Dexcom NHS

[Jess1D]

Hi
So I have recently gone back onto a pump
I use the Freestlye Libre 2 - unfortunately I have issues with alarms just not working
More so lately this is becoming a hassle with my control & being back on the pump - trying to keep my sugars in range!
Also on few occasions now have found the Freestlye Libre reading inaccurate again a blood sugar reading in my meter (quite dangerously different)

I spoke with my doctors last week, enquiring about the Dexcom 1 (I have used Dexcom 6 before- great product-was in a different job & could afford it)
I got a phone call back from the doctors - telling me the Dexcom 1 was only available to pregnant women?!!
Really?
Does anyone know if this is true?

Many thanks

Jess

 

[Juicyj]

Hi @Jess1D Do you have a diabetes care team looking after you ? It's best to speak to them rather than your GP as he would be reviewing standard NHS guidelines, but your diabetes team will know whether or not you can access it, also depends on your trust as each one has a different policy on CGM accessibility, there may be certain criteria you have to meet, if you cannot access it now then at least register your interest for when it becomes more widely available, as new guidelines are making it easier for insulin dependent diabetics to access CGMs.

 

[Jess1D]

Thank you
Yes whenever I mention it to my team they tell me they don’t get funding
But when I was at doctors the other day- I made enquiries about the Dexcom 1
Got a phone call saying it was only being offered to pregnant women?!

I have pretty much lost faith in the Freestly Libre- no alarms & seems pretty inaccurate

 

[Emily95]

Dexcom G6 is for pregnant type 1’s but all type 1’s are entitled to a Dexcom 1 now if they want it. It has only just come into play though so may be taking a while to trickle down. If your hospital refuse to put you on it contact Professor Partha Kar on Twitter. He’s the national lead for type 1 tech.

 

[Jess1D]

Dexcom G6 is for pregnant type 1’s but all type 1’s are entitled to a Dexcom 1 now if they want it. It has only just come into play though so may be taking a while to trickle down. If your hospital refuse to put you on it contact Professor Partha Kar on Twitter. He’s the national lead for type 1 tech.

Thank you
I will take a look
Yes I did mention that to the doctors- they were quite abrupt saying that only pregnant women were entitled to the Dexcom 1?

Very strange

 

[david4503]

From reading this forum it appears that the Freestyle CGM has a bunch of significant problems, particularly with accuracy. If this is what’s happening, why wouldn’t NHS being going full speed ahead to switch patients to the Dexcom? Inaccurate readings lead to more control problems and that’s bad for everybody, including NHS. Is it just the bureaucracy or something else at work?

 

[becca59]

Dexcom 1 is now available to all type 1s should they want it. Your health provider is being economical with the truth.

 

[Jess1D]

It is so frustrating as I want good control, but for me the alarms DO NOT work!!! Considering working out financially if I can afford Dexcom each month
Lost faith in Libre!!

 

[Emily95]

 

[becca59]

View attachment 56040

Just screen spotted the exact same thing to post. You beat me to it.
As I said earlier. It is available!

 

[Jess1D]

Ok so what do now say to my doctors?

 

[Emily95]

If you can email them then you could send that tweet with this too.

If they still refuse, refer to Prof Kar

 

[Jess1D]

Ok thank you
Is the best way to contact him via twitter?

 

[Jess1D]

Waiting for prescription line to open & discuss it with them

 

[Jess1D]

Just rang my chemist, they tell me it is available but they have not had any prescriptions from the surgery - they haven’t changed anyone over.
Reckon it could be hard work

 

[Emily95]

You’re going to need to go through either your endocrinologist at the hospital, I have an email for mine. Or your GP because it needs to be prescribed by a doctor first. Take evidence from Partha or copy him into any emails if needed. Don’t give up!

 

[Jess1D]

Thank you, waiting to speak to prescription people

 

[Jess1D]

Just spoke to prescription line- they are going to look into it & get back to me?‍

 

[david4503]

Can anyone decode the Published Accuracy Data from the above chart? For instance, T1=n260.

 

[EllieM]

Can anyone decode the Published Accuracy Data from the above chart? For instance, T1=n260.

Interesting.

Yes they've published data and sample size was 260???
Not very imformative I agree.
Or the yes might imply that it was accurate enough to pass some metric such as +- 15%?

And I see the dexcom G7 has accuracy data too. Is it out now?

If the G1 is as accurate as the G6 I'd definitely use it, if and when it becomes available in New Zealand, as the extra G6 features only seem relevant to pumpers.