Doctors Thursday a.m, diabetic pm

SueJB

Well-Known Member
Messages
3,325
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
cold weather
Hi, I'm a 2 day old type 1 diabetic. Actually I'm 63.
I'm totally confused with all the information. I don't know if I should be watching how many carbs, calories or sugar I eat. I don't get to see the specialist clinic until Monday and I'm in a fearful limbo

Last night I tested my blood sugar and it was 19.00 but ketones had dropped to 0.7. This was from the orginal 4.8 (sent straight to hospital and diagnosed)

When to panic? 19 I know isn't good
Thoughts anyone please?
s
 

Mugwump

Active Member
Messages
32
Type of diabetes
Carer
Treatment type
Pump
Hi Sue,

First of all welcome, and I totally understand your confusion. It's a huge amount to take on suddenly.

What insulin are you taking? I imagine they haven't talked you through correction factors yet, so apart from ringing 111 (which I would do if levels don't fall) I'd keep testing regularly (I've been told to test ketones every hour if they have been above 0.6 until they are within normal levels) and drinking lots of water. If you start to feel any worse definitely give 111 or your GP a ring for some advice.

Some Type 1's eat normally and bolus (give rapid-acting insulin) for the specific food they eat, whilst others do eat a low carb diet. Over time you will come to understand the effect different food has on your BG level, and have gathered enough information to make that decision for yourself.

I can't offer too much more advice but just wanted to let you know someone has seen your post, and to check that your BG/ketones are coming down now.
 
Last edited:

therower

Well-Known Member
Messages
3,922
Type of diabetes
Type 1
Treatment type
Insulin
Hi @SueJB. Welcome to the forum.
First of all. Don't get yourself all stressed and upset, it will not help.
You haven't mentioned any medication, so I'm assuming as of yet you're not on anything that will control your blood sugar. Yet you are in a position to test your levels. Have you self funded a meter or has it been prescribed to you? Either way you are causing yourself undue stress by getting information you don't fully understand. I suggest you leave the meter alone until you have been seen at the specialist clinic on Monday and they can give you information relevant. Yes 19 is high , but you've probably been a lot higher recently prior to diagnosis and never really realised. Your 19 could be the result of so many factors but ultimately the only way can lower it in the short term is through food/ drink and exercise.
Going for a walk will drop the reading, drinking water will also help and ultimately what you eat will effect the level your blood sugars reach. Try to avoid anything that is high in sugar , sweets, chocolate, cakes, pastries basically anything that you feel contains refined sugar. Next you need to consider sugar found in foods such as bread , pasta ,cereal, they don't taste sweet but still raise sugar levels.
I have no idea of your diet at the moment, but please don't go starving yourself over the next few days.
If you like tea and biscuits, then maybe go for a rich tea biscuit and only one or two.
If dinner is traditional meat and two veg, cut back on the potatoes and add a bit more veg.
If puddings are a must, try cheese and crackers instead of custard.
This is only information to give you an idea until you see the specialist on Monday when you should get more help and most importantly relevant medication to treat your diagnosis. Once we know what medication you are on we can help a lot more.
In the meantime PLEASE don't worry.
If at anytime you feel ill and unable to cope call your local hospital or 111 and explain your situation and they will help and advise.
Good luck on Monday and let us know what happens.
 

Ann1982

Well-Known Member
Messages
432
Type of diabetes
Treatment type
Insulin
Hi, I'm a 2 day old type 1 diabetic. Actually I'm 63.
I'm totally confused with all the information. I don't know if I should be watching how many carbs, calories or sugar I eat. I don't get to see the specialist clinic until Monday and I'm in a fearful limbo

Last night I tested my blood sugar and it was 19.00 but ketones had dropped to 0.7. This was from the orginal 4.8 (sent straight to hospital and diagnosed)

When to panic? 19 I know isn't good
Thoughts anyone please?
s
First thing DONT PANIC, welcome as well. I'll tag @daisy1 who will hopefully be along soon to give you info for the newly diagnosed. Have a look around the forum and site. Many people find a low carb diet helps them reduce their blood sugars and lose weight. Take care!
 

Daibell

Master
Messages
12,674
Type of diabetes
LADA
Treatment type
Insulin
Hi. I assume you now on some insulin? Most of us keep the carbs under control to avoid blood sugar and weight gain and that remains valid for T1s. Adjusting your insulin with guidance from the specialist will be able to control blood sugar very well. Are you on twice daily mixed insulin or 4/5 times day Balsa/Bolus (two insulins)? So, keep carbs sensibly down and have fat and protein to keep you feeling full. Forget calories as they have little relevance for us. Over the next few weeks with some insulin adjustment you should find things work out well. Do come back with more questions as needed.
 

SockFiddler

Well-Known Member
Messages
623
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi, I'm a 2 day old type 1 diabetic. Actually I'm 63.
I'm totally confused with all the information. I don't know if I should be watching how many carbs, calories or sugar I eat. I don't get to see the specialist clinic until Monday and I'm in a fearful limbo

Last night I tested my blood sugar and it was 19.00 but ketones had dropped to 0.7. This was from the orginal 4.8 (sent straight to hospital and diagnosed)

When to panic? 19 I know isn't good
Thoughts anyone please?
s

Hi, Sue and welcome!

First thing - take a breath! You're okay. Actually, you're exactly the same as you were before your appointment, only now you've got an extra word to describe you. Nothing else has changed. And now you've got a new word, you get to decide what its definition means to you.

It's an incredibly personal process but what is clear is that the more people engage with their diabetes, the better their outcomes - that's no matter their age of diabetic type. But it's a journey not a switch and you're right to have questions and to be concerned.

The lovely folk on this forum have a wealth of experience, opinions, advice and support available as well as a lot of patience and good humour. Do ask whatever you need - there's no such thing as a bad question!

A BG of 19 isn't amazing, but that number has a lot of factors and, as a stand alone figure, it's not terribly meaningful. It's a snapshot of what's going on in your blood at the exact moment the reading was performed. Yes, there was a lot of sugar, but I'll bet you were stressed and worried, might have been given a cup of sweet tea or some fruit juice while you were waiting, might even have had a packet of crisps, sandwich or chocolate bar just before the reading. All these things (and much more besides) would raise that number, so don't be panicked by it. It's an indicator, that's all.

Eventually you'll get what's called an HbA1c which gives an average blood glucose level for roughly the last 3 months, which is your true starting point.

http://www.diabetes.co.uk/what-is-hba1c.html

You'll read a lot here about diet. A lot of people are able to control their diabetes with their diet alone - some even come off their meds completely (called "remission"). Understanding the impact your diet has on your blood glucose (BG) is a powerful way to start taking control. But that's a ways down the path and there are lots and lots of ways of achieving this. Don't worry too much about that yet - let's get the basics of your diagnosis understood (and calm you down!) first. Diet comes later.

For now, find an old notebook and start writing down what you eat and when. If you have it in you, have a go at totting up how many calories and carbs (including sugars but not fibre) in what you eat. The food diary will be an important part of your kit if you plan to try a new way of eating.

Similarly, plan to get yourself a meter. I'll tag in @AM1874 who has info on a couple of well-priced choices (as well as some discount codes).

You might find that the NHS offers specific advice about diet and eating (including eating lots of "healthy" carbs) and either opposes or doesn't support (or understand) your decision to test your BG. A lot of us find this, but you can't understand what effect food has on your body without one: it's a core piece of kit.

Honestly, it all feels wild and confusing and frightening, but you're fine, I promise. And you're going to start feeling better very, very soon.

Sock x

Can I ask, why are you testing ketones?

EDIT: Mostly to acknowledge that I recommended totting up calorie intake, which another T1 poster said was irrelevant. So forget that - but DO try to figure your total carbs! :D
 
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therower

Well-Known Member
Messages
3,922
Type of diabetes
Type 1
Treatment type
Insulin
@SockFiddler . As to be expected from your good self a very friendly and helpful post.
The OP has at this moment posted as a T1 diabetic and we can assume that insulin injections will be required. If this is the case remission will not be an option as it is for T2's who change there diet and lifestyle. Likewise if OP is diagnosed as T1 then a meter and test strips will be provided on prescription.
I personally feel it's early days for the OP and things may change in time, even the original dx.
 
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SockFiddler

Well-Known Member
Messages
623
Type of diabetes
Type 2
Treatment type
Tablets (oral)
I always tend to be hasty in my replies and am more eager to get reassurance out there than check the proper facts. I'm sorry!

But, yes, remission is a T2 thing - I more wanted to highlight the power of a "good" (what works for an individual) diet - I just can't speak for what T1's qualify as a successful diet regime, and should have been clearer about that.
 
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therower

Well-Known Member
Messages
3,922
Type of diabetes
Type 1
Treatment type
Insulin
I always tend to be hasty in my replies and am more eager to get reassurance out there than check the proper facts. I'm sorry!

But, yes, remission is a T2 thing - I more wanted to highlight the power of a "good" (what works for an individual) diet - I just can't speak for what T1's qualify as a successful diet regime, and should have been clearer about that.
No problem. I'm guilty of the same problem. I admire the time and effort you obviously are prepared to give to help all of us.
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@SueJB

Hello Sue and welcome to the Forum :) Here is the Basic Information we give to new members and I hope it will be useful to you. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Chook

Expert
Messages
5,095
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
People who think they know everything.
Don't feel like it's the end of the world! Look on it as a challenge - have a look around the forum at the 'what have you eaten today' threads for an idea how many of us are managing to enjoy our food in a daily basis. This is the low carb one:

http://www.diabetes.co.uk/forum/threads/what-have-you-eaten-today.75781/


Cake: There are some gorgeous low carb cake recipes around - I have to restrict how much of it I eat (weight) but you haven't hot that problem did go for it

If you like pizza the Google 'fat head pizza' it's actually acceptable substitute for one with a bread base

Mashed potato - this is even better: http://www.ibreatheimhungry.com/2012/01/better-than-potatoes-cheesy-cauliflower.html
 
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SueJB

Well-Known Member
Messages
3,325
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
cold weather
Hi @SueJB. Welcome to the forum.
First of all. Don't get yourself all stressed and upset, it will not help.
You haven't mentioned any medication, so I'm assuming as of yet you're not on anything that will control your blood sugar. Yet you are in a position to test your levels. Have you self funded a meter or has it been prescribed to you? Either way you are causing yourself undue stress by getting information you don't fully understand. I suggest you leave the meter alone until you have been seen at the specialist clinic on Monday and they can give you information relevant. Yes 19 is high , but you've probably been a lot higher recently prior to diagnosis and never really realised. Your 19 could be the result of so many factors but ultimately the only way can lower it in the short term is through food/ drink and exercise.
Going for a walk will drop the reading, drinking water will also help and ultimately what you eat will effect the level your blood sugars reach. Try to avoid anything that is high in sugar , sweets, chocolate, cakes, pastries basically anything that you feel contains refined sugar. Next you need to consider sugar found in foods such as bread , pasta ,cereal, they don't taste sweet but still raise sugar levels.
I have no idea of your diet at the moment, but please don't go starving yourself over the next few days.
If you like tea and biscuits, then maybe go for a rich tea biscuit and only one or two.
If dinner is traditional meat and two veg, cut back on the potatoes and add a bit more veg.
If puddings are a must, try cheese and crackers instead of custard.
This is only information to give you an idea until you see the specialist on Monday when you should get more help and most importantly relevant medication to treat your diagnosis. Once we know what medication you are on we can help a lot more.
In the meantime PLEASE don't worry.
If at anytime you feel ill and unable to cope call your local hospital or 111 and explain your situation and they will help and advise.
Good luck on Monday and let us know what happens.
 

SueJB

Well-Known Member
Messages
3,325
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
cold weather
Hi everyone,
Thanks for the calming words back in Aug this year. 3 months on from T1 diagnosis, I still wonder if they've got it wrong though. My present regime is
Basal, 5units Levemir (morning and evening)
Bolus 1 to 2 units Novorapid before meals. Generally my BG is so low (4.5 to 6mmols) and I eat very few carbs out of preference that I rarely do Novorapid.
So what's my question?
Have they got it wrong? Can I reduce the Levemir?
 

Circuspony

Well-Known Member
Messages
971
Type of diabetes
Type 1
Treatment type
Insulin
Hi everyone,
Thanks for the calming words back in Aug this year. 3 months on from T1 diagnosis, I still wonder if they've got it wrong though. My present regime is
Basal, 5units Levemir (morning and evening)
Bolus 1 to 2 units Novorapid before meals. Generally my BG is so low (4.5 to 6mmols) and I eat very few carbs out of preference that I rarely do Novorapid.
So what's my question?
Have they got it wrong? Can I reduce the Levemir?
I was also diagnosed in August at the age of 43. I'm on only 6 units of lantus and have anything from 0.5 - 3 units of novorapid before a meal. The higher end is for pasta / spuds etc. I suspect we're on low doses because we're typical LADA who have a pancreas which is still operating and kicking out a bit of insulin. I have been told that my insulin doses will likely increase as the years go by.

Did they do the antibody blood tests? I have positive scores on 2 of the antibody tests so there's no debate about whether I'm type 1 or not.