confused

[billywhiz2]

There is a standard set of tests for someone to be diagnosed with T1: c-peptide, GAD, IA2... If I was you, I would have them done.

I am going to as soon as I see Endo. Problem is that I asked to go on insulin and was refused and put on cana.

 

[Lamont D]

Could

No, it's almost fun trying to get that low . I did used to get hypo's. But not for a long time.

Another thought, You may have had a form of hypoglycaemia, then because of Insulin resistance, you developed T2, Until your insulin resistance can be brought down to normal levels, that's why the hypos have disappeared.

Or, I'm totally wrong and you have another rare form of metabolic syndrome condition.

 

[billywhiz2]

Could

Another thought, You may have had a form of hypoglycaemia, then because of Insulin resistance, you developed T2, Until your insulin resistance can be brought down to normal levels, that's why the hypos have disappeared.

Or, I'm totally wrong and you have another rare form of metabolic syndrome condition.

Possibly. It is so complicated. I have had so much testing done to for the gastric issues which are still unresolved, but not so much for my diabetes. Having got fed up, I have now concluded that I must be type 2.2

 

[Lamont D]

I'm very interested in what the heck is happening to you, as someone who was totally in the dark why my health was going down the pan, until I met my endocrinologist. He diagnosed me, after a few tests.
Basically, I have a condition that is carb intolerant and my insulin production is abnormal, unless I stay in normal blood glucose levels range, I can become very ill.
I spike very quickly, then hypo from three hours after.
Since diagnosis, my health has returned and in good condition for my age.

 

[billywhiz2]

I'm very interested in what the heck is happening to you, as someone who was totally in the dark why my health was going down the pan, until I met my endocrinologist. He diagnosed me, after a few tests.
Basically, I have a condition that is carb intolerant and my insulin production is abnormal, unless I stay in normal blood glucose levels range, I can become very ill.
I spike very quickly, then hypo from three hours after.
Since diagnosis, my health has returned and in good condition for my age.

Sounds similar, hire are they treating you.

 

[Lamont D]

Sorry about waiting for a reply, had to go to bed, to be up this morning for work!

The treatment for my condition, which if you look at my avatar is called Late Reactive Hypoglycaemia, it is mainly by diet and avoiding foods that I can't tolerate as much as possible. I very low carb, I am as much as possible in ketosis.
I also eat very small meals, every three hours. I fast intermittently as well to give my endocrine system a rest.
You will have to do a lot of reading, as I did to understand how this works, it goes against medical advice and thinking. I am backed by my endocrinologist who supports my decision to be in ketosis, because of how healthy I am.
I also have meds, which is Sitagliptin. This is a modern drug, it is a dpp4 inhibitor.
Surprisingly it makes more insulin but it creates the suppression of glucagon.
It sounds mad, but it does help.
What it helps me do is restrict my spike considerably.
My last glucose tolerance test, I only spiked to 8mmols, which is really low for me!
So, because I don't spike so high my need for insulin is reduced, I still get the hypos, but because I can control not spiking and eating regularly to offset the hypo, I haven't had a real hypo since my last glucose tolerance test.
I have lost over five stone in weight and I've never been so healthy since my twenties.

If you want to read more about hypoglycaemia, there is a forum called Reactive Hypoglycaemia, go to top of page, click on forums, scroll down and you should find the forum.

Our types of medical conditions, you really need to understand what you need to do to get control. If you want to be healthy, you need to think outside the box, ignore most medical advice especially about diet. A lot of reading, has given me the knowledge to understand what works for me!

If you need more information or want questions answered, I will try my best to answer.

Best wishes.

 

[billywhiz2]

Sorry about waiting for a reply, had to go to bed, to be up this morning for work!

The treatment for my condition, which if you look at my avatar is called Late Reactive Hypoglycaemia, it is mainly by diet and avoiding foods that I can't tolerate as much as possible. I very low carb, I am as much as possible in ketosis.
I also eat very small meals, every three hours. I fast intermittently as well to give my endocrine system a rest.
You will have to do a lot of reading, as I did to understand how this works, it goes against medical advice and thinking. I am backed by my endocrinologist who supports my decision to be in ketosis, because of how healthy I am.
I also have meds, which is Sitagliptin. This is a modern drug, it is a dpp4 inhibitor.
Surprisingly it makes more insulin but it creates the suppression of glucagon.
It sounds mad, but it does help.
What it helps me do is restrict my spike considerably.
My last glucose tolerance test, I only spiked to 8mmols, which is really low for me!
So, because I don't spike so high my need for insulin is reduced, I still get the hypos, but because I can control not spiking and eating regularly to offset the hypo, I haven't had a real hypo since my last glucose tolerance test.
I have lost over five stone in weight and I've never been so healthy since my twenties.

If you want to read more about hypoglycaemia, there is a forum called Reactive Hypoglycaemia, go to top of page, click on forums, scroll down and you should find the forum.

Our types of medical conditions, you really need to understand what you need to do to get control. If you want to be healthy, you need to think outside the box, ignore most medical advice especially about diet. A lot of reading, has given me the knowledge to understand what works for me!

If you need more information or want questions answered, I will try my best to answer.

Best wishes.

Thanks, defo need to think outside the box

 

[billywhiz2]

Think i have to agree with your response here. You are either not producing sufficient insulin, or, alternatively your insulin resistance has substantially increased. You need to arrange for the relevant diagnostic blood tests to be done asap. Since this will probably take a while to get organised, please make sure you understand the symptoms of DKA since you may be at risk from this now. The Canagliflozin has actually put you at greater risk of DKA even at low bgl levels. There is a thread on SGLT-2 Inhibitor meds on the medicines subthread,
http://www.diabetes.co.uk/forum/thr...-on-the-risk-of-diabetic-ketoacidosis.104325/

Just tested myself for ketones, level is 2-4mmol. Rang GP for advice, told I am at no risk for DKA. Only confirmed type 1 on insulin is apparently at risk?

Any input appreciated

 

[Oldvatr]

Just tested myself for ketones, level is 2-4mmol. Rang GP for advice, told I am at no risk for DKA. Only confirmed type 1 on insulin is apparently at risk?

Any input appreciated

You did read that thread on SGLT-2 meds? This I believe overrides the classic understanding of DKA, but I may be wrong

The ;atest EMA guidelines do not restrict the advice to only Insulin Dependant patients
http://www.ema.europa.eu/ema/index....erral_prac_000052.jsp&mid=WC0b01ac05805c516f#

but it is rare event (1 in 1000 patients)

Edit to add: if insulin is a factor then T2D's on insulin also at risk, so GP is incorrect to limit to T1 anyway.

 

[billywhiz2]

You did read that thread on SGLT-2 meds? This I believe overrides the classic understanding of DKA, but I may be wrong

The ;atest EMA guidelines do not restrict the advice to only Insulin Dependant patients
http://www.ema.europa.eu/ema/index....erral_prac_000052.jsp&mid=WC0b01ac05805c516f#

but it is rare event (1 in 1000 patients)

Edit to add: if insulin is a factor then T2D's on insulin also at risk, so GP is incorrect to limit to T1 anyway.

No I missed that one. How the hell important information like this is not getting through to GP's, I have stopped taking them.

 

[billywhiz2]

I'm very interested in what the heck is happening to you, as someone who was totally in the dark why my health was going down the pan, until I met my endocrinologist. He diagnosed me, after a few tests.
Basically, I have a condition that is carb intolerant and my insulin production is abnormal, unless I stay in normal blood glucose levels range, I can become very ill.
I spike very quickly, then hypo from three hours after.
Since diagnosis, my health has returned and in good condition for my age.

HNF1 MODY-no longer confused. Treatment he's changed to insulin. Diabetic blisters turn out to be psoriasis, and IBD is actually autonomic neuropathy.

 

[Lamont D]

HNF1 MODY-no longer confused. Treatment he's changed to insulin. Diabetic blisters turn out to be psoriasis, and IBD is actually autonomic neuropathy.

At least now you know and start getting a grip of your condition.
Sometimes it's a bit of relief to get actual diagnosis, and you're not dreaming it all up!

Like I got told, many, many times!

Best wishes.

 

[billywhiz2]

At least now you know and start getting a grip of your condition.
Sometimes it's a bit of relief to get actual diagnosis, and you're not dreaming it all up!

Like I got told, many, many times!

Best wishes.

Thanks for your help, I ended up in a and e, on the weekend. Finally being listened to make me feel a lot better.

 

[Lamont D]

Thanks for your help, I ended up in a and e, on the weekend. Finally being listened to make me feel a lot better.

How are you now and do please go through your visit?

Did they get a specialist to look at you?

 

[Daibell]

Hi. What is your weight? If you are reasonably slim I would certainly ask for the tests for T1 as you may well be a Late onset T1. You can get DKA without being on insulin; it's a combination of fat burning due to low insulin plus high blood sugar. My thin 22 nephew ended up in A&E with DKA and he didn't even know he had diabetes. My GP initially refused me insulin as I was listed as T2. A year later she backed down and I've been on insulin since. If you need it you need it, but if you have excess weight then you need to remove that first to know where you are. With your level of carbs you must be thin?

 

[billywhiz2]

How are you now and do please go through your visit?

Did they get a specialist to look at you?

Not at the time, saw him later. I was on insulin, dextrose, plus another drip to counteract the severe abdominal pain. I must say they were brilliant.

I did not even know that they were testing me for mody until ib got the results today. I audio have some liver abnormalities, not sure what yet but it appears the liver is kicking out more glucose than it should.

 

[billywhiz2]

Hi. What is your weight? If you are reasonably slim I would certainly ask for the tests for T1 as you may well be a Late onset T1. You can get DKA without being on insulin; it's a combination of fat burning due to low insulin plus high blood sugar. My thin 22 nephew ended up in A&E with DKA and he didn't even know he had diabetes. My GP initially refused me insulin as I was listed as T2. A year later she backed down and I've been on insulin since. If you need it you need it, but if you have excess weight then you need to remove that first to know where you are. With your level of carbs you must be thin?

Definitely mody. It is the one that is similar to type 1, hence the need for insulin.