- Messages
- 6
Whilst I can appreciate that this site covers most conditions that Diabetes Type 1 and 2 sufferers may come up against, I feel that not enough information is given out when we are first diagnosed with diabetes on the above condition. We are taught that we have to aim to keep our sugar levels between 4-7, look after our eyes and feet but not once did my diabetc clinic ever tell me about Charcot.
I have been a Type 1 diabetic for the last 36 years. 7 years ago I was diagnosed with this crippling and dreadful condition in my right foot. For several months it was not diagnosed immediately, as the clinic, although they had their suspicions, were not sure what was happening to my right foot. Several x rays later, which unfortunately showed nothing, although my foot was rapidly becoming deformed and out of shape, they decided to send me for an MRI scan. This quickly showed what problem was rearing its ugly head.
Not knowing anything about this condition at all, I was devastated. Consultants were giving me information that in my mind had me thinkng the worst and that I was going to lose my right foot. Horror stories on the internet with horrific photos gave me little or no relief and reassurance, only complete and utter trauma and worry. Those early days were dreadful. I knew of no one else to talk to who had the same condition and I felt so utterley alone.
Luckily for me after spending nearly a year wheelchair bound and in a supportive crowboot waiting for the Charcot to stabilise, I am now and have been for the last 5 years walking as much as the Chacot will allow and it is stable for the time being.
This episode in my life has sparked me to do something, so after searching the internet for a Charcot Foot Support Group for the UK one of which I could not find anywhere, I decided to start one up myself a few weeks ago purely so that people from the UK have somewhere they can go to and talk with and share their experiences with like minded people who also suffer with this dreadful condiion.
If you would like to join my support group you will find it on Facebook under Charcot Foot Support Group, United Kingdom. Please give your support and I very much look forward to hearing from you.
Lets make more people aware of this dreadful condition.
I have been a Type 1 diabetic for the last 36 years. 7 years ago I was diagnosed with this crippling and dreadful condition in my right foot. For several months it was not diagnosed immediately, as the clinic, although they had their suspicions, were not sure what was happening to my right foot. Several x rays later, which unfortunately showed nothing, although my foot was rapidly becoming deformed and out of shape, they decided to send me for an MRI scan. This quickly showed what problem was rearing its ugly head.
Not knowing anything about this condition at all, I was devastated. Consultants were giving me information that in my mind had me thinkng the worst and that I was going to lose my right foot. Horror stories on the internet with horrific photos gave me little or no relief and reassurance, only complete and utter trauma and worry. Those early days were dreadful. I knew of no one else to talk to who had the same condition and I felt so utterley alone.
Luckily for me after spending nearly a year wheelchair bound and in a supportive crowboot waiting for the Charcot to stabilise, I am now and have been for the last 5 years walking as much as the Chacot will allow and it is stable for the time being.
This episode in my life has sparked me to do something, so after searching the internet for a Charcot Foot Support Group for the UK one of which I could not find anywhere, I decided to start one up myself a few weeks ago purely so that people from the UK have somewhere they can go to and talk with and share their experiences with like minded people who also suffer with this dreadful condiion.
If you would like to join my support group you will find it on Facebook under Charcot Foot Support Group, United Kingdom. Please give your support and I very much look forward to hearing from you.
Lets make more people aware of this dreadful condition.