Long post - skip to the end if you would like (please read if you can)
Hello, I’m new to the forum and was hoping to get some advice/comfort/support from anyone who has type 1 or anyone who knows about type 1 and seizures.
My mum was diagnosed in October of 2018 (at 47 years old) with Type 1/LADA, which the doctors thought was stress induced due to her job. She’s managed it so well over the past 18 months, always organised and planning and prepared with sweets or juice, and during those 18 months has been praised by the clinic for taking to it so well. It’s still been very hard for her but she’s taken it in her stride. I think because of how she’s coped, the family have become a bit complacent with it and have stopped treating it as seriously as we should have.
Yesterday, mum came into me and said she felt faint and was having a hypo (Libre was saying she was at 3.8). This was after she’d injected and then eaten lunch, and also had sugar due to low levels. This normally happens with her milder hypos so I told her to go lie down straight away and wait for the sugar to kick in. 2 minutes later I heard a loud crash in her room and went in to find her fitting on the floor with her face/nose/mouth spewing blood due to the fall. The blood definitely made it worse than it was but still terrifying for a 22 year old to see her mum like that.
We think there was a combination of factors that meant her BG didn’t increase fast enough/her reading wasn’t accurate.
Amidst the panic we phoned an ambulance, injected her with the Glucagon kit we had, and she slowly came around after a lot of wailing and lifelessness.
When researching online all I see is death death death and negativity and it’s very frightening. I understand how serious the disease is and I do always take it very seriously, but I was wondering if anyone else has experience seizures and can give me a light at the end of the tunnel?
She keeps on top of it, I have to emphasise how out of character this was as even her hypos are dealt with very swiftly and never get too close to the wire.
Hello, I’m new to the forum and was hoping to get some advice/comfort/support from anyone who has type 1 or anyone who knows about type 1 and seizures.
My mum was diagnosed in October of 2018 (at 47 years old) with Type 1/LADA, which the doctors thought was stress induced due to her job. She’s managed it so well over the past 18 months, always organised and planning and prepared with sweets or juice, and during those 18 months has been praised by the clinic for taking to it so well. It’s still been very hard for her but she’s taken it in her stride. I think because of how she’s coped, the family have become a bit complacent with it and have stopped treating it as seriously as we should have.
Yesterday, mum came into me and said she felt faint and was having a hypo (Libre was saying she was at 3.8). This was after she’d injected and then eaten lunch, and also had sugar due to low levels. This normally happens with her milder hypos so I told her to go lie down straight away and wait for the sugar to kick in. 2 minutes later I heard a loud crash in her room and went in to find her fitting on the floor with her face/nose/mouth spewing blood due to the fall. The blood definitely made it worse than it was but still terrifying for a 22 year old to see her mum like that.
We think there was a combination of factors that meant her BG didn’t increase fast enough/her reading wasn’t accurate.
Amidst the panic we phoned an ambulance, injected her with the Glucagon kit we had, and she slowly came around after a lot of wailing and lifelessness.
When researching online all I see is death death death and negativity and it’s very frightening. I understand how serious the disease is and I do always take it very seriously, but I was wondering if anyone else has experience seizures and can give me a light at the end of the tunnel?
She keeps on top of it, I have to emphasise how out of character this was as even her hypos are dealt with very swiftly and never get too close to the wire.
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