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Confused with readings and don't know what to do

markb40

markb40

Active Member
Messages
33
Location
Cambridgeshire UK
Type of diabetes
Type 3c
Treatment type
Tablets (oral)
Hi everyone,

I have been on the forum before but for some reason I've had to make a new account.

Anyway I had Severe Pancreatitis 2 years ago due to medication and lost over 50% due to necrosis, since then I have developed Diabetes, according to the GP Type 2 the problem I have though is mine doesn't react to food the same way each time, for example I ate exactly the same Sat and Sun and the results were

Figures are before and 2 hrs after

Sat Breakfast 6.2 - 5.4 Dinner 5.7 - 6.1 Eve Meal 5.2 - 6.9 Before Bed 6.8
Sun Breakfast 9.1 - 11.3 Dinner 8.3 - 9.8 Eve Meal 10.8 - 7.9 Before Bed 6.4

I take 1000mg of metformin at night which is supposed to help with the highs through the night which I also get. It doesn't matter what I eat it responds differently each time. Has anyone else had the same issue as the GP just wants to treat it as type 2 but then moans at me when my HB reading goes up.

I experimented a while back and for 3 months I ate really healthy low carb, walked everyday and lost two stone in weight, at the end of the 3 months my HB went from 51 to 78. It is now back down to 52 but that's just luck as I have no idea how. I just don't know what to do and if I can't control it I'am worried what the future holds.

Sorry for the long post, Any advice is much appreciated.

Thanks Mark
 
Welcome back.. still interested to hear what the meals were..
In your shoes I'd be pushing the GP for a c-peptide test to see exactly how much insulin you are making yourself. After pancreatitis you may be having problems there. Or you could get one privately if money not an issue.
 
markb40 said:
Hi everyone,

I have been on the forum before but for some reason I've had to make a new account.

Anyway I had Severe Pancreatitis 2 years ago due to medication and lost over 50% due to necrosis, since then I have developed Diabetes, according to the GP Type 2 the problem I have though is mine doesn't react to food the same way each time, for example I ate exactly the same Sat and Sun and the results were

Figures are before and 2 hrs after

Sat Breakfast 6.2 - 5.4 Dinner 5.7 - 6.1 Eve Meal 5.2 - 6.9 Before Bed 6.8
Sun Breakfast 9.1 - 11.3 Dinner 8.3 - 9.8 Eve Meal 10.8 - 7.9 Before Bed 6.4

I take 1000mg of metformin at night which is supposed to help with the highs through the night which I also get. It doesn't matter what I eat it responds differently each time. Has anyone else had the same issue as the GP just wants to treat it as type 2 but then moans at me when my HB reading goes up.

I experimented a while back and for 3 months I ate really healthy low carb, walked everyday and lost two stone in weight, at the end of the 3 months my HB went from 51 to 78. It is now back down to 52 but that's just luck as I have no idea how. I just don't know what to do and if I can't control it I'am worried what the future holds.

Sorry for the long post, Any advice is much appreciated.

Thanks Mark
Click to expand...

Mark - I'm not going to comment on your thread, except to ask you to email [email protected] to sort out your accounts. Our rules only allow one account per member, for many reasons, so we could do with getting that sorted.

When you email, please include your user names and the email addresses used to set up the accounts and it can be sorted.

Thanks!
 
Hi Mark, could i just ask - have you experimented with a few days of zero carb to see how that affects your BG?

As for your doctor... perhaps keep a food and BG diary combined so he can see the problem for himself. Is there any chance of seeing a different doctor or ask for a referral to a specialist?
 
bulkbiker said:
Welcome back.. still interested to hear what the meals were..
In your shoes I'd be pushing the GP for a c-peptide test to see exactly how much insulin you are making yourself. After pancreatitis you may be having problems there. Or you could get one privately if money not an issue.
Click to expand...

On the Sat and Sun I had 2 boiled eggs for breakfast, haddock at lunchtime and chicken breast and cauliflower for evening meal.

I have found I actually get lower results by increasing carbs such as white bread or rice.
 
When I went to the Desmond day that the GP organised they just said it was to complex for them and to go back to GP but they don't really know either. They just get annoyed that I test myself but if I didn't do that I wouldn't be aware of the problems.

I will try another GP to see if they are more helpful.
 
It was actually the 3c group I used to post in before but because I do obviously produce insulin someday's the GP said I must be type 2 as 3c don't produce any insulin. I seem to have a type of my own due to the pancreas damage but know one knows what. I will certainly have a read through the 3c forum again though.

Thanks
 
markb40 said:
It was actually the 3c group I used to post in before but because I do obviously produce insulin someday's the GP said I must be type 2 as 3c don't produce any insulin. I seem to have a type of my own due to the pancreas damage but know one knows what. I will certainly have a read through the 3c forum again though.

Thanks
Click to expand...

I know nothing about Type 3c, and had no idea none of them produce insulin. Is this correct from what you have read on the 3c forum?
 
To be honest I have come across a number of different answers when searching online but I will certainly look through the 3c forum. I don't think it helps when a lot of so called professionals know about it, my diabetic nurse had never heard of it neither had the lady running the Desmond group.
 
As has been posted, you need to keep a food diary, listing all the data you can, using your glucometer as a methodical approach. Taking readings pre meal, one hour and two hours for the different foods you usually have.
It might be a portion problem, it could be you are still eating the wrong foods that stimulate whatever it is that is causing those readings.
Once you have the data, revisit your surgery and persuade them you need a specialist endocrinologist, to get the tests you obviously need.
Keep battling, the answer is out there.
 
markb40 said:
To be honest I have come across a number of different answers when searching online but I will certainly look through the 3c forum. I don't think it helps when a lot of so called professionals know about it, my diabetic nurse had never heard of it neither had the lady running the Desmond group.
Click to expand...
That's why I suggested you ask for the c-peptide test so you can see what your endogenous insulin production is like. It should lead to a more accurate diagnosis if nothing else.
 
Has there ever been any suggestion that you should be referred to a hospital Endo consultant? I think that’s what I’d be pushing for next time you see a GP
 
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