugila · Master

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    Re: Anyone use Byetta?

    Hi Dennis.
    I'm new on this forum and was just checking up on Byetta as I have started on it about 8 weeks ago. I can see that you seem to be 'the man' around here with the answers to most things. However on e thing that may have passed you by is that DVLA guidelines do not say you have to inform them if on Byetta and tablets. The latest medical guide from them dated September 2008 has a very clear section on what is and what isn't notifiable.
    Hope you don't mind a newbie treading on your toes but as an ex Traffic Cop I needed to make sure I was doing everything right.
    Keep up the good work
    Ken
     
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