Cerebral spinal fluid leak

Wurst

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This is not a common condition and I cannot find much info on it. I’ve had it now for > 4 weeks been in hospital for over a week but it is not getting any better. If I stand or sit my head erupts into pain , like having a heavy weight put on the head.

I’ve had 3 blood patches which haven’t worked and am off work sick. I’m being readmitted to hospital Friday if not improved.

My only relief is lying down , painkillers don’t work.

Diabetes management is getting harder as I can’t exercise.

Anyone have experience of CSF leaks , tips or advice?
 

Brunneria

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I'm sorry, I can't offer any info on your problem, but I can bump this thread with my post so that it goes back up to the top of the Recent Posts list, where more people will see it.
 
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Juicyj

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Sorry to hear this @Wurst I don't have any knowledge of this, but hope you do get some answers and this situation eases up soon for you, best wishes Juicy x
 
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Marie 2

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I'm sorry to hear it, I hope you feel better soon and get some relief.
 
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wiflib

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It’s ****** rotten isn’t it.
It’s relatively common following spinal/epidural anaesthesia but I don’t know much about any other causes. Blood patches are usually the ‘cure’ and the other one is time.
Are you seeing anaesthesiologists?

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Wurst

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It’s ****** rotten isn’t it.
It’s relatively common following spinal/epidural anaesthesia but I don’t know much about any other causes. Blood patches are usually the ‘cure’ and the other one is time.
Are you seeing anaesthesiologists?

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No anaesthesiologists aren’t involved in the blood patch process , at least not here:)

Unfortunately my cause is unknown at this stage. What is frustrating is there is very little info on it i.e other experiences . T1 is a stroll in the park in comparison!