1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Dry mouth

Discussion in 'Emotional and Mental Health' started by ally1, Feb 20, 2019.

  1. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    I have put this in here as wasn't really sure where else to put it.
    In no way and I looking for sympathy but I have mentioned in the past about my very dry mouth, even having my gp constantly saying its because I snore.
    On Monday my psych couldn't believe that nothing had been done about my mouth. Yesterday, he called the hospital ENT dept. In December, I did have biopsies on my tongue. Which turned out I should never gave gone to oral dept.
    I was given an appt at ENT this morning. Had camera down my nose to look at vocal cords. Found some lesions which Dr's want biopsies done. Am now awaiting for an assessnt to have general op but there is a chance that can't be done because of alot of swelling in the throat area.
    Either way, I will have speech theopy to help save my voice.
    The point of this post is, please any member who has a sore dry mouth, please kuck up a fuss to get seen, or at least be seen by the right team at the hospital.
    Xxx
     
    • Hug Hug x 7
    • Like Like x 4
  2. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    11,752
    Likes Received:
    15,126
    Trophy Points:
    298
    I’m so sorry you have another fight to fight Ally, I hope you get a diagnosis and treatment soon. And as always you’re thinking of others, bless you xx I absolutely agree, it’s always worth speaking out to get what you need
     
    • Like Like x 1
    • Agree Agree x 1
  3. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    I know alot of members might be scared to make a fuss. Especially as NHS are cutting back. But sometimes, we get nowhere uf a fuss isn't made
     
    • Agree Agree x 6
    • Hug Hug x 2
    • Like Like x 1
  4. lovinglife

    lovinglife Type 2 · Well-Known Member

    Messages:
    2,899
    Likes Received:
    2,494
    Trophy Points:
    198
    Sorry you've got something else on your plate @ally1 - you are so right about sticking up for ourselves - as my lovely Mam used to say "the squeaky wheel gets the most oil" - sending you strength and hugs x
     
    • Like Like x 2
    • Agree Agree x 1
  5. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

    Messages:
    14,302
    Likes Received:
    8,224
    Trophy Points:
    298
    Oh @ally1 , you'ev had such a raw deal in life of late. I really do wish you lived closer to me; not because I necessarily think your luck would be better, but at least I could give you a big proper hug.

    I've said it before, but I think I'm a little bit in love (in a wholeseome way) with your Psych Doc. There's a man who knows how to look after his patients.

    Keep us in the loop Ally. People here want to support you in whatever way they can.
     
    • Like Like x 1
  6. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    Thank you. Technically I should have been discharged a couple of years ago from my psych but am hanging on by a thread because he knows I am not getting help that I need. Well apart from the ENT now because of him. He has written so many times about various things he requested and nothing has been done by my gp.
    I know the NHS is very stretched and gp,s are cutting back on referring people to hospital. I understand that. But psych and me both know that my issue with my mouth has got worse. To me to the point that maybe it's now too late to make any difference re my mouth
     
  7. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    That's why I post about the way I have been treated because no doubt there are many members here that are being treated the way I have and are frightened or scared to do anything.
     
    • Like Like x 1
    • Agree Agree x 1
    • Hug Hug x 1
  8. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    Good news. After countless phone calls from the oral dept, gp has now prescribed me salivix mouth spray. One a month. Hip hip horray
     
    • Like Like x 3
    • Winner Winner x 2
    • Hug Hug x 1
  9. satindoll

    satindoll Type 2 · Well-Known Member

    Messages:
    2,077
    Likes Received:
    10,416
    Trophy Points:
    178
    Great news @ally1 ........so pleased for you, I know how wearing a dry mouth can be........just make sure you re-order in good time and don't let him put you off..........(((((((BIG HUG))))))).....
     
    • Like Like x 1
  10. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

    Messages:
    14,302
    Likes Received:
    8,224
    Trophy Points:
    298
    Yay, @ally1 - at last something to help you in the meantime. I'd likely echo @satindoll 's sentiments on ordering early, as this may not be too commonly prescribed (I don't know!), and I'd hate to think you might get some respite then have delays with supplies.

    Might be worth mentioning to the pharmacist it's on your repeat next time you see them.
     
    • Like Like x 1
  11. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    Thank you. I will certainly order the next one in good time
     
  12. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    Yes I will
     
    • Hug Hug x 1
  13. ally1

    ally1 Type 2 · Expert

    Messages:
    5,375
    Likes Received:
    21,762
    Trophy Points:
    198
    Update. Had a phone call from pre op assessnt dept just now. They asked why I hadn't turned up twice for my pre op. Explained I had no letters from them.
    Here my mind boggles, they had sent the letters to the address I lived at 30 years ago. I wouldn't have even been referred to ipswich hospital while living there. So no idea how they would have that address. The lady that called me couldn't understand that and why I have a land-line number that doesn't even cover Newmarket. Also they wondered why I had a gp surgery where I live now and would have the very old address.
    Yet the ENT dept and Neurology dept have my present address and have received letters from them.
    This can only happen to me. Good job it isn't a serious op or life threatening op as pre op dept have wrong address.
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook