Doctor very unhelpful. Help please

[claudetteholmes]

Hi to all, after all the great advice this weekend, I saw the doctor. Ooh dear clueless is not the word. My sugar is high even on low carb and low low carb. They upped my gliclazide to 4 a day no change all I got was one spike of 18 and one low of 3.8 . He told me to see nurse first telephone appointment is Thursday afternoon late and appointment with her next Tuesday. He told me to stop with gliclazide.. IS IT OK TO GO COLD TURKEY?. Hes not keen to send me for further testing most tests I mentioned he had to look up???

 

[claudetteholmes]

These are my sugars with indications of where medication was increased

 

[Resurgam]

A bit more information would help with understanding what you are showing us.
What medication?
What is your diet like - did you eat something particularly high in carbs tot get the 18? - that is presumably mmol/l

 

[Resurgam]

Ah - just seen your other thread - perhaps ask a mod to combine them.
The Gliclazide is one of the drugs which increase insulin and reduce insulin resistance so if it is not working then the ability of your pancreas to produce insulin might well be in doubt.

 

[claudetteholmes]

A bit more information would help with understanding what you are showing us.
What medication?
What is your diet like - did you eat something particularly high in carbs tot get the 18? - that is presumably mmol/l

Its the 2 nd part of message see you saw first one for some reason didnt want to do attachment. Thank you for replying but still in the dark as what to do till Thursday

 

[bamba]

If you cannot reach your own GP - try 111.

 

[claudetteholmes]

If you cannot reach your own GP - try 111.

Thanks will be my next option as I cant even get a phone call from Surgery fir rest of the week

 

[claudetteholmes]

Its the 2 nd part of message see you saw first one for some reason didnt want to do attachment. Thank you for replying but still in the dark as what to do till Thursday

Yes did post extensivly weekend I am low carb now for 3 years with great success till March . I am a year in menopause...and everything is high wire. I ate exactly the same things the day after the 18 reading and sugars was 12.3. I can have just an egg fried in butter and have 8 next day 14...I think my only option is to find a good endocrinologist and go privately. Doctor this morning had no udea about low carb...he said my readings / full menu of last month means very little to him except that medication isnt working...I feel very furstrated

 

[Resurgam]

for type twos low carb is very effective, but if you are not producing insulin then you need to be properly assessed and provided with what you need - if you start to feel unwell then definitely 111 - or even 999 if you are alone with high blood sugars.

 

[claudetteholmes]

Thanks I will I have been feeling really awful for two months and it is getting worse.

 

[DCUKMod]

Yes did post extensivly weekend I am low carb now for 3 years with great success till March . I am a year in menopause...and everything is high wire. I ate exactly the same things the day after the 18 reading and sugars was 12.3. I can have just an egg fried in butter and have 8 next day 14...I think my only option is to find a good endocrinologist and go privately. Doctor this morning had no udea about low carb...he said my readings / full menu of last month means very little to him except that medication isnt working...I feel very furstrated

Claudette if what you're saying at the beginning of this thread is you posted two threads that really are one, the threads can be merged for you, if that would be helpful?

I haven't read both threads, but just giving you the option to bring things together if that would be helpful to you. It's also fine to leave then separated.

If you want anything merged, just tag me, or any of the Mods by typeing the @ symbol immediately before our user name, like this, @claudetteholmes .

 

[claudetteholmes]

Claudette if what you're saying at the beginning of this thread is you posted two threads that really are one, the threads can be merged for you, if that would be helpful?

I haven't read both threads, but just giving you the option to bring things together if that would be helpful to you. It's also fine to leave then separated.

If you want anything merged, just tag me, or any of the Mods by typeing the @ symbol immediately before our user name, like this, @claudetteholmes .

You awesome thanks

 

[Jenny15]

Find another doctor and go from there.

 

[claudetteholmes]

@ DCUKMod can you please combine this thread with the other? Or must I message you on that one as well? Sorry if I am doing it wrong

 

[claudetteholmes]

Find another doctor and go from there.

Thats the problem 3 rd doctor in 2 months nurse seen x2. But will wait for appointment with nurse next week and then make a noise. In the meantime I will search for a endocrinologist

 

[Alison Campbell]

@DCUKMod please see request in post 14

 

[Daibell]

Hi. You need to ask for the two tests for T1 i.e. GAD and c-peptide. I had mine done privately as my GP was useless. In the meantime if it was me I would ask to continue the Gliclazide until your diagnosis is confirmed and you are possibly moved to insulin. It may be wroth getting some Ketostix to check for ketones. If these are high together with high blood sugar e.g. into the 20s or above then you may need to go to A&E as it can be dangerous. Personally I myself wouldn't bother with 111 as it isn't staffed by medics but it's your choice.

 

[claudetteholmes]

Hi. You need to ask for the two tests for T1 i.e. GAD and c-peptide. I had mine done privately as my GP was useless. In the meantime if it was me I would ask to continue the Gliclazide until your diagnosis is confirmed and you are possibly moved to insulin. It may be wroth getting some Ketostix to check for ketones. If these are high together with high blood sugar e.g. into the 20s or above then you may need to go to A&E as it can be dangerous. Personally I myself wouldn't bother with 111 as it isn't staffed by medics but it's your choice.

Great advice. Honestly in the south west found 111 to be useless so not an option. I continue medication half dose as tonights reading is "good " without Manage to speak to an endocrinologist tonight will make appointment tomorrow but he was honest might take me 10 weeks. He suggest same as you to insist on basic tests. In his words be persistent now to go and beg for refferal letter. Honestly speak more to surgery than my mom.

 

[Jenny15]

Thats the problem 3 rd doctor in 2 months nurse seen x2. But will wait for appointment with nurse next week and then make a noise. In the meantime I will search for a endocrinologist

I sympathise. I've had to fire many doctors or other health professionals over the years, including head-of-department hospital specialists. I know in the UK it's particularly hard to get help in the NHS so if you have any ability to go private, even for a GP visit, I encourage you. I've been reading NZ guidelines for diabetes (which are essentially the same in other countries) and I've drawn some red lines for myself based on them.

If my HbA1c is above 65 for more than 3 months, I want insulin, at least until things are back under control. (My GP was slack about this but we are now on top of things).

I want my BP under 130/80 at all times.

I'm pretty sure I developed some neuropathy and loss of beta cell function during the time I was up in the 70s (at least a year). IMO we just can't afford to let these things happen.

Short term insulin therapy can prevent irreversible complications while you get things diagnosed properly and make sustained lifestyle changes such as low carbing. Good info here IMO:

http://www.phlaunt.com/diabetes/15478720.php

 

[Jenny15]

Great advice. Honestly in the south west found 111 to be useless so not an option. I continue medication half dose as tonights reading is "good " without Manage to speak to an endocrinologist tonight will make appointment tomorrow but he was honest might take me 10 weeks. He suggest same as you to insist on basic tests. In his words be persistent now to go and beg for refferal letter. Honestly speak more to surgery than my mom.

He's right, time to get even more assertive. What's the worst that can happen? They get offended? It's not their eyesight, kidneys and legs that need saving. Your right to access appropriate care is protected by law.