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Cerebral spinal fluid leak

Discussion in 'Other Health Conditions and Diabetes' started by Wurst, Sep 10, 2019.

  1. Wurst

    Wurst Type 1 · Well-Known Member

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    This is not a common condition and I cannot find much info on it. I’ve had it now for > 4 weeks been in hospital for over a week but it is not getting any better. If I stand or sit my head erupts into pain , like having a heavy weight put on the head.

    I’ve had 3 blood patches which haven’t worked and am off work sick. I’m being readmitted to hospital Friday if not improved.

    My only relief is lying down , painkillers don’t work.

    Diabetes management is getting harder as I can’t exercise.

    Anyone have experience of CSF leaks , tips or advice?
     
    • Hug Hug x 10
  2. Brunneria

    Brunneria Other · Guru

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    I'm sorry, I can't offer any info on your problem, but I can bump this thread with my post so that it goes back up to the top of the Recent Posts list, where more people will see it.
     
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  3. Juicyj

    Juicyj Type 1 · Expert
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    Sorry to hear this @Wurst I don't have any knowledge of this, but hope you do get some answers and this situation eases up soon for you, best wishes Juicy x
     
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  4. Marie 2

    Marie 2 LADA · Well-Known Member

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    I'm sorry to hear it, I hope you feel better soon and get some relief.
     
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  5. wiflib

    wiflib Type 2 (in remission!) · Well-Known Member

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    It’s ****** rotten isn’t it.
    It’s relatively common following spinal/epidural anaesthesia but I don’t know much about any other causes. Blood patches are usually the ‘cure’ and the other one is time.
    Are you seeing anaesthesiologists?

    Post edited by moderator for language
     
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    #5 wiflib, Sep 10, 2019 at 11:18 AM
    Last edited by a moderator: Sep 10, 2019
  6. Wurst

    Wurst Type 1 · Well-Known Member

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    No anaesthesiologists aren’t involved in the blood patch process , at least not here:)

    Unfortunately my cause is unknown at this stage. What is frustrating is there is very little info on it i.e other experiences . T1 is a stroll in the park in comparison!
     
    • Hug Hug x 1
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