Can any one help

Paul Bierton

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Hi I am Paul just join 31/07/2017. I wonder if anyone could help - I am 49 have type 1 I was diagnosed in 2000 and trying to get on top of my poorly managed diabetes. I am trying get on top of regular blood testing, medication taking and regular food in take. I wonder if anyone could help me check in and assist my with accountability as I am struggling with due to some life difficulties.
I would love hints or tips on how to maintain this in the long term.
 
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Juicyj

Expert
Retired Moderator
Messages
9,031
Type of diabetes
Type 1
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Hypos, rude people, ignorance and grey days.
Hello @Paul Bierton Welcome to the forum, I am tagging @daisy1 for our welcome information to help you.

Do you keep a diary at all, this is a straight forward way of logging your blood glucose results and insulin taken ? Also what is your current insulin regime, are you taking insulin for carbs eaten ? and what insulin are you on ?
 

paulliljeros

Well-Known Member
Messages
417
Type of diabetes
Other
Treatment type
Other
Hey there, and welcome. To start with the obvious, everyone is different but for me, it took 28 years before something clicked. A couple of things happened in a sequence and it was all by chance. I was on MDI and never tested. I started looking into CGM, and decided to purchase "Think Like a Pancreas" and "Sugar Surfing" books and for the first time in 28 years, everything started to make sense, so I then invested in a Dexcom CGM system. I changed clinics as I needed a fresh start, as I knew that the clinic I moved to were very pro pump, and with 6 mths of CGM data, they saw a diabetic with keen interest in my health and control, and got me on a pump within weeks. I think it was a string of very fortunate events that just worked for me, but I haven't looked back. Feel free to PM me if you want to have a chat, and I will definitely share any info you want. Good Luck
 

Paul Bierton

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Yes but been struggling to act on them I think because I have used alarm reminders. I have iPhone is there another way
 

Paul Bierton

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Hey there, and welcome. To start with the obvious, everyone is different but for me, it took 28 years before something clicked. A couple of things happened in a sequence and it was all by chance. I was on MDI and never tested. I started looking into CGM, and decided to purchase "Think Like a Pancreas" and "Sugar Surfing" books and for the first time in 28 years, everything started to make sense, so I then invested in a Dexcom CGM system. I changed clinics as I needed a fresh start, as I knew that the clinic I moved to were very pro pump, and with 6 mths of CGM data, they saw a diabetic with keen interest in my health and control, and got me on a pump within weeks. I think it was a string of very fortunate events that just worked for me, but I haven't looked back. Feel free to PM me if you want to have a chat, and I will definitely share any info you want. Good Luck

Thank you for your message can you tell me what is dexcom system or a link to understand more.
 

Paul Bierton

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Hello @Paul Bierton Welcome to the forum, I am tagging @daisy1 for our welcome information to help you.

Do you keep a diary at all, this is a straight forward way of logging your blood glucose results and insulin taken ? Also what is your current insulin regime, are you taking insulin for carbs eaten ? and what insulin are you on ?

Glargine and novorapid yes for carbs
 
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paulliljeros

Well-Known Member
Messages
417
Type of diabetes
Other
Treatment type
Other
Thank you for your message can you tell me what is dexcom system or a link to understand more.
Dexcom is a CGM (Continuous Glucose Monitoring) system, and Fasting Glucose Monitoring is the other option (Libre) do a search on the forum and you will find hundreds have posts for keywords Dexcom, CGM and/or Libra.
The dexcom is applied (or inserted) on officially the stomach, but most use their arms, and transmits a BG reading (read from the interstitial fluid) every 5 minutes. Whilst you still need to do 2 BG calibration tests per day, what it gives you is a 24/7 profile graph of you BG but most importantly lets you put you current BG into context. Additionally it alarms when you are too high, too low, or you bg is rising or dropping too fast.
Think if you take a BG finger prick test now, and it says 5.5mmol which is great and not of much concern. However, if the CGM shows that 30 minutes ago you were 12 mmol, and you have been dropping down to 5.5, suddenly you can see that in the 5 or 10 minutes, you are likely to be having a hypo! What I am trying to say, is CGM puts your BG results into context. Sorry, that was a bit of ramble, but hope it helps
 

Juicyj

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Retired Moderator
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Hi @Paul Bierton - Have you attended a DAFNE course yet ?

The Abbott libre system is an easy CGM system to try and help you manage better, it's around £49 a sensor and £49 for the reader, the sensors last 14 days but give you access to checking your BG levels as much as you need to and can give you more insight into patterns and the effect of carbs/insulin on your BG levels, it's easy to obtain from the Abbott Libre site and you're exempt from VAT when you purchase.
 
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Juicyj

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Retired Moderator
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Also a good app to have on your phone is Diaconnect, it will give you the ability to log insulin doses, carbs eaten, etc. If you are getting support from your DSN then Diaconnect is very useful as you can download reports into a pdf and email them direct from your phone, so getting on top of your management will be made easier if you can use this at least for 7 days, which should give you ample time to start to see a pattern with your readings.
 

noblehead

Guru
Retired Moderator
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23,618
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
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Tablets (oral)
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@Paul Bierton

Hello Paul and welcome to the Forum :) Here is the Basic Information we give to new members and I hope it will be useful to you. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 245,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Shannon27

Well-Known Member
Messages
290
Type of diabetes
Type 1
Treatment type
Insulin
Glargine and novorapid yes for carbs
I was on these 2 until about 6 weeks ago, I got diagnosed with T1 in 2000 when I was 4 years old. I'm now on novorapid and tresiba, the tresiba is slightly longer acting than the glargine so it's more flexible and you can avoid some highs. I'm trying to get on top of my diabetes too at the moment as I'm struggling to drive which I have to do for work. The tresiba has been great :) I do my best to carb count, I can log my carbs on my monitor and my insulin so that's how I track it. Carb counting generally works once you get your ratios set, it just means checking the carbs in everything you eat or drink and doing a set amount of insulin, for example, for every 10g carbs (in a pack of crisps or something) do 1 unit of insulin. It's a pain, but it's our health, so it's worth it!

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