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- Type of diabetes
- Type 1
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People that can't listen to other people's opinions.
People that can't say sorry.
Just wondering how many persons have managed to secure CGM Funding? For this purpose I will also ask if anybody has secured LIBRE funding.
I have put in my notes to APPG for them to look at this website for real life experiences of peoples experiences for funding and whether these items if technology have helped.
As NICE do not approach real patients for feedback I was hoping for peoples experiences..and please would you if you would confirm if you would allow me to copy your experiences as evidence to the APPG.
NICE do not ask for feedback from "real patients".. I am recommending that the govt ask for genuine feedback to be gained from users of technology and jow it has helped or hindered them. Please can you confirm at end of your experiences whether I have permission to use your details..
Please do not give the name of your CCG or hospitals...
Here goes for me:
I currently have a libre for a few weeks from my CCG. There after I have to pay.
The nurse sent me off with it without even setting up whether I have 1 unit injections or 0.5 injections. The nurses did not even know the password for health professionals to enter to set this equipment up properly but they have put groups of people on Libres for a period of two weeks only. I questioned my nurse and she did not even know the libre had health professional password to set up details as advanced rather than basic! To me, without nurses entering their password to set the Libre up correctly it is only 1/2 useful.
I have the Libre for longer than 2 weeks due to lymph node removal and mastectomy and only able to test in 4 fingers. Due to other issues regarding foods and meds I need to test often -and more frequent than others.
My current CCG do not fund CGMs even for people that have lost their driving licences and without hypo awareness. (Incidentally it isn't me!!). My CCG need written evidence from the patient as part of consideration for 3 month funding. They will not fund a CGM longer than this. The CCG do not realise that many, many persons may not have skills adequate to write written evidence, especially when they may have other debilitating illness or indeed disabled or dyslexic or illeterate etc.
My consultant has been refused funding even for people that he considers it would help. I believe this refusal undermines Consultants and certainly with me, despite other health issues the Consultant will not request a CGM for me because he has been turned down previously. He has 6 pages of evidence from me.
I had a fully funded CGM prior to moving to this CCG. I do not understand how one CCG and Consultant can give readily but another can't.
My diabetic consultant is now having a group meeting with other health professionals that look after me. I had to ask to be invited to this meeting.. But it may add more emphasis to my CCG to fund a CGM. This, however is ongoing.
I agree for the details of my experience to be sent to the APPG.
I have put in my notes to APPG for them to look at this website for real life experiences of peoples experiences for funding and whether these items if technology have helped.
As NICE do not approach real patients for feedback I was hoping for peoples experiences..and please would you if you would confirm if you would allow me to copy your experiences as evidence to the APPG.
NICE do not ask for feedback from "real patients".. I am recommending that the govt ask for genuine feedback to be gained from users of technology and jow it has helped or hindered them. Please can you confirm at end of your experiences whether I have permission to use your details..
Please do not give the name of your CCG or hospitals...
Here goes for me:
I currently have a libre for a few weeks from my CCG. There after I have to pay.
The nurse sent me off with it without even setting up whether I have 1 unit injections or 0.5 injections. The nurses did not even know the password for health professionals to enter to set this equipment up properly but they have put groups of people on Libres for a period of two weeks only. I questioned my nurse and she did not even know the libre had health professional password to set up details as advanced rather than basic! To me, without nurses entering their password to set the Libre up correctly it is only 1/2 useful.
I have the Libre for longer than 2 weeks due to lymph node removal and mastectomy and only able to test in 4 fingers. Due to other issues regarding foods and meds I need to test often -and more frequent than others.
My current CCG do not fund CGMs even for people that have lost their driving licences and without hypo awareness. (Incidentally it isn't me!!). My CCG need written evidence from the patient as part of consideration for 3 month funding. They will not fund a CGM longer than this. The CCG do not realise that many, many persons may not have skills adequate to write written evidence, especially when they may have other debilitating illness or indeed disabled or dyslexic or illeterate etc.
My consultant has been refused funding even for people that he considers it would help. I believe this refusal undermines Consultants and certainly with me, despite other health issues the Consultant will not request a CGM for me because he has been turned down previously. He has 6 pages of evidence from me.
I had a fully funded CGM prior to moving to this CCG. I do not understand how one CCG and Consultant can give readily but another can't.
My diabetic consultant is now having a group meeting with other health professionals that look after me. I had to ask to be invited to this meeting.. But it may add more emphasis to my CCG to fund a CGM. This, however is ongoing.
I agree for the details of my experience to be sent to the APPG.
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