• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Type 2 Diagnosing myself as having diabetic neuropathy

LuckkyPatron

Member
Messages
7
Hi , hope all is well.

I'm art 32 6'3 400lb currently controlled type 2 diabetes mellitus with retinopathy, without long-term current use of insulin, essential hypertension. Currently taking Norco, metformin, januvia, lovastatin,enalapril, ibuprofen 800mg, amitriptyline 25mg, fish oil, muti vitamin and now I bought R-ala

Well let me break it down as best as I can to describe my issue as best as I can .

In December 2018 I had slipped on ice on my stairs and fell on my lower back ( butt bone ) and legs . Of course I got up and shrugged it off as I had things to do and of course I felt pain from the fall, but of course with all things that happen like this it's usually a sore feeling that day and you really feel it the day after and so on .

In January 2019 when my body was able to shake it off and went away at least I thought I did dueto I didn't feel no pain was fine maybe mid month I started having pain in back of left thigh tingling ,numbness , pain where I can't sleep at nite or early morning when I woke up .

Okay made a appointment to see doctor and at the the time I was unsure what was wrong but dueto having that fall recently I assumed it had to do with that and that's what I belived up until now..

doctor put me on a few different meds and got referral for physical therapy where they felt it was a pinched nerve and went to 4 appointments each month for two to three months+ signed up for planet fitness and even tho I felt good and thought something good was coming out of it every day when it's time to go-to bed it was very severe pain in back of my left thigh . And I could not get sleep .

I'ma put it this way I'm the type where it has to be very bad to get me to go to emergency room . But once it got more severe where I could not sit at table/toilet/bus/car/chair for longer then 3 minutes and when walking around the house I would get the urge where my leg was so weak my back felt like it wanted to give out I'd run to bed lay on back left foot standing on bed and right foot on top of it til I could make pain subside .

So I went to the hospital early morning explain this to the doc and he asked what insurance I had and dueto I have state insurance I could not get mri done that day but was givin tremadol take 1 every 4 to 6hours and that it sounded like sciatica.

good thing I finally got one of my primary docter to get me a referral for Ortho . (I don't have a primary doctor at the clinic I go-to)

Ortho took x-ray and asked me if I knew my back was curved, replied no I didn't know and she pretty much said well it is but that's not the problem of your issue ends up telling me I would be good candidate for shot in back (yeah right) ..but I got referral for MRI from her and she switched me from tremadol to Norco 5-325 .

My appointment for MRI is August 13 2019 .

It started as just pain in back thigh these few months leading up to now it's numbness tingling all the way down to foot heal and left toe go numb and like a pulled vein feeling in back of knee.

And the whole time I been doing research and came to realize it's probably not what they think dueto in just a matter of two days taking stabilize R-ala I feel alil bit more relieved .

Narcotics are short term I knew I was going to have to find something to help myself and this is where I'm at so far . Still not strong enough to get myself to go-to gym or therapy as I quit that when the pain got worse . Now I'm trying to get myself out the house out of bed and so far the most I can do in a day is take my dog for a 20 min walk .
 
Hi Art and welcome to the forum. Sorry to hear you are suffering. Unfortunately we can’t help with diagnosing your problem but I hope the MRI helps your dr to come to some conclusion and treatment plan for you.
I just have one comment, that is this, I have read that Alpha Lipoic Acid takes 3 - 5 weeks to take effect, so I do wonder if your improvement is due to something else?
Do let us know how you get on.
 
Hi Art and welcome to the forum. Sorry to hear you are suffering. Unfortunately we can’t help with diagnosing your problem but I hope the MRI helps your dr to come to some conclusion and treatment plan for you.
I just have one comment, that is this, I have read that Alpha Lipoic Acid takes 3 - 5 weeks to take effect, so I do wonder if your improvement is due to something else?
Do let us know how you get on.
I've been in so much pain and desperate for some relief other then pain medication. based on what I could find on alot of googling the passed few weeks is trying R-ala but finding a reputable brand who buys stock from a company who sells it for twice the price .

I'm very picky about supplements/vitamin/antioxidants when buying . With there being so many to choose from, it takes time and research /reviews and comment/third party lab testing and certain seals and sign on the bottle to make me believe it's the one to buy .

I will say your right it probably does take that long to fully work regarding rala but my pain level has showed me it's working by going from severe pain to very sore feeling . I still however do get numbness and tingling .

Also still trying to figure out the right dosing for me as the R-ala I'm taking us 100 r lipoic and 150 biotin .

So far first day was just two. One in the morning and one in the night .

I switched to 3 the following day 2 in the morning and 1 at nite . Going to stick here for a week or 2 to see how it goes. As I'm cutting off using januvia dueto don't need sugar going horribly low and my muscle relax and depression pill as there affecting me now when I have to pee and other personal reason in the bed room .
 
Sounds a bit like sciatica.........hope you get sorted soon what ever it is.
That's exactly what it felt like - but I don't have back pain , I got horrible leg pain that radiates to foot . It very depressing when your 32 and you feel like your uncle lol.
 
That's exactly what it felt like - but I don't have back pain , I got horrible leg pain that radiates to foot . It very depressing when your 32 and you feel like your uncle lol.
I knew a guy with sciatica... His back didn't bother him one iota, his leg was a nightmare. (He always had to use the bathroom with the door open so he could stick his leg out. Sitting down was hell. Then again, everything was, at that point). Pins and needles could come from a pinched nerve in the lower back, that's where all your nerves get together. (And in this case, possible gang up on you since they got banged up). And personally, I have scoliosis (curved spine) AND fell down a flight of stairs on my butt once and that was when I was 17 or something. Both issues still hurt at 40, so if you get a chance to be looked at, get looked at.

In the meantime, you are on a LOT of medication right now... Some of those might be making things worse (Especially the statin; could cause musclepain and high bloodsugars), so maybe time to go over what can get tossed with your perscribers. https://www.diabetes.co.uk/forum/blog-entry/the-nutritional-thingy.2330/ might help as well, just do NOT mix it with diabetes meds that can cause hypo's , because you will go down like a ton of bricks. Also, the problems with your leg could benefit from a little weight loss, and the linked diet could help with that too. For specifics as the linked blog is just a quick start guide, check Dr. Jason Fung's book The Diabetes Code, dietdoctor.com and this forum's website, diabetes.co.uk. (Not the.org!).

When I was diagnosed I had quite a few complications and was, truth be told, more dead than alive. Quality of life was nil. Just exited. Miserably. That diet fixed a lot for me. Not everything, but my cholesterol's all good, my bloodsugars are in the normal range without medication, my fatty liver took a hike, and I can actually walk places. Could barely get around the flat 3 years ago, now I walk around every weekend with heavy camera gear in tow. Life can get better. Just get help. Could you have diabetic neuropathy? Yeah. But sciatica is more likely, to be honest, so you really, really need that MRI.

Good luck!!
Jo
 
I had sciatica last year, my back wasn't as painful (more of a discomfort) as my hip/leg/knee - I feel for you! an MRI will/should diagnose sciatica if it is, it's apparently quite easy to spot an inflamed/trapped nerve within the vertebra.
 
Wow I guess may be wrong about sciatica part will find out tho Aug 13-20 as that's when I will have took MRI and brought disc to Ortho and see what happens from there .

Also yeah that's on my list as far as primary goes I don't really have one, but I got a doctor I do like out of the ten I've seen. My recent a1c test dropped from 8.3 to 6.9 and I do not really eat healthy as I should be even more so now when I can't really do much beside take the dog for a walk which isn't everyday but but I'm using that to get some much needed strength back in left leg as I usually do walk the dog for about a half an hour when I do .

As far as going back to therapy and gym I don't have it in me yet as I can only stand or lay in certain weird position to make pain subside ( it's bad at nite and nitemere in the early morning don't get much sleep)

And last and most important get back on a diet . I do have alot of things fighting against me but if I can some way get this pain under control I'd love to have my life back. Thank you for your reply and I appreciate you taking your time to look read and reply I will give link a look / book mark it . Hope your day is well
 
I had sciatica last year, my back wasn't as painful (more of a discomfort) as my hip/leg/knee - I feel for you! an MRI will/should diagnose sciatica if it is, it's apparently quite easy to spot an inflamed/trapped nerve within the vertebra.
I sure hope so. What did you do for relief during the it was bad and how did you overcome it .
 
I sure hope so. What did you do for relief during the it was bad and how did you overcome it .

it was a mixture of paracetamol/codeine, a naproxen (an NSAID) and Diazepam - they didn't give me 100% relief, TBH no where near but they made it sufferable. Physio gave me some exercises to do.........check out videos online for those.
 
Hi , hope all is well.

I'm art 32 6'3 400lb currently controlled type 2 diabetes mellitus with retinopathy, without long-term current use of insulin, essential hypertension. Currently taking Norco, metformin, januvia, lovastatin,enalapril, ibuprofen 800mg, amitriptyline 25mg, fish oil, muti vitamin and now I bought R-ala

Well let me break it down as best as I can to describe my issue as best as I can .

In December 2018 I had slipped on ice on my stairs and fell on my lower back ( butt bone ) and legs . Of course I got up and shrugged it off as I had things to do and of course I felt pain from the fall, but of course with all things that happen like this it's usually a sore feeling that day and you really feel it the day after and so on .

In January 2019 when my body was able to shake it off and went away at least I thought I did dueto I didn't feel no pain was fine maybe mid month I started having pain in back of left thigh tingling ,numbness , pain where I can't sleep at nite or early morning when I woke up .

Okay made a appointment to see doctor and at the the time I was unsure what was wrong but dueto having that fall recently I assumed it had to do with that and that's what I belived up until now..

doctor put me on a few different meds and got referral for physical therapy where they felt it was a pinched nerve and went to 4 appointments each month for two to three months+ signed up for planet fitness and even tho I felt good and thought something good was coming out of it every day when it's time to go-to bed it was very severe pain in back of my left thigh . And I could not get sleep .

I'ma put it this way I'm the type where it has to be very bad to get me to go to emergency room . But once it got more severe where I could not sit at table/toilet/bus/car/chair for longer then 3 minutes and when walking around the house I would get the urge where my leg was so weak my back felt like it wanted to give out I'd run to bed lay on back left foot standing on bed and right foot on top of it til I could make pain subside .

So I went to the hospital early morning explain this to the doc and he asked what insurance I had and dueto I have state insurance I could not get mri done that day but was givin tremadol take 1 every 4 to 6hours and that it sounded like sciatica.

good thing I finally got one of my primary docter to get me a referral for Ortho . (I don't have a primary doctor at the clinic I go-to)

Ortho took x-ray and asked me if I knew my back was curved, replied no I didn't know and she pretty much said well it is but that's not the problem of your issue ends up telling me I would be good candidate for shot in back (yeah right) ..but I got referral for MRI from her and she switched me from tremadol to Norco 5-325 .

My appointment for MRI is August 13 2019 .

It started as just pain in back thigh these few months leading up to now it's numbness tingling all the way down to foot heal and left toe go numb and like a pulled vein feeling in back of knee.

And the whole time I been doing research and came to realize it's probably not what they think dueto in just a matter of two days taking stabilize R-ala I feel alil bit more relieved .

Narcotics are short term I knew I was going to have to find something to help myself and this is where I'm at so far . Still not strong enough to get myself to go-to gym or therapy as I quit that when the pain got worse . Now I'm trying to get myself out the house out of bed and so far the most I can do in a day is take my dog for a 20 min walk .
Are you still taking ibuprofen? Any heart disease patients shouldnt take anti-inflammatory. I know you haven't mentioned this but if less active we diabetics are prone to HD. Tramadol only worked for a year for me. I hv nipped nerves and neuropathy so am using an aid to walk, for balance and gait.
I highly recommend R-ala for neuropathy. Currently I'm recovering gfrom Roux-en-y op so I stopped my supplement til 3mths after my op. I'm only 7wk post op.
I'd love a MRI and may be forced to pay private even though we hv the nhs. I'm seeing my diabetes specialist in September who can refer me to a neurologist or my GP.
I really need my normal gait back for more activity and keep HD at its mild stage.
 
Back
Top